Covered from head to toe please help!
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Posted Mon 13 Feb 2017 10.55pm by Mrsbluesky
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Posted Wed 15 Feb 2017 6.37pm by Nicola
Posted Thu 16 Feb 2017 8.23pm by Mrsbluesky
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Posted Thu 16 Feb 2017 8.48pm by Nicola
Posted Thu 16 Feb 2017 8.50pm by Nicola
Posted Thu 16 Feb 2017 9.17pm by Mrsbluesky
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Posted Thu 16 Feb 2017 9.19pm by Mrsbluesky
Posted Thu 16 Feb 2017 9.36pm by Nicola
Posted Thu 16 Feb 2017 10.18pm by joyce
Posted Fri 17 Feb 2017 2.18pm by Jo Jo
Posted Fri 17 Feb 2017 9.51pm by Mrsbluesky
Posted Fri 17 Feb 2017 10.18pm by Nicola
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Posted Mon 20 Feb 2017 2.04pm by RedHead
Posted Thu 23 Feb 2017 1.20pm by Johnbeach47
Posted Thu 23 Feb 2017 10.55pm by andrea
have had p for too many years
Posted Fri 24 Feb 2017 10.53am by Mrsbluesky
Posted Fri 24 Feb 2017 11.01am by Mrsbluesky
Posted Fri 24 Feb 2017 8.43pm by Nicola
Posted Sat 25 Feb 2017 0.31am by cazza
Posted Sun 26 Feb 2017 8.05pm by Mrsbluesky
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Posted Tue 28 Feb 2017 6.55am by Julie
Posted Tue 28 Feb 2017 10.13pm by ruhi94544
Posted Tue 28 Feb 2017 11.33pm by Lougilbert
Posted Sun 5 Mar 2017 4.48pm by Nelly
Posted Fri 10 Mar 2017 5.37pm by lisascot
Posted Fri 10 Mar 2017 5.41pm by lisascot
Posted Fri 10 Mar 2017 8.08pm by Mrsbluesky
Posted Fri 10 Mar 2017 8.24pm by lisascot
Posted Fri 10 Mar 2017 8.44pm by Nicola
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Posted Sat 11 Mar 2017 9.47am by lisascot
Posted Sat 11 Mar 2017 10am by Nicola
Posted Fri 17 Mar 2017 8.17pm by clarky1252
Posted Fri 17 Mar 2017 9.07pm by Nicola
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Posted Wed 22 Mar 2017 2.08pm by Jo Jo
Posted Wed 22 Mar 2017 8.02pm by Cazcant
Posted Thu 23 Mar 2017 11.06am by clarky1252
Posted Wed 29 Mar 2017 1.54pm by Slipit1
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Posted Fri 21 Apr 2017 10.39pm by Kirsty
Posted Sat 22 Apr 2017 11.25pm by deb28
Posted Mon 1 May 2017 8.32am by Mrsbluesky
Posted Wed 3 May 2017 10.01am by orangepeel
Posted Wed 3 May 2017 3.06pm by sue
Posted Thu 4 May 2017 7.34am by jane287
Posted Thu 4 May 2017 8.55pm by Sam-stuart
Posted Mon 18 Sep 2017 3.18pm by marianbessie
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Posted Tue 19 Sep 2017 11.10pm by Sargod
Posted Thu 21 Sep 2017 12.09pm by Slipit1
Posted Sun 24 Sep 2017 9.33pm by Col182
Posted Tue 26 Sep 2017 9.58am by jamuk
Posted Tue 26 Sep 2017 12.20pm by Slipit1
Posted Tue 26 Sep 2017 6.39pm by Deeker57
Posted Sun 1 Oct 2017 0.27am by Middy1 (edited Sun 1 Oct 2017 0.31am by Middy1)
Posted Thu 5 Oct 2017 10.26am by Tralalal02
Posted Tue 10 Oct 2017 9.44am by mappaman
Posted Tue 10 Oct 2017 1.20pm by jdrussell78
Hi MrsBluesky
I have had psoriasis since 2008. I have had a lot of major flare ups in that time. I suffer from guttae psoriasis too. It is everywhere at the moment, over my arms, legs, really bad on my back and in my scalp. I would say at the moment it is about 80% coverage.
I have been on various treatments in the past, i started with UVB light treatment and had two goes at that at the hospital 6 months apart for 6 months. That did initially seem to work. But then when the winter hit, it came back.
I have used various creams for a long time too, dovobet, dovonex (?) and others. One thing that really helps the scratching, which for me is the worst part, is aloe vera. It can really cool the skin and help to stop the want to scratch all the time.
I have recently been prescribed Enstillar foam, which is great. It really works, but have to get a new bottle of that every 2 weeks as it runs out so quickly. For me, this has been the best topical treatment and it really helped.
I was also on cyclosporin for a long time, I was on it for 3 years and when my new dermatologist found out he took me off that straight away and put me on apremilast.
Cyclosporin did really work, I pretty much went down to about 10% coverage, it was amazing. But had to come off due to possible side affects. I had higher blood pressure, had to take medication to keep that in check and had to go for regular blood tests.
After coming off that I have started on humira injections, yesterday in fact. I hope this will work as nothing else apart from the cyclosporin and the enstillar foam had touched the psoriasis before.
Here's hoping that works.
Posted Wed 11 Oct 2017 12.28pm by Gautamse
Posted Wed 11 Oct 2017 9.46pm by Andy1990
Posted Wed 11 Oct 2017 10.21pm by Rochelleamy
Posted Wed 11 Oct 2017 11.07pm by Psoriasisfree
Posted Mon 16 Oct 2017 9.01pm by sugarfree
Really sorry to hear these problems Mrs Blue Sky. I sympathise. Please read this if you want a natural solution that worked for me and I'm not selling you anything except perhaps someone else's book and I'm not on commission - sadly because I could do with funding for the charity I run CO-Gas Safety on carbon monoxide poisoning!
I was diagnosed in summer 2015 and the creams helped a bit but I felt there was something wrong with me deep down. I didn't feel right. It had started in my mouth which kind of furred up. My tummy button smelled. I had red patches on my torso and they got bigger. Then all my orifices itched or hurt. I even got Psoriasis in my ears and when wax came out it was full of skin too. My scalp was covered in spots and scabs YUK! My brain wasn't working properly either. Until I wrote this I hadn't admitted how bad it was, even to myself.
Then I came across a book written by Dr Sarah Myhill, a medical doctor but also a believer in alternative medicine and who keeps an open mind. She had, in my opinion, been bullied and persecuted by the medical establishment and I had been to support her at a rally at the BMA. I admit I like people who think for themselves. I know medics can be too 'establishment' - have you read about Barry Marshall who found a cure for ulcers (short course of antibiotics) but the medical establishment had refused to take any notice for years - but they do now.
I therefore bought Dr Myhill’s new book out of curiosity but mainly to support her. It has a pink sugary cupcake on the front fitted with Devil's horns and a tail! It can be bought from Amazon see https://www.amazon.co.uk/d/Books/Prevent-Cure-Diabetes-Delicious-Diets-Dangerous-Drugs/1781610770/ref=sr_1_fkmr2_1?s=books&ie=UTF8&qid=1483568270&sr=1-1-fkmr2&keywords=How+to+prevent+and+cure+diabetes+Dr+Myhill
Type 2 diabetes is a growing problem and I didn't want to get it. Also I knew that slim fit people (as I am) still get type 2 diabetes as they get older so thought there might be an explanation for this and I think there is.
Basically as I see it Dr Myhill's message is to stop eating sugar and you will hopefully decrease your risk of type 2 diabetes plus your psoriasis will greatly reduce and virtually disappear too!
My experience of creams and treatments
1. Eumovate useful but I try not to use it much.
2. Dermalex from Boots for Psoriasis is good but expensive but the scalp one is by far the best for me and I notice that this product often sells out. As well as using it on my scalp after shampooing (while the scalp is still wet) I use it on my forehead, eyelids and neck at night with good results. Hardly use any now though as I don't need it.
3. T Gel mild (without heavy tar) shampoo is helpful.
4. Best help of all is giving up sugar.
I eat meat, fish and diary - not everyone can eat diary but I seem fine with cheese anyway. I also eat more nuts, butter, whole grains, dark chocolate, lots of vegetables and fruits especially berries. I have got to like dark chocolate at 90% but not everyone can enjoy this. Try 70% and work down in the sense of increasing the percentage - I now eat 90%. I eat the chocolate with a banana (probably ill-advised but I have to eat bananas!) and also desiccated coconut that helps make the chocolate more palatable. Delicious.
I've always felt better on whiskey, (Irish hence the spelling - so much smoother than Scotch - try Old Bushmills, the ordinary not more expensive kind). Stop drinking wine. Wine never suited me and now I know why. Most spirits do not contain sugar. Wine can contain a lot of sugar. Start reading every label on everything.
I feel giving up sugar has got to the root of the problem whereas the creams were just dealing with the symptoms. I haven't really changed my diet in a huge way - just cut out sugar, wine, fruit juice (but not whole fruit) and jam and I've tried to reduce carbs a bit. I always liked whole grain bread and brown rice. Brown pasta is OK but not as nice as brown rice. The problem with brown rice is that it takes at least 30 minutes to cook. Solution - cook loads, cool quickly and freeze in small bags. Reheat in microwave.
I feel incredibly much better, healthier and my brain is working better. So what's not to like about the sugar free way? Who wants sugar if it brings you out in itchy scabs? Sugar gives you some energy but you often get a reaction after the body has mopped it up with insulin that leaves you feeling tired, plus you get no nutrients from sugar other than calories.
I tried telling my specialist but a look came over his face that said 'mad lady alert' so I stopped. If I could quote others, that might change mightn't it? Pharmacists however are very interested - well the two I've spoken to so far were and took down the details of Dr Myhill’s book.
I would love to hear about anyone's experience and if going sugar free helps or not.
It does take a few months to work through however although I felt an improvement almost immediately but told myself it was probably just the placebo effect. I have now done a full year and jsut don't have psoriasis anymore thank goodness.
I am just thrilled to have found something natural, health giving and easy that works! I am keeping an open mind but I do hope my experience helps others! Do please let me know. Maybe if this helps people they would be willing to let me or someone like Dr Myhill have their names so that we could persuade a university to undertake some recognised research that could really save a lot of people as well as NHS funding?
Psoriasis is supposed to be caused by stress and I have a thought about that. We were having a house built plus I was going through a very difficult time re the charity I run. I therefore tended to have quite a bit of toast and jam and I think that is what did it. So stress and psoriasis could well go together but not quite in the way the medics think!
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Posted Fri 20 Oct 2017 0.29am by Cecilia mcclay
Posted Fri 20 Oct 2017 7.38pm by Chan2010
Posted Sat 21 Oct 2017 4.13am by Gautamse
Posted Sat 21 Oct 2017 4.43am by Deeker57
Posted Sat 21 Oct 2017 8.54am by idy
Posted Sat 21 Oct 2017 6.09pm by sugarfree
Posted Sun 22 Oct 2017 2.36pm by idy
Posted Tue 24 Oct 2017 9.36am by vijaykum
Posted Mon 26 Mar 2018 5.51am by Ronnyhawks
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Posted Mon 26 Mar 2018 6.09pm by Sarah
Posted Wed 4 Apr 2018 9.38pm by kpasspar
Posted Thu 5 Apr 2018 11.35am by Joan
Posted Sat 7 Apr 2018 1.16am by Sueh72
Hello! I was diagnosed today with ppp.
Posted Sun 22 Apr 2018 2.50pm by Sharon
Posted Mon 23 Apr 2018 4.34pm by OhNo_NotAgain?
Posted Tue 24 Apr 2018 8.35am by shy_girl1988
Posted Tue 24 Apr 2018 10.46am by OhNo_NotAgain?
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Posted Tue 21 Aug 2018 8.02am by KatieBusniewski
Posted Thu 6 Sep 2018 7.51pm by Saara1979
Posted Thu 6 Sep 2018 9.11pm by Deeker57 (edited Fri 7 Sep 2018 4.01am by Deeker57)
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Posted Fri 7 Sep 2018 11.34am by warren1
widespread psoriasis for 30years
Posted Fri 7 Sep 2018 3.51pm by JaiGD
Posted Fri 14 Sep 2018 7.57am by demonicale
Posted Sat 15 Sep 2018 2.56pm by Mcgovern
Posted Sat 15 Sep 2018 9.21pm by Debz
Posted Mon 17 Sep 2018 6.43pm by Tinyterry
Posted Wed 19 Sep 2018 2.26pm by Claireg36
Posted Wed 19 Sep 2018 4.47pm by Debz