How long have you had pso?

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How long have you had pso?

Posted by Eloise88 on 31st January 2012 06:01PM

Hi, just wondering how long everyone's had pso? Mine's stuck around most of my life, had it since I was about 15...

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  • I've had psoriasis for about 30 years but…

    Posted by Pete on 31st January 2012 06:01PM

    I've had psoriasis for about 30 years but only recently went to the doctor and got it diagnosed.

  • I've only had mine 3 years. I have…

    Posted by smdcme on 2nd February 2012 09:02AM

    I've only had mine 3 years. I have it full body and full scalp and I hate it. Full body I can cover up the my scalp is a different matter and it looks awful

  • i've had it for nearly 20 years and…

    Posted by lynesweb on 5th February 2012 10:02AM

    i've had it for nearly 20 years and its never let up, i've tried all kinds of treatments over 2 different health authorities, but never found the right treatment for me. :(

  • hi, ive had my psoriasis for about 7…

    Posted by mystery246 on 9th March 2012 10:03PM

    hi, ive had my psoriasis for about 7 years give or take and im now 20. Until this year it was coverable and still able to enjoy things like playing football or nights out, however for the past 6 months its become more noticable and can be restrictive especially as a young adolecent :(

  • I've had my psorasis for about 9-10 years.…

    Posted by Mia_Sohma on 12th March 2012 09:03AM

    I've had my psorasis for about 9-10 years. I feel like I've always had it.
    I developed psoriatic arthritis about 7-8 years ago as well (I think...) but I spent most of tose 7-8 years getting told by my GP that i didn't have psoriatic arthritis...
    When I first developed plaque psoriasis I had a tiny little disc on my elbow. Needless to say it just spread and now I have massive patches on both elbows, my left knee and a smattering on my face, back, arm and stomach.
    I class my psoriasis as moderate, and at the moment it's fairly under control. I go through stages of managing it effectively before it goes all haywire again...

  • I have had psoriasis for 21 years, it…

    Posted by gott1 on 12th March 2012 11:03AM

    I have had psoriasis for 21 years, it ruined my what should have been happy uni years - no swimming or hanging out on nice summer days, as you get older you learn to deal with it, my advice is NEVER get involved with steroids they cause more harm than good - especially Dovobet which is very nasty and causes terrible 'bounceback' - treat yourself to a cheap hoilday in the sun with plenty of time in the sea, and when back home in this colder climate you can't beat Exorex lotion! expensive but your GP should give you it on prescription

  • I have only had psoriasis for 5months, (full…

    Posted by cazzy10 on 13th March 2012 07:03PM

    I have only had psoriasis for 5months, (full body and scalp) i find it very hard to deal with the stares and comments :(

  • ive had psoriasis for 12 years. im about…

    Posted by geep2310 on 15th March 2012 04:03PM

    ive had psoriasis for 12 years. im about to turn 20 and im starting to resent myself for having the condition. i have psoriasis in large patches all over my legs, tummy and all around my hairline. i wish i could wear my hair up, wear skirts and dresses :(

  • I started with the teensiest patch on my…

    Posted by Miller19 on 18th March 2012 12:03AM

    I started with the teensiest patch on my scalp and then a five pence sized patch on my eyebrow seemed to flare when I was bullied at school, that remained the same for years barely unnoticeable years later when I got to 28 I went away to turkey and developed white blotched flay not plaques on my skin like reverse tanning after about eight months they faded but shortly after that my pso went crazy patch the size of a beer mat scaly and silver yet not itchy on base of my spine.....the worst are 100% guttate which rapidly appear and disappear on my tummy and torso legs and arms and hands, the itching scaly scalp is awful, I'm scared to get dressed for work as I have a good job and work in an office so I have to avoid black as I look like I have leprosy it's awful and very embarrassing. I am ok looking and I used to be relatively confident but this condition makes me feel sooooo less of a woman, it's a real confidence killer....awful, how are you doing? X

  • I had mine since 1994, i feel mine…

    Posted by Alexbw2008 on 18th March 2012 08:03PM

    I had mine since 1994, i feel mine is quite mild as dont have flaky skin but have lots red patches in eyebrows, chin, nose and scalp
    also have it on both eelbows and knees
    Tends to come and go
    i use e45 alot and the dead sea treatment's but the cream makes your face look very greasy so only use it when at home.
    Always concerned by it and my main getting ready to go out time is skint creaming the patches
    Does get me down sometimes

  • 14 years arrived soon that summer on 1998.

    Posted by fox on 31st March 2012 01:03AM

    14 years arrived soon

    that summer on 1998.

  • Hi all, just joined the forum. I have…

    Posted by grumpygroo on 2nd April 2012 12:04PM

    Hi all, just joined the forum. I have had psoriasis for the last 35 years or so. Guttate spread fairly evenly over my body. Been through the mill as far as the treatments are concerned, done most of them, smelly, greasy, stained clothes etc. None has cleared it. Had UVB treatment a couple of years ago, which has reduced it to the extent that I can keep it in check with a strict regime of moisturising and bathing with E45 bath oil. Except on my face which is always a problem.

  • I've just joined, saw this thread and realised…

    Posted by Mark on 8th April 2012 12:04PM

    I've just joined, saw this thread and realised it's my 30th Annivesary.
    It's worse in winter with Centrl heating on and no sunlight to help it.
    Roll on the summer!

  • i had psoriasis for 39years now and have…

    Posted by judith65 on 21st May 2012 05:05PM

    i had psoriasis for 39years now and have seen off all treatments to date with no real effect. the only good thing to have come out of all this is i did the worst years at school (name calling) and my skin and hide is tougher than a rhinos now. if i want to go swiming etc i will and dare anyone say anything then i shall tell them straight. Ignorance is no excuse as far as im concerned so why put up with it or hide away. Be brave i say take back your life and do what you want to do. the only people that really get me mad are the government who send you for assessments, then inform you your not ill and have to work, where i say, someone show me an employer that allows you time off regularly 3 times weekly to attend hospital in working hours. ive had to give up my job which i have 10yrs service in as they only paid sick pay for 6 months and due to my condition i couldnt do me job so the government had to paid me sick pay but said i had to return to work and stopped all monies coming in my employer refused to let me start work as i was in no condition to return, so stuff them all i started me own bussiness and work to suit myself and with people who understand me.

  • How old are you now Eloise? Im 27,…

    Posted by Clairebear2410 on 11th June 2012 07:06PM

    How old are you now Eloise? Im 27, struggling to find anyone around my own age:(

  • i have had it all my life but…

    Posted by matthew on 11th June 2012 10:06PM

    i have had it all my life but that was just a small patch on my elbow, it has really got worse over the past five years.

  • i've had mine for 3 years, it started…

    Posted by Bina_94 on 21st June 2012 08:06PM

    i've had mine for 3 years, it started on my scalp, and it used to crack and bleed all the time, then i got it on my stomach and now it has spread to my neck, back, shoulders and behind my ears, but im slowly learning to deal with it xxx

  • Hi everyone, I haved had pso since i…

    Posted by ian on 24th June 2012 02:06PM

    Hi everyone, I haved had pso since i was 18 months old...48 1/2 year....and it has affected relationships and limits what you can enjoy in life as the majority of people dont understand what it is and distance thereself through ignorance.

  • Hi everyone, I haved had pso since i…

    Posted by ian on 24th June 2012 02:06PM

    Hi everyone, I haved had pso since i was 18 months old...48 1/2 year....and it has affected relationships and limits what you can enjoy in life as the majority of people dont understand what it is and distance themself through ignorance.

  • Hi everyone, I haved had pso since i…

    Posted by ian on 24th June 2012 02:06PM

    Hi everyone, I haved had pso since i was 18 months old...48 1/2 year....and it has affected relationships and limits what you can enjoy in life as the majority of people dont understand what it is and distance themself through ignorance.

  • I have had Guttate psoriasis for around 3…

    Posted by LondonLad on 26th June 2012 01:06PM

    I have had Guttate psoriasis for around 3 weeks. I've never suffered from psoriasis and neither has any member of my family.

    Being initially diagnosed as having a histamine an allergic reaction I was advised to take anti histamine

    My condition got worse so after two weeks I got a second opinion and was told I had Guttate psoriasis. I have been prescribed steroid cream.

    I know that I should get better in the next couple of weeks but it has really knocked me for six and I've felt very self conscious and experienced peoples silent reactions to seeing it all over my hands. I've kept my arms covered and my body was affected all over.

    I've not even wanted my wife to see me uncovered and quite frankly it s made me rather depressed.

    I didn't realise what an emotional effect it would have on me but I'm glad to say that now I can see the treatment working I'm beginning to regain my confidence.

  • Around 10 years!! Feels like a LIFE TIME!!…

    Posted by Paddyellis on 26th June 2012 04:06PM

    Around 10 years!! Feels like a LIFE TIME!! :(

    Elbows/body/behind ears

  • i,ve had pso for 28years now,it really flared…

    Posted by dawnmaxine on 1st July 2012 04:07PM

    i,ve had pso for 28years now,it really flared up after my second son at the age of 23.since then it seem to get worse as every year passes,its worse on my stomach,it starts as alittle bit then i get more patches and in the end it all connects up to make pretty big patches.i,ve used dovonex cream then the ointment but both have now been discontinued.the docter has now given me curatoderm ointment which has,nt helped at all,so now it,s back to being red and itchy again.can anybody recommend another cream?

  • I can't remember how it first started, but…

    Posted by Steve on 1st July 2012 06:07PM

    I can't remember how it first started, but it was about 15 years ago when I was in my early 20's.

    I've only ever used 2 treatments; Calcipotriene ointment, which is messy but works for me on small patches, and phototherapy when I had a particularly large patch which covered my chest.

    I can't speak highly enough of phototherapy. I had 18 treatments over 6 weeks, and they only last a few minutes each. The patch being treated was the worst I've ever had but it completely cleared up following this treatment, and you get a free tan! Several people asked where I'd been on holiday!

  • Hi, I am 42 and have had psoriasis…

    Posted by Couture on 4th July 2012 03:07PM

    Hi, I am 42 and have had psoriasis since my parents split up when I was 7 yrs old. depressingly makes that 35 years. i cant say any medication has really helped. A childhood of tar baths and my mother gressing my scalp and hair was disastrous for my self confidence. Leaving home at 21 gave me the freedom to cook and research for myself food groups that I found to make my psoriasis agressive. Lesions that would not move for 10 years dissappeared when I stopped eating dairy and red meat as well as many other foods. happy to tell people my diet that has worked for me. At 31 I developed psoriatic arthritus in my hands, chronically, and my feet. This was stress induced by divorced but i have managed to keep under control without medication. Good luck everyone finding what works for you.

  • I have had p since a child ,i…

    Posted by maryday9 on 22nd July 2012 12:07PM

    I have had p since a child ,i had a few years with littel or no patches .
    now i even have it on my lady area's not nice in fact i am loosing sleep with the constant itching .i am depressed with the situation .
    I am also embaressed by it .
    I am 56 i wish i had a magic wand !!

  • I have had p since I was about…

    Posted by dizzy on 24th July 2012 02:07PM

    I have had p since I was about 6/7 Im now nearly 25 so just pushing 20 years

  • I have had Psoriasis for five years, since…

    Posted by DianaP54 on 6th August 2012 10:08AM

    I have had Psoriasis for five years, since giving up smoking it has gradually taken over my body,recently i have used Dovobet,my God it just made it ten times worse.
    It is so sore and bleeds alot, i know i scratch it so in a way its my own fault.
    Thanks for information about Exorex cream, will try it gott1.
    Nothing worse having to wear long sleeves on a hot day, people look at you gone out and ask why you havnt taken it off.
    I thank God that i am fifty seven and not seventeen i feel for anyone with this thing and being young must make it harder to deal with, having said that you must stay positive you cant let it beat you.
    Gives me comfort to know i am not on my own, would be great if we all went to bed tonight and woke up without it.

  • Hi all , I've had mine for ten…

    Posted by kirsty on 8th August 2012 12:08AM

    Hi all , I've had mine for ten years now since i was 15, it came up with chicken pox and went all over my body and scalp. It was horrible as i lived in a small town in cornwall so got looked at a lot. I try and deal with it but you always get those hard days when you have a flare up.
    Im now 25 and starting my 3rd new injection and just come out of hospital for the 6th time.
    Ive noticed when i was younger i was in hospital 4 times with plaque and now in the last 6 years i have only been in twice but the pain is a lot worse when it flares, it affects my legs the most when it flares that i can hardly walk.
    I got told i might grow out of iy which im still hoping for but it worries me that i won't and the pain might get worse when it flares.
    Kirsty

  • Had Psoriasis for 12-13 years, I've had ups…

    Posted by ncarrier87 on 8th August 2012 08:08PM

    Had Psoriasis for 12-13 years, I've had ups and downs and at times it has been difficult to live with. The only way I've been able to look at it is "yes I have it, yes I'm unfortunate" but I could have other issues. I could be a lot worse off. It will continue and I'm sure its not going away just yet but who knows. Anything could happen.. :) Keep your chins up all..

  • 10 years, Since I was 15. I don't…

    Posted by sarahj1125 on 21st August 2012 05:08PM

    10 years, Since I was 15. I don't have 'flare ups', it's always flared up!! SInce having my second child it has taken over my whole body. Some days I don't care, other days I want to die.

  • My psoriasis kicked off in the 80s when…

    Posted by Nevermind_me on 23rd August 2012 05:08AM

    My psoriasis kicked off in the 80s when my parents got divorced. Body and scalp, I remember copious amounts of T-Gel and my thick, red, curly hair being regularly 'de-flaked' by my mother.
    I know I had flare ups through my teens but none specifically stick out in my memory. Horrible though, and I have always on my scalp, although normally just patches behind my ears and around the edge of my hairline.
    In my early twenties when I broke up with my first boyfriend I had another flare up, (late 90s), then again around 2003 when my Grandmother suffered a serious fall. That was definitely stress related as it happened overnight. Cleared with a lot of sunlight on an archaeological dig at the end of the summer.
    2012 is my 4th serious flare up, have had it on my scalp and the odd patch for the past 8 years or so, but work stress has brought me out in a full body flare with spots on my back, torso, legs and arms and my scalp is awful, far far worse than the normal background level.
    Ah well. No choice but to just keep on. I don't like steroids and keep away from them, I'll try and eat a bit more healthily, and get lots of healthy sunlight. I have only washed my hair with water and a comb for the past 5 years but I will probably have a stint on T-Gel to get my scalp manageable again. I had forgotten the itching!

    Be bold and brave folks, we're still who we are, we're just spotty. I wish Deep Space 9 was still on, a very sweet and lovely ex boyfriend always said I reminded him of Jadzia Dax ;o)

  • I started with psoriasis when I was 8…

    Posted by goodyuk on 27th August 2012 09:08AM

    I started with psoriasis when I was 8 - I am now 38 and I have never had it so bad. What started as a few plaques on my head and one patch on my stomach has developed to a lot of plaques in my head and large coverage on my body, inparticular on my back 70% coverage, and backside - as well as legs, arm, airline, in the ears, under my nails and most recently have developed psoritic arthritis! Over the past couple of months it looks like I am also getting pustular psoriasis on my hand! So I now have the full set almost!!

  • I've had mine for nearly 20 years... I…

    Posted by lucymargaret1993 on 30th August 2012 03:08PM

    I've had mine for nearly 20 years... I first got it at 6 months and it has been stuck with me till now and I'm 20 in April

  • I've had it about 2 1/2 years on…

    Posted by LM1991 on 12th September 2012 11:09PM

    I've had it about 2 1/2 years on my body and about 1/2 a year on my scalp which is much worse than what i get on my body. I've only just had it diagnosed though, annoyed that it has taken so many doctors visits to find out! Can't tell you how many time i was told it was 'just dry skin' and to moisturise. All the moisturiser in the world didn't help!

  • Have had mine for 20 odd yrs, Thing…

    Posted by brian on 17th October 2012 10:10AM

    Have had mine for 20 odd yrs, Thing that gets my back up, is the total lack of understanding, From health care workers, but most of all the general public. Was asked to leave the swimming baths a few years ago, cos some one complained.
    shot me down, never been since. which was my only joy, and exercise.

  • I have had psoriasis for 5 years but…

    Posted by edoswick on 17th October 2012 09:10PM

    I have had psoriasis for 5 years but latest outbreak like nothing i've had before - spreading from my elbows and knees, itching, behind ears etc - i am 33 and a teacher and finding it all a bit tough at mo!

  • i have scalp psoriasis for over a year…

    Posted by mmontero on 30th October 2012 02:10AM

    i have scalp psoriasis for over a year now. It,s making me feel so miserable.....

  • Hi, I've had mine since I was a…

    Posted by pfhilton on 10th November 2012 09:11PM

    Hi,

    I've had mine since I was a teenager. Am lucky as it mainly affects my torso and legs so it easy to cover. I do have a patch above one of my elbows which can be seen but it's not obvious. I used Betnovate and Dovonex for years and got on well with them Doctor recently changed my prescription to Dovobet. Seems to work well and has the advantage of only needing to be applied once a day. Anyone else using it, how are you getting on with it?

  • hi,im 32 and have had it since i…

    Posted by cjw on 5th December 2012 09:12AM

    hi,im 32 and have had it since i was 2 ,so 30 yrs now,i get it on my scalp,arms ,legs,ears and face,have tryed many treatments none of which help but do find mine is worse in the winter xx

  • In terms of my scalp psoriasis, constantly since…

    Posted by petlamb on 6th December 2012 03:12PM

    In terms of my scalp psoriasis, constantly since at least 10 so that's 14+ years. My shins have been on and off in that time, over about the last 10 years I have also been affected to a varying (increasing) extent by a patch of inverse psoriasis.

    More recently I've had patches come up on abdo, arms and back too. Bah.

  • It feels like a lifetime, although thinking about…

    Posted by geebee on 10th December 2012 07:12PM

    It feels like a lifetime, although thinking about it I suppose it virtually is. I've had the dreaded P for 26 years since I was 15. I feel short-changed by the term 'Flare up' mine has been permanent it's never improved or worsened although is pretty acute virtually everywhere - although fortunately none of the plaques are visible on areas not covered by long sleeved clothing and trousers. So during all these years only a handful of people actually know I have the condition - although like most people I'm sure we all think everyone in the world has x-ray vision and can see beneath our clothing and instantly spot the hideous P.

    I've had an assortment of creams, lotions, ointments, preparations solutions and diets but none of these have cleared the problem completely. Only Dovobet Ointment seems to reduce the plaques slightly, although realistically it’s pointless taking it as the effect of the treatment is only slightly noticeable. Strangely though I was in hospital around 15 years ago I had a severe foot infection and had a few days in hospital to receive a course of IV antibiotics after a few days I noticed the Psoriasis was beginning to improve and for a 2 week period after this it noticeably improved to the point where it had vanished completely on my arms although within a month it was back again.

    Around 6 years ago I received PUVA treatment, I was extremely sceptical but it cleared COMPLETELY. I was completely amazed I assumed that if it did ever clear up I'd be left with some kind of visible markings or blemished but there was not a mark in sight, unfortunately within 4 months it gradually started to return and creams etc were powerless at preventing it worsening.

    So it seems like everyone else here after all these years I'm stuck with it.

  • try going wheat and gluten free for just…

    Posted by itworkedforme on 16th December 2012 07:12PM

    try going wheat and gluten free for just two weeks and see if your psoriasis clears,i did, and mine has now gone after 40 years!

  • hi all just joined site. i have psoratic…

    Posted by mike26 on 3rd January 2013 04:01PM

    hi all just joined site.
    i have psoratic arthritis & plantar fasciitis (foot pain) started when i turned 50,the psoriasis ive got is very mild 3 places( knees ,lower back, and behind ears) the last couple of years ive been geting slower & harder to do my job(walking about like a man of 99) working with ladders didnt help,then had accident last year to shoulder phizzio said damaged my rotary cuff mustle. then came the arthritis im 60 now didnt know this could follow (but do now) ive got it in 6to7 places and very severe.im on methotrexate/ oral steroids/folic acid. (hope thay work)couldnt walk yesterday probabley have to get leg drained (fluidon knee) and steroid jab .(hope it works 4 me) ive also had sulfasalazine but had to stop taking them(low white blood cell count) on this site we can talk about PsA everyone knows about the horible condition. just gota keep fighting it & keep on top of it your roomy will help keep regular blood test while on meds.
    good whishes all mike26

  • Had a bout of Guttate P covering most…

    Posted by richie88 on 16th January 2013 03:01PM

    Had a bout of Guttate P covering most of my body 15 monts ago. Almost cleared with light treatment, went working away and didnt finish the full course. Came back 3 months later, dianosed as chronic plaque p. Will this ever go? I am having light treatment again, which seems to be clearing most of my body but keep getting outbreaks of smaal plaques on the inside of my arms. Infact they seem to be small plaques all over when I get an outbreak. Any advice please

  • Hi mine starts when i was 13 years…

    Posted by sammy on 17th January 2013 08:01PM

    Hi mine starts when i was 13 years old. I have P for 23 years now.

  • I have had psoriasis all my life and…

    Posted by ElliotFR on 20th January 2013 02:01AM

    I have had psoriasis all my life and I am now 28. It started off as a child just being on my scalp but as I got older it spread all over my body.. I cannot remember what type of psoriasis I have but it is widely spread all over. I have only just realized that it majorly helps to moisturize the affected areas after a bath by stopping it drying out, Does anyone else have any good tips? I am currently having light therapy. I also feel very conscious of wearing shorts this coming summer as it has spread more since last year.

  • I have had psoriasis all my life and…

    Posted by ElliotFR on 20th January 2013 02:01AM

    I have had psoriasis all my life and I am now 28. It started off as a child just being on my scalp but as I got older it spread all over my body.. I cannot remember what type of psoriasis I have but it is widely spread all over. I have only just realized that it majorly helps to moisturize the affected areas after a bath by stopping it drying out, Does anyone else have any good tips? I am currently having light therapy. I am also very concious of wearing shorts this coming summer as it has spread more since last year.

  • I was diagnosed when I was 4 years…

    Posted by Sarah09 on 21st January 2013 12:01PM

    I was diagnosed when I was 4 years old, 34 now so I've had psoriasis for 30 years. 30 long, painful, itchy, demoralising isolating years. Hospitalised & treated like an infectious leper by archaic paediatric medical "professionals" as a 7 year old, put on display by a different "expert" for her medical students as a developing 12 year old. Finally, at 21, treated by someone who understood the psychological causes as well as the physiological. Because I've had it since childhood, most people I grew up with never really commented on it & I was lucky enough that school wasn't too bad. It wasn't until I was 26 & training to be a nurse that I met with the ignorance & discrimination that I knew I was lucky to avoid until this time. My surprise was that it was from experienced medical personnel. They made me ashamed, not of my skin, but of the profession I was training to be a part of. I was isolated from certain placements & learning opportunities. But, thanks to my fantastic friends & family, I persevered & triumphed in the end! I took great satisfaction in knowing certain people had to eat their words when it came to me! Now, I'm happy in myself & my life & my psoriasis has never been as good as it is now!! Thanks for reading if u got this far, my journey has been a long 1!

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