Psoriasis Awareness Week 2016

Ran from Saturday 29th October to Saturday 5th November.

logo 1Psoriasis Awareness Week runs annually and aims to inform and raise awareness of psoriasis and psoriatic arthritis. This year, we launched the PsoriasIS awareness campaign. Click on the heading below to view the PsoriasIS image gallery and find out more about the campaign.

Additionally, Psoriasis Awareness Week 2016 also saw the launch of a brand new original film, Psoriasis - The Skin I'm In, which tells the real life stories of people living with psoriasis. You can view the full film below.

You can see the conversation about Psoriasis Awareness Week on social media by searching for the hashtag #psoaware.

The PsoriasIS Campaign

For Psoriasis Awareness Week 2016, we encouraged everyone with experience of psoriasis to speak up about what the condition means to them. We heard from people living with psoriasis themselves, people who support a loved one living with psoriasis, medical professionals who treat people with psoriasis, and researchers who study the condition.

PsoriasIS… Treatable?
PsoriasIS… Life-changing?
PsoriasIS… Something I wish I knew more about

We asked people who wished to take part to print off a copy of our PsoriasIS logo, write what psoriasis means to them beneath it, take a photo of themselves holding the message (or just the message itself) and send it to us.

We compiled a gallery of all the images we received, which you can view below.

Thank you to everybody who took part in the campaign and shared their thoughts about psoriasis. We feel that the gallery of photos below helps to demonstrate the various different ways that psoriasis impacts people's lives. It also reinforces the fact that psoriasis is different for each individual.

The PsoriasIS Image Gallery

  • PsoriasIS thoughts 14 (Jonathan)
  • Psoriasis thoughts 1 (GP)
  • Psoriasis thoughts 4 (Carla)
  • PsoriasIS thoughts 30 (Salford Royal NHS Foundation Trust Dermatology Nurse)
  • PsoriasIS thoughts 41
  • PsoriasIS thoughts 34 (Damini)
  • PsoriasIS thoughts 35 (APRICOT team)
  • PsoriasIS thoughts 2 (GP trainee)
  • PsoriasIS thoughts 22 (Dom)
  • PsoriasIS thoughts 8 (Andy)
  • PsoriasIS thoughts 12 (Nicky)
  • PsoriasIS thoughts 26 (Dr R. Warren)
  • PsoriasIS thoughts 6 (Bethia)
  • PsoriasIS thoughts 16 (Steven)
  • PsoriasIS thoughts 31 (Salford Royal NHS Foundation Trust Dermatology Nurse 2)
  • Psoriasis thoughts 3
  • PsoriasIS thoughts 23 (Carla)
  • PsoriasIS thoughts 9 (Andy)
  • PsoriasIS thoughts 37
  • PsoriasIS thoughts 28 (Sam, Research Ops Manager, Manchester)
  • PsoriasIS thoughts 5 (Dom)
  • PsoriasIS thoughts 18 (Claire)
  • PsoriasIS thoughts 33 (Susie, Psoriasis Shout Out & PhD Student, Manchester)
  • PsoriasIS thoughts 7
  • PsoriasIS thoughts 25 (Gill)
  • PsoriasIS thoughts 13 (Nicky 2)
  • PsoriasIS thoughts 10 (Andy)
  • PsoriasIS thoughts 19 (Gill)
  • PsoriasIS thoughts 17 (Sue)
  • PsoriasIS thoughts 27 (Jacqui, Research Nurse, Manchester)
  • PsoriasIS thoughts 29 (Simon, Research Fellow, Manchester)
  • PsoriasIS thoughts 20 (Vanessa)
  • PsoriasIS thoughts 32 (Salford Royal NHS Foundation Trust Dermatology Nurse 3)
  • PsoriasIS thoughts 21 (Lydia)
  • PsoriasIS thoughts 39
  • PsoriasIS thoughts 24 (Bethia)
  • PsoriasIS thoughts 38
  • PsoriasIS thoughts 35 (Rosemary Wilson, APRICOT)
  • PsoriasIS thoughts 40
  • PsoriasIS thoughts 42 (Linzi)
  • PsoriasIS thoughts 43 (Daisy)
  • PsoriasIS thoughts 44 (Yvonne)

'Psoriasis - The Skin I'm In' Film Launched

Find Out More About 'Psoriasis - The Skin I'm In'

Born out of collaboration between Dr Sandy McBride, Consultant Dermatologist, and storyteller Sarah Sutcliffe, ‘Psoriasis – The Skin I’m In’ is an original film made in association with the See Psoriasis: Look Deeper campaign, which looks at the wider life impact of psoriasis including emotional well-being and mental health. The film tells real life stories of people living with psoriasis.

1.8 million people in the UK are living with psoriasis and yet a third of these people will never see a doctor about their psoriasis, and often do not even tell their friends and family that they have psoriasis. The psychological aspects of living with psoriasis are often poorly understood and underestimated. People living with psoriasis and their doctors are frequently unaware that there are effective treatments available for psoriasis, hence people suffer unnecessarily often for decades.  Dr Sandy McBride and Sarah Sutcliffe wanted to address these problems.

When we hear stories, oxytocin is released in the brain, which is responsible for empathy. The release of oxytocin triggers memory, making stories up to 14 times more memorable than data. Dr Sandy McBride and Sarah Sutcliffe therefore chose to develop a project using storytelling to address the lack of knowledge and understanding surrounding psoriasis.

The script, live storytelling piece and ultimately this film, were developed from over 20 hours of interviews with people living with psoriasis. The film is based on these true experiences of men and women living with psoriasis who have told their own stories.  Each narrative is told from the point of view of a person with psoriasis as they explain the ways the condition has affected them. These emotional stories are frequently poignant, sometimes comical, and invariably inspiring. This collaboration between art and science demonstrates the power of storytelling to communicate the unique perspectives of people living with psoriasis.

Using the stories of people living with psoriasis, Sarah Sutcliffe worked with award-winning novelist, storyteller, actor and film maker Danny Scheinmann to put together the script. The film was directed by Simon Baker and features original music composed and performed by Simon Edwards and Neyire Ashworth.

The film gives a meaningful insight into what it is like to live with psoriasis which is enlightening for those unfamiliar with it and refreshing for those who are - articulating emotions and frustrations that people with psoriasis experience everyday but which are rarely depicted on film or discussed.

The Live performance (from which the film has been developed) is currently touring the country and has met with hugely warm receptions from audiences, be they patients, family and friends of people with psoriasis, health professionals, or people with no previous experience of psoriasis. It has already changed the way people view the condition and its impact, with dermatologists reporting they have changed the way they practice due to what they've learnt from the performances

Particularly moving accounts from people with psoriasis, retold in the film, concern a visit to a swimming pool and a journey on a bus. We see from a different perspective how such simple things, which many of us do every day, can be completely transformed into a nightmare experience. People who have no experience of psoriasis will be shocked by what they see, while even those who have worked in dermatology for a long time are likely to have their perceptions challenged by the film.

We hope this project will enable people with psoriasis to feel less alone, encourage them to seek effective treatment and trigger friends and family to support their loved ones in seeking help. Medical professionals will be enlightened about their patients’ lives and moved to provide the treatment and support that they need.

Awareness Day

At the end of October, we held a Psoriasis Awareness Day at Asda Milton Keynes Supercentre. We set up a stand by the checkouts in the store and spoke to shoppers throughout the day about psoriasis and psoriatic arthritis.

It was a great opportunity for us to speak to people face-to-face, give out our information leaflets, and raise awareness. It was interesting to hear people's different experiences first-hand, and we are grateful to those who contributed their thoughts to our PsoriasIS campaign.

  • Awareness Day 1
  • Awareness Day 2
  • Awareness Day 3
  • Awareness Day 4
 

The Psoriasis Association is the UK's leading national charity and membership organisation for people affected by psoriasis – patients, families, carers and health professionals Read More >

Get in touch

The Psoriasis Association Dick Coles House 2 Queensbridge Northampton NN4 7BF

Email: mail@psoriasis-association.org.uk

Tel :
01604 251 620
Fax :
01604 251 621

© The Psoriasis Association Registered Charity: 257414 Scotland: SC039886 Privacy PolicyCookies

Site by Spoken Image | glitterfish

We use cookies to help us provide you with a better service, but do not track anything that can be used to personally identify you.

If you prefer us not to set these cookies, please visit our Cookie Settings page or continue browsing our site to accept them.