'Itching to Talk?'

Psoriasis: Don't Leave It Unsaid


Itching to Talk logo (FINAL)The Psoriasis Association is collaborating with Amgen to empower people living with psoriasis to feel able to speak up and talk to their doctor or nurse about the condition's full life impact.

Your skin doesn’t always tell the whole story so don’t leave it unsaid.

The full impact psoriasis has on someone’s life often remains under-recognised. Living with psoriasis can impact negatively on the social, professional and psychological aspects of people’s lives, affecting their overall wellbeing and ability to lead a ‘normal’ life. At the same time, people often feel unable to talk to their doctor or nurse about the impact of their psoriasis beyond the physical symptoms, which can lead to feeling that they are not understood; while doctors and other healthcare professionals can find it hard to get an accurate picture of how psoriasis is affecting each person.

The ‘Itching to Talk?’ campaign, while relevant to everyone living with the condition, focuses on the experiences of people with moderate psoriasis. The campaign takes this approach because those with moderate psoriasis often find that the impact of their condition on their lives isn’t ‘moderate’ and, in some cases, can be as significant as in people living with severe psoriasis.

The campaign has been designed to help encourage a more collaborative dialogue between people living with psoriasis and healthcare professionals that achieves a better understanding of the total impact of psoriasis on people’s wellbeing. Only by people feeling encouraged and empowered to speak about how the condition affects their lives, and not just their skin, can we treat psoriasis fully and care for the whole individual.

A campaign developed by the Psoriasis Association and Amgen. Fully funded by Amgen. GB-NPS-2000005. May 2020.

Why 'Itching to Talk?'

Since 2018, we have been working to create a fuller picture of how psoriasis affects peoples’ lives. We have carried out large scale surveys among people with psoriasis and specialists in the psoriasis community, to compare the findings and gain better insights as to what is not being discussed during consultations and why. The findings from the research have been used to develop the ‘Itching to Talk?’ campaign.

In our surveys, people with psoriasis were asked to carry out a self-assessment, giving scores based on the severity, location, plaque characteristics and extent of the condition. These numbers were combined to arrive at a final score – known as a Psoriasis Area Severity Index (PASI) score. PASI is recognised by the National Institute for Health and Care Excellence (NICE) as a clinical assessment for psoriasis, often used during dermatology consultations. Statistics used in the campaign are based on findings from people with a self-reported PASI between five and nine, which is classified as moderate psoriasis.

What we found: Telling your story

The first stage of the campaign combines research findings with real-life stories to illustrate and raise awareness of the negative impact psoriasis can have beyond its physical symptoms. Here are some of the key findings and stories behind the campaign:

  • Of people with psoriasis considered 'moderate', 49% felt self-conscious or embarrassed going out in public
  • Laura
  • Of people with psoriasis considered 'moderate', 73% said they feel worse than people realise...
  • ...increasing to 97% when genitals are affected.
  • Jess
  • Of people with psoriasis considered 'moderate', 35% have had difficulty at work because of their psoriasis.
  • Keith
  • Tom
  • Of people with psoriasis considered 'moderate', 41% have felt sad, depressed or anxious because of their condition.
  • Rhianna
  • Of people with psoriasis considered 'moderate', more than 1 in 5 feel ashamed and insecure because of their condition.
  • David

What next? Making the most of your consultations

The second stage of the campaign focuses on improving communication between people with psoriasis and their doctor or nurse so that the full life impact of the condition can be addressed during consultations. An animation will be launched later this year to highlight the importance of raising the social, professional and psychological impacts, and to encourage collaborative dialogue between people living with psoriasis and their healthcare professional.

The Psoriasis Association is the UK's leading national charity and membership organisation for people affected by psoriasis – patients, families, carers and health professionals Read More >

Get in touch

The Psoriasis Association Dick Coles House 2 Queensbridge Northampton NN4 7BF

Email: mail@psoriasis-association.org.uk

Tel :
01604 251 620
WhatsApp :
07387716439
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