People looking at your psoriasis...

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People looking at your psoriasis...

Posted by Pete on 31st January 2012 06:01PM

I've got it on my hands so it's quite obvious, was wondering if anyone's got any tips for dealing with people's reactions? Mostly I just try to explain what it is and that it's not contagious.

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  • Always a tough one - at least it's…

    Posted by EmilyB on 1st February 2012 07:02PM

    Always a tough one - at least it's winter so gloves are ok.
    Sorry I can't help much - hopefully someone else can be better :-)

  • I work in the public sector and am…

    Posted by Ricscott on 2nd February 2012 11:02AM

    I work in the public sector and am also at university so I know exactly how it feels to have people stare.

    I have p on my forearms and face. You have to make the most of any spare time you have to keep it moisturised to minimise obvious red or scaly patches, previous night works well as it calms down while I sleep, especially if I shave.

    I've pulled a sicky and cancelled nights out before now when its been really bad so you need to keep on top of it to Make the best from a bad situation.

  • Just realised i didn't answer your question. I'm…

    Posted by Ricscott on 2nd February 2012 12:02PM

    Just realised i didn't answer your question.

    I'm so used to people staring that i rarely notice it anymore, there are times when kids will stare but i chalk that off to them being inqusitive and not knowing what p is.

    There comes a time you realise there isn't much you can do, just attempt to keep it under control.

  • Thanks, Ricscott, you're probably right about making time…

    Posted by Pete on 6th February 2012 10:02AM

    Thanks, Ricscott, you're probably right about making time to treat it and moisturise, does help.

    Also you're right about kids staring too, they don't know what it is is all. A bit more awareness would be great. I've cancelled nights out because of my pso too! Reckon we all have at some time or another.

  • Hi Pete, it is a tough one indeed.…

    Posted by PrisK on 15th February 2012 07:02PM

    Hi Pete,
    it is a tough one indeed. But as Ricscott says, keep it moisturized.
    I used to have p on my hands when it started (and I was 14, the best age for that, isn't it?!). I was always explaining to people close to me what I had - anticipation was the key. As for people in the streets, i was hiding my body a lot with long sleeves all the time so it never really happened, or maybe I can't remember.
    Anyway, don't let it ruin your life, if people stare, just stare back or smile and they will just look away!

  • Hi I like to explain to people about…

    Posted by cathy92 on 17th February 2012 02:02PM

    Hi

    I like to explain to people about my psoriasis, I would rather tell them exactly what it is I have than let them make their own judgement. Im at university too so know what it feels like when people are looking. I feel that if people have a problem with my psoriasis then they arent worth knowing anyway! x

  • I've got psoriasis on both my hands too,…

    Posted by scotlass on 24th February 2012 10:02PM

    I've got psoriasis on both my hands too, and its getting worse. I'm trying all sorts of treatments from the dermatologist but isn't helping. I'm also fed up with people staring at my hands. I've also found that if your paying for things, the cashier can be quite rude, which i find upsetting.

  • If anyone starts proper staring rub your hands…

    Posted by MrLeper on 5th March 2012 10:03PM

    If anyone starts proper staring rub your hands in their face and tell them they now have HIV, hilarity ensues.
    If someone's being a dick and making fun, slap them.
    If someone's just generally being inquisitive i just explain what it is too them and then everyone can get on with thier lives.

  • I have p all over, hands, legs, arms,…

    Posted by Bobertern on 9th March 2012 03:03PM

    I have p all over, hands, legs, arms, face, body, used to put me off wearing short sleeve things and going swimming, which I love, then one day I gave my self a slap and thought sod everyone else it's my life. So what if they stare it might hurt to begin with but it'll soon pass.

  • I know it's a bit cliché but I…

    Posted by Mia_Sohma on 12th March 2012 10:03AM

    I know it's a bit cliché but I just ignore it, really.
    I've never really been able to blend in with other people, even before developing a skin condition that somehow made me 'different' from everyone else.
    It definitely affects me in summer because I think I do tend to cover up more due to my skin, but I have other self-confidence issues that impact on this decision.
    If I do notice someone staring or I want to explain it to someone, I generally start with my usual spiel: 'it's a hereditary skin condition in which your skin cells grow to fast....'
    Then everyone seems to think I have eczema -_-

  • My fingernails have disintegrated and my finger joints…

    Posted by michaelswims on 14th March 2012 08:03PM

    My fingernails have disintegrated and my finger joints are swollen.
    As I work in food manufacturing I am deeply conscious of people looking at my hands.
    Although I have informed the occupational health department, I worry about my long term prospects within the company

  • For michaelswims Have read your post with concern…

    Posted by saintsfan on 15th March 2012 11:03AM

    For michaelswims
    Have read your post with concern and have some practical points which you might find useful.
    From my experience, OH departments aren't always the most on the ball when it comes to conditions outside their usual remit. Try and be proactive about providing them with as much positive information as possible about psoriasis and, what sounds like, psoriatic arthritis. If you're not already, see your GP about it and, if necessary, insist on a hospital referral to both dermatology and rheumatology.
    If the condition of your nails and/or joints is having an impact on your work (and will do for some time) you may well be covered under the Disability Discrimination Act.
    If your hands become an issue for your employer, it's probably worth seeking help from a union rep, if there is one at work.
    Should it be necessary for your employer to discuss your continued employment because of the psoriasis given it is a food processing site, make sure they have dealt with it all properly. The DirectGov website can be helpful with queries about how different employment situations should be dealt with.
    Simply, your employer should deal with psoriasis in the same way as any other long term health condition.
    Hope that helps.

  • Sorry Pete didn't really respond to your question…

    Posted by michaelswims on 15th March 2012 10:03PM

    Sorry Pete didn't really respond to your question just blathered on about myself.
    As I am fairly new to this I am not much use but Cathy 92 seems to have a really good perspective on how to deal with starers.
    Thanks to sainsfan for your concern, I am in the process of seeing consultants etc

  • Until quite recently, my hands weren't bad, but…

    Posted by Caspar on 20th March 2012 06:03PM

    Until quite recently, my hands weren't bad, but I've never even seen pictures as bad as my legs are now. Yesterday on a hike up a stream I had to roll my trousers up to avoid them getting wet. My students never asked me why my legs looked like they'd just been burned by a blowtorch, and I never said a word either. I think you're doing one better than me by explaining, but maybe we are all too self-conscious about what people think. Isn't that even a good theory about why we get this shit disease? Yours in solidarity ...

  • Hi there, Just joined and saw this thread…

    Posted by Mark on 8th April 2012 09:04AM

    Hi there,

    Just joined and saw this thread - bit late now maybe?

    I agree with both Bobertern and Cathy92.

    Firsty, why let anyone stop you enjoying the sun or swimming or anything else where you get your kit off! lol. Sod em.

    Secondly, it is worth explaining what you know about the condition.

    You'll soon find out who your real friends are.

    I followed the above about 20 years ago and don't care what people think now - feels good too.

  • HI there, I'm a newby here, but like…

    Posted by SamFos on 28th January 2013 10:01AM

    HI there,

    I'm a newby here, but like a few of the other posters I used to be really self conscious about it and people staring at me. But I've more or less got used to it. I mainly get it on my arms and body, so it's fairly easy to hide, and I'm not so bothered about the summer as I've never liked beaches anyway - on holiday I'd rather do anything than get bored lying on a beach all day.
    Like you, I try to explain to people, and once they realise it's 'just' psoriasis, not contagious and not some sci-fi type flesh-eating disease, they're usually fine.

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