Covered from head to toe please help!

Posted Mon 13 Feb 2017 10.55pm by Mrsbluesky

Hello, new to the site!

I have had psoriasis since I was 3. It was continuous throughout childhood but stopped after a particularly nasty flare up when I started using sunbeds. I suppose it kind of went 'in to remission' as no sign of it for six years. I had a stressful year followed by tonsillitis and I am covered again. It's been since around mid December and I just can't cope. It's covering my whole face, back, arms, chest, hands, with guttate all over my legs.

I've tried,

Epsom salts and olive oil baths

Eumovate for face(GP prescribed)

Another cream I can't remember name of for body prescribed

Cetraben

Sunbeds

Working out!

Cutting out junk

Removing hormonal contraception

Stopping fluoxitine

Allergy tablets

Peppermint tea instead of coffee/tea

Bought a uvb lamp but I'm so badly covered it takes forever to use, hence trying sunbeds again yet this time I think k it's made it worse. .

I have a swollen glands behind my left ear, is it possible i still have infection ??

I just don't know what to do, please help, i won't get to see a dermatologist until 10th march and I'm struggling with this all over again, I was finally happy with my appearance.

Posted Wed 15 Feb 2017 6.37pm by Nicola

I've suffered from this for 38 years and had most of it with flare ups .(hospitalised a couple of times and used cyclosporin ) just had 3 years clear and it's flared up and like you struggling for an appointment as now have a major flare up. My consultant recommended aveena in the past and it does help as a stop gap measure

Posted Thu 16 Feb 2017 8.23pm by Mrsbluesky

Thank you for replying Nicola!

How long do your flare ups typically last?

I will look into aveena, thanks!

Posted Thu 16 Feb 2017 8.48pm by Nicola

It varies no rules to it sometimes years sometimes weeks . Aveena a non prescription cream . Avaliable everywhere and seems to ease and help . Over the years done tar , salysilic , dovenex, dithraynol, cyclosporin, methotrexate, etc this does help ... not cure . My consultant swears by it

Posted Thu 16 Feb 2017 8.50pm by Nicola

Also be careful with sunbeds and guttate. Every consultant I have had has said steer clear x

Posted Thu 16 Feb 2017 9.17pm by Mrsbluesky

Thank you I think I will steer clear from now on. this time it made it cover my whole face and didn't clear anything. Admittedly only done a few sessions over three weeks but definitely made it worse.

I'm 26, I don't know how to cope with this. I struggled with it all through school for it to disappear. And now it's resurface with a vengeance. Does nothing for my self esteem.

1 Posted Thu 16 Feb 2017 9.19pm by Mrsbluesky

I have never seen a dermatologist for it as previously waiting lists were ridiculous. This will be my first proper appointment, I'm so hoping they can give me something to clear it

Posted Thu 16 Feb 2017 9.36pm by Nicola

Well good luck with dermatologist . Having a good dermatologist is worth its weight in gold . Psoriasis is different with each and everyone of us . I could write a book lol . Infections with mine have a big role in flare ups . There is often no quick fix sadly . But I know sun beds with guttate and a flare up are a no no .I hired one and ended up in hospital for 6 weeks ... but the treatment in the dome at hospital was great .

Posted Thu 16 Feb 2017 10.18pm by joyce

I suffee from psoriasis i bought a cream in America gold bond psoriasis relief cream it works for redness after the patches are under control keeps skin clear i ordered it from usa now it seems to be restricted why cant this be purchased in England im just trying to get it on ebay

Posted Fri 17 Feb 2017 2.18pm by Jo Jo

Dear All,

New to the site and I just wanted to share my experience. My first flare up was around 6 years ago, just after I got engaged. I must admit I was scared because I didn't know what was happening to me. Very quickly I was covered from head to toe in spots, I never knew I had psoriasis. The doctors themselves weren't even sure, which really didn't help. Then I was diagnosed with guttate psoriasis. This led to being hospitalised for a week, where the nurses would cover me in steroid cream and moisturiser and then covered me in like a thermal suite. Following being in hospital, I then had the light treatment which took my psoriasis away, eventually.

6 Years have passed and then two days before christmas 2016, I started with another flare up which I was told was from another sore throat. There may have been a few stresses at the time in my life and within that 6 years I have had two beautiful children. The flare up this time round has caused me a little bit more discomfort as I have tried to manage it at home, I have been given some tar lotion and moisturiser which only now (9 weeks) have started showing a difference. None of the creams I have prescribed though have completely taken the itch off. Quite often I have my moment where I just cry and prayer (not like me) and just wish the rash would go quicker than it does. It does make you want to cover up and does make you feel unattractive. My husband and family have been a great support, I think that is one of the most important things you need, the support that you will get through it. I have again been referred for light treatment but not sure how long this will take. I am now starting to see a slight improvement, I just want my life back and for this never to be as severe again. I have also started to take some Vitamin D3 tablets which again I am hoping will help boost my immune system.

Posted Fri 17 Feb 2017 9.51pm by Mrsbluesky

Thank you for sharing Jo Jo. I'm curious, how bad was it to be hospitalised? Same with Nicola? What happened, or did you go to a and e?

I mean I'm covered all over feel ill. When I apply creams so I just apply moisturiser, at what point does it require hospital?

Posted Fri 17 Feb 2017 10.18pm by Nicola

Things have changed so much over the years . It was roughly 2/3 complete coverage was a hospital stay (and that's literally 2/3 full coverage ) now a lot of exclusive dermatology units with dermatology nurses have shut and a lot of dermatologist 's have a couple of beds on a medical unit ... as an ex nurse and a chronic psoriasis sufferer this doesn't work . Unless very very serious . My admissions were not a and e but emergency via consultant. Each time in hospital 6 weeks at a time time did not cure it or even get rid of it ..... just for a short time made it more manageable .

Keeping moisturised is important . Guttate is tricky as smaller patches initially until join together so some prescribed creams harder to apply .

So many factors have an impact on psoriasis in my experiences infection , hormonal but after 38 years with it and only in total probably 4 years clear I will completely say it's immune related and stress is not the cause alone .

It's miserable , a major impact on your life eg what you wear , what you do etc etc BUT we hide it because of other people's reactions ... shame on them . We still have relationships , get jobs etc so there a lot of decent people in the world . The biggest obstacle and what angers me is people saying it's a nervous illness lol . No its not it's genetic !!!!

1 Posted Mon 20 Feb 2017 2.04pm by RedHead

Hi everyone, like many of you I've been looking for a good dermatologist, with no success, I've heard I should strart psychotherapy as well. When nothing the doctors suggest helps you start seeking remedies on your own, observe your body, You feel like trying anything to ease the suffering. Lately I've been using some hemp cosmetics http://hemplinecosmetics.com/Body-balm-with-hemp-oil-400ml, and I've seen an improvement, and feel more hopeful.

Posted Thu 23 Feb 2017 1.20pm by Johnbeach47

Hi

Been reading about the misery that you are suffering , I only have a small patch on back of my head, been suffering for about 3 years with it, been trying loads of medicated shampoos and they only work for a short time.

two weeks ago I was clearing out a cupboard and came across a bottle of Penang Nutmeg Oil that I bought on holiday 20 years ago, and on the back it says it can be used for itchyness, arthritis,lumbago. So I tried it and it has stopped the itch and has almost stopped my skin flaking off so I am going to keep using it and hope it works long term.

Hope this might help you.

Regards

John

Posted Thu 23 Feb 2017 10.55pm by andrea
have had p for too many years

I have been on 17.5mg methotrexate for 1 year. It has really helped, but patches are starting to appear on my back again so i thought i would also try a high alkaline diet also. I have recently read a story about Hanna Sillitoe who has had remarkable success following this diet for her psoriasis and has now written a best selling recipie book for an alkaline diet. I am inspired by her success so thought i would give it a go.

Posted Fri 24 Feb 2017 10.53am by Mrsbluesky

Thank you all for your replies. On the 10th I do plan on pleading for methotrexate, as I just can't deal with it, and really do not want to be out on another waiting list for light treatment. Will update with what the dermatologist suggests.

In regards to the career bit and sports can completely relate. I considered joining a gym last night then had to remember I'm covered. It's put me off applying for jobs. If I Didn't have to take my two to school/nursery im not sure I'd venture out much!

Posted Fri 24 Feb 2017 11.01am by Mrsbluesky

By 'covered' I mean;

Thick big Guttate drops all over legs, bottom, feet hands, trunk and so much it's all joined and completely covers genital area, top arms, back, chest, neck, ears, and across face with thin slithers of skin not affected on face. My forearms are between what's on my legs and top arms and is starting to all join together. I don't particularly want to put a picture up as I don't want to it to end up on Google pictures when people search what it looks like

Oh. And my scalp.

Posted Fri 24 Feb 2017 8.43pm by Nicola

I'm going to the gym and im badly covered ... its very hard but I've suffered almost 4 decades and suffered every slur I can . Jobs are a problem I am changing jobs and want to go back to nursing which I can't due to psoriasis as an infection risk . The trick I've learnt is by devious means keep face and hands clear and things are easier . When it covers your whole body and guttate joins together it's horrendous (I'm almost there yet again) all I can say is keep moisturising and I've mentioned before aveeno really helped me . I've used and taken most drugs for psoriasis and this does soothe but doesn't cure . I've never used methotrexate always refused it especially when I was of child bearing age . I took cyclosporin. ... that's another story

Posted Sat 25 Feb 2017 0.31am by cazza

Mrsbluesky

Please don't despair! Your guttate psoriasis can be treated and will, quite possibly, clear up completely. From my recent experience - 2 flare ups since 2012/3 - I have achieved full clearance twice. I am currently 5 months clear of every single spot, fully aware it will probably come back again but comforted by the fact that I've been able to get rid of it twice. I think the most important thing is getting yourself seen by a Dermatologist and then making sure you don't get discharged. (I made the mistake of cancelling a check up appointment because I was clear only to have to go through the whole GP, referral, "your appointment is in six months" rigmarole when the next flare up occurred...) So, what works for me is PUVA treatment. I wont go into details as I'm sure you've read up about it, yes there are dangers but honestly, IT WORKS. I don't think I had it as badly as you but I had guttate spots all over my arms, legs, bum and back and after 15 sessions they were all gone. Regular sunbeds and sunshine do not necessarily help, as people have pointed out they can make it worse, but controlled dosage of UVA with psolaren tablets works. Its not convenient fitting in 2 sessions a week but I know when things are as bad as things are for you at the moment you'll do almost anything. I'm in London so getting to my local hospital twice a week isn't too much of a mission - I realise if you live more rurally this might not be possible. Anyway, I just wanted to offer you some hope as I know how crippling it can be.

Posted Sun 26 Feb 2017 8.05pm by Mrsbluesky

Thank you cazza that's good advice re. The dermatologist. Thank you for sharing what's worked for you

Nicola what happened when you took cyclosporine?

Posted Tue 28 Feb 2017 6.55am by Julie

Hi, I have had psoriasis for about 25 years, it started when I was pregnant. My psoriasis varies from a few scales on my knees and elbows but currently it is the worst it has ever been with scales all over my body. I have probably tried every cream there is from the doctor, I have had light treatment in the past but really struggling at the moment. Following a referral from my doctor, I saw a dermatologist just over one week ago. He prescribed Enstilar foam and I have been using it for one week. I can't believe the difference it has already made. My skin feels so much smoother, it is still red but it has made a huge difference. I know it is early days and I worry about it coming back when I stop using it but for now I am starting to feel confident again . Ask your doctor for a referral to a dermatologist, I believe the specialist will help more than your GP . Hope this helps and good luck

Posted Tue 28 Feb 2017 10.13pm by ruhi94544

Hi, I know you've tried out Epsom salts, but have you tried Minera Dead Sea Salt? Its really rich in mineral content and has properties that can disinfect, moisturize, and re balance your skin. A lot of people actually visit the Dead Sea for relief but you can take in the benefits through a bath!

Posted Tue 28 Feb 2017 11.33pm by Lougilbert

Hi I've had it for 6 years now and it hasn't once gone away yet but I have been using dream cream from lush and it does seem to be improving. Its not itchy anymore which is a huge improvement

Posted Sun 5 Mar 2017 4.48pm by Nelly

Hello everyone,

Psoriasis became part of me almost 34 years ago; it started on my knees and elbows, today it covers the majority of my body. I have had various treatments - UVA, coal tar preparations and moisturisers, sun beds and emollients, holidays in the sun. Over the years I have accepted that the condition I have is dependent upon my attitude towards it, for 10 of these years I just lived with this condition, then I had a change of thinking and I gained the opportunity to take methotrexate, this had limited impact and now I am about to commence with Stelara. Yes this condition has made me feel restricted regarding participating in swimming and wearing shorts and summer tops, but I am me and it is the attitudes of others that I can allow to make me feel 'not me'. so to everyone who is sitting scratching, itching, and feeling miserable - you have a life, live it and stand up for yourself to gain some treatment to help you live your life, we have a long term condition that we can gain some respite from - I am now going to have some respite by taking Stelara, I will keep in touch with the forum as to my progress with this treatment.

Posted Fri 10 Mar 2017 5.37pm by lisascot

Hi Mrsbluesky

Nothing you have listed is to actually treat the psoriasis. Steroids don't treat it they just treat the symptoms. You need to get a tar cream. Put the steroid on in the morning and put the tar cream on at 6pm then sleep in old pajamas. Just put it all over. "Psoriderm" is a good one.. it stinks but you will notice a difference doing this in 6 weeks. The Psoriasis should become paler and flatter. The tar takes the scale off and encourages normal cell development. Then once it's all much flatter and paler a few uv sessions or getting some sun will help. If you can't do this then take a vitamin d3 higher dose along with vitamin k2 and magnesium aswell. This will make a difference if used along with the tar regime. I have had guttate 5 times after a throat infection and it's always cleared up. I have it just now and when I say covered that means not much normal skin left to see. It's starting to get better after 5 weeks doing this and the patches are getting paler. Good luck

Posted Fri 10 Mar 2017 5.41pm by lisascot

And also get checked by your doctor to make sure your throat infection is still not active. Ask for a throats culture to be taken and you will get the results back in 2 days. Then if you do get some antibiotics.

Posted Fri 10 Mar 2017 8.08pm by Mrsbluesky

Thanks Lisa, i am covered head to toe too but as the dermatologist i saw today said she understands the sheer volume is too much for creams and it's very 'aggressive'.

(Side note she nearly didn't see me due to nurses cock up but i ran over nearly in tears saying 'look at me i need this appointment' and was seen..)

I was prescribed cyclosporine. Said it would start clearing in two weeks. She did originally suggest putting an urgent referral in for phototherapy but would be difficult to manage with two kids and three school runs a day.

Posted Fri 10 Mar 2017 8.24pm by lisascot

Well I hope the cyclosporine works for you. I have never had this before. Tar & Phototherapy has always worked for me. I have had 3 lots of tonsillitis in 6 weeks.. I have just had a tonsillectomy because of this as I have so far had two flares and awaiting a 3rd flare and I am going to be gutted as it's just starting to clear and I'll have to start all over. My skin was bad already and then the 2nd flare has covered every single part of me too so I can't imagine how it could get any worse with a 3rd flare. . I always get it really extensive when I do.. it's shocking to look at, all joined together and covering everywhere apart from face and hands thankfully. Phototherapy can clear it up quite quickly so if you don't have luck with the drugs then see if you can manage to fit it in. Try not to panic, it looks awful but it will go away if it was triggered by an infection.... until you get that infection again.

Posted Fri 10 Mar 2017 8.44pm by Nicola

Tar I've had a few times but there has been times when I haven't been able to use it and in fact once made things a lot worse . Each flare up is individual .

I have had many decades thinking about this and my personal thoughts are psoriasis is a symptom not the problem and it all hinges on immunity issues . No matter how often skin treated the underlying cause still lurks . A "cure" can only be found if more research put into it and there is sadly very little is done . The skin is our biggest organ which is a fact many forget .

I have taken cyclosporin for about 6 months in the past and yes it works ............

Posted Sat 11 Mar 2017 9.47am by lisascot

Can someone tell me... when you take cyclosporine or methotrexate.. if it clears your skin do you have to continue to take it to remain clear, when you stop taking it does it flare back up again? Does anyone know if in the case of guttate that was brought on ny strep whether it will flare once cleared with one of these drugs when the drug is stopped?

Many thanks

Posted Sat 11 Mar 2017 10am by Nicola

I took cyclosporin for about 6 months and stayed clear for about a month if I remember rightly . I decided for a variety of reasons to never use oral treatments again . There is truly permenant cure unless you take something . I m not sure you can stay on cyclosporin permanently but it was a long time ago and things change

Posted Fri 17 Mar 2017 8.17pm by clarky1252

Try Clearfree. An earlier post I sent explains my success with this herbal capsule treatment. I have had psoriasis for 50 years. Tried everything from Coal tar, to dead sea salt, UV treatment in hospital twice etc etc. I have use Dovobet for the last 10 years with not much success. Clearfree works for me so far. Not cheap. 6 month supply and spray clear ointment about £150. Shipped from USA. Takes about 10 days to deliver.

I am told psoriasis is a fault in your genes. So until medicine can change that faulty gene then a permanent cure is a long way off. Clearfree claim to clear psoriasis and exzema with this treatment. So far I am optimistic.

Posted Fri 17 Mar 2017 9.07pm by Nicola

Exactly.genetic

Posted Wed 22 Mar 2017 2.08pm by Jo Jo

Hi All,

My psoriasis flared up two days before Christmas. I would like reassurance that it is improving. It is still over my legs and still itchy but now flatter and smoother. It is on my back and trunk but my chest and arms are clearing. We are near to end of march and it is really getting to me now. I am currently using a steroid cream in morning, I also have exorex which is a tar liquid I put on and doublebase get to moisturise with. I am taking d3 also to boost my system. I am also waiting to have light treatment but it isn't till May, which if I am honest I am angry about. How bad do u need it to be to get an emergency appt. I also found a company in asbourne hire out psoriasis purpose beds, that you can hire and use over your own bed. You need doc approval, I have enquired as well as trying to push my hospital appt. It has nearly been two weeks since then?! Starting to get down about it now and I have two kids which means mum hasn't took them swimming for a while! If anyone can give advice, I would appreciate it. Just want it to go now!!

Posted Wed 22 Mar 2017 8.02pm by Cazcant

Hey I'm Carrie and have lived with psoriasis since I was 3 it cleared once which was really nice because I was normal for a bit. Its really hard being a teenager with psoriasis. I obviously don't show my skin because of what people might say or think I just want to be normal and have clear skin. My boyfriend says he don't care about it but I know he does and I'm scared its going to affect our relationship does anyone know how to get rid of it please!?

Posted Thu 23 Mar 2017 11.06am by clarky1252

CLEAR FREE herbal worked for me after 50 years of suffering. I take 2 capsules per day and within weeks it was almost gone. No itching, no flaking and the patches are very pail and shrinking. They claim a 98% success rate. It is working for me and I feel great.

https://www.clearfree.net

I was so excited about this herbal treatment, I wanted to tell everyone.

Back in 1983 I went to Romania on holiday. A skin specialist prescribed a drug and some cream. All paid for with Marlborough cigarettes. Communist country at the time and the currency was worthless. The doctor told me I would have young skin for a long time because I suffered from psoriasis. I tried in my younger days to holiday in sunny climates and swim in salty water. This always worked until winter came again. I am now 64 and still no wrinkles. So, some good points.

This disease put me off swimming which I enjoyed. Now I am looking good.

I have said in earlier correspondences that I could write a book about my experiences over the 50 years. Some funny others sad.

Posted Wed 29 Mar 2017 1.54pm by Slipit1

I came on this forum to seek some feedback to my newly diagnosed P (at 54) and my jaw has been in my lap readying all of your history w/this horrible skin issue. I should be thankful I have it as lightly as I do compared to all of you. God bless, I cannot imagine the pain, itch and self conscientiousness you all feel especially teenagers with it!

Mine started like most when our immune system was working overtime from being sick and a steroid did the damage and started the flare.

I am curious, I have read a lot about this SORION Cream working wonders. Have any of you tried this? Check out this link I picked up from someone on this site in another forum string.

https://www.ruehe-healthcare.com/Test-Psoriasis-Network

I look forward to offering any suggestions that work for me.

Posted Fri 21 Apr 2017 10.39pm by Kirsty

Hi Mrsbluesky,

This is the first time I am posting on here, but your story was very similar to mine. I have suffered from plaque psoriasis since I was 8. I have gone through all the creams, steroid base and moisturisers, none seemed to work, so I accepted there was not much I could do, then last year my psoriasis to a nasty turn after I got tonsillitis, I then found myself with plaque and guttate psoriasis. In a space of 3 weeks I went from being 35% covered (my average over a year) to being 80% covered. This resulted in my body unable to control the body temperature which then led to chest infections. So not only did my health deteriorate rapidly I became mental and emotional broken. This was not helped by the fact my local GP, despite seeing them weekly over a month did not stop the patronising comment such as 'you need to moistures and keep hydrate' only then did they refer me to a specialist.

This was the best thing that happen to me, within one appointment it was suggested to go on cyclosporine. Despite my reservation like so many other after reading the side effects, I was willing to take this regardless of the side effects as anything was better than how I was then. After 2 weeks on cyclosporine my psoriasis was near clear, all I had was red patches from where they were. 6 months in completely cleared and remained so from a year.

For me this was the first time I had been cleared of my psoriasis since the age of 8. The only side effect I had was cold burning sensations with fingers and toes when there is a change of temperature, so I was lucky it worked for me.

Now I have to change as cannot be on longer than a year so have now started methotrexate. Results are slow, and not as confident it will clear like the cyclosporine. But I will be hoping.

One moisturiser I will say has been the most effective for me during and post serve flare up is Aveena.

They do bath oil as well as regulat cream which helps moistures the whole body.

I hope you are having some luck with your dermatologist Mrsbluesky as I understand how debilitating it can be.

Posted Sat 22 Apr 2017 11.25pm by deb28

i have it really bad or should i say had!! it effected me in my job and confidence then a friend let me try her enstilar foam i have never looked back! the nurse give me it at my gp surgery as she rang derma to sort out prescription im assuming. the dryness just peeled within 3days my back was covered as was my face my confidence is back and i would highly reccomend you try i have been trying different creams for 14year hope you get sorted x

Posted Mon 1 May 2017 8.32am by Mrsbluesky

Hi just wanted to update, I've been on 75mg cyclosporin since 10/03/17. While my psoriasis has not disappeared, it has greatly reduced in the worst areas. My face back and arms it is still there but barely visible compared to how red thick and angry it was previously. Turns out it was erythmodermic. On my legs the Guttate is still visible but again greatly reduced. Will have another derm app in June where she will likely up the dosage.. she did say I was on the lowest dose and room for it to double. Feeling much better in myself now. Thank you all for your wonderful advice x

Posted Wed 3 May 2017 10.01am by orangepeel

Mrsbluesky Hi Like many others here I have suffered for decades however just last week I heard about Enstilar foam and one week today of using it and all the plaques have disappeared within 3 days and only left with light redness which is continuing to recede. Also one week of using Aveeno moisturiser and body wash for my scalp with great success. My skin is so smooth and feels soft to the touch. Feeling much happier 80% reduced itching and pain.. Can't recommend you to try this enough. Check out the Enstilar foam forum. Good luck x

Posted Wed 3 May 2017 3.06pm by sue

Hello.

Posted Thu 4 May 2017 7.34am by jane287

Hi

I've had psoriasis since I was young, on and off. As I've got older it seems to be worse, Ive used the Enstilar foam but that didn't work for me, changed diet everything.

My husband bought natura-derm, pots are small but it works, and it works well. I'm not sure where he got it from and he's not here now to ask, but just had a google and they have a website, natura-derm.com

Posted Thu 4 May 2017 8.55pm by Sam-stuart

Hi All,

I have just registered today. I have suffered from guttate psorarsis since I have been 5 and I'm now 30years old. I got treatment at the hospital when I was teenager. Over the years, I have had 3-4 courses of light treatment, it worked wonders. However, within a couple of months it all comes back. I get it on my scalp very bad and can take 1-2 hours to put it on and cover every bit. I went back to the dermatologist and prescribed methotrexate. It has cleared my skin well, but I have suffered severely from the side effects and have had to come off them. Extreme nausea, dizziness, blurred vision. I was told that it effects very few people, so hopefully it doesn't effect anyone you would like to try it. It is making me feel very low and people can't really understand who don't suffer themselves and thought it would be a good idea to sign up on this and we can relate to one another and help each other. I have been informed that infra-red saunas are meant to be really good. I'm going to I start some sessions and will report back to see if it works!

Posted Mon 18 Sep 2017 3.18pm by marianbessie

Good afternoon,I thought I would share my son's experience with you and some advice...His diagnosis led him to the usual medications and chemo after all his nails and hair fell out.his weight due to mainly and sedentary existance went from approx 11 st to 20 st. He made a decision to throw out all and I mean all of his meds because, the after effects were so bad. His wife(they live in Singapore) and he decided diet had to be the only path left.So out went wheat sugar dairy...2 years later he is now 12 st mainly painfree running marathons(last one was this weekend) he flew to Sydney to run over the bridge. whilst it would be irresponsible to recommend throwing out doctor advice..i must say as his Mum he is Now"living" not existing

Posted Tue 19 Sep 2017 11.10pm by Sargod

Hi Slipit1

I also have just developed Psoriasis at the age of 49! I blame the Menopause.

I have severe Plaque psoriasis all over but my scalp is horrendous. But my Dermatologist prescribed Enstilar foam and it is doing a great job.

It is a weird foam as it is really greasy so not very pleasant and you have to leave it on overnight, but it is worth it.

My scalp is horrendous, so flaky and scaly, so hard to go out and be comfortable because always thinking about lumps of skin breaking off!!

Posted Thu 21 Sep 2017 12.09pm by Slipit1

Hi Sargod,

I have finally come to grips with the fact that I will have this and can manage it going forward I guess it's scary in the beginning when you're not sure what it is and then you think you'll never be able to get it under control I found that coconut oil warm it up in the microwave 3 nights a week with a 1% steroid lotions has kept it manageable for me on my scalp I have been using a 5% steroid ointment on my arms the only issue that I have is the areas where the patches get smaller and then become a small bump from my immune system working overtime in that area.

This summer proved to me that son definitely helps keep the patches smaller or helps hide them I went to Tufts Medical Center in Boston where they have a hole psoriasis and skin disorder treatment center and didn't get any better results that my local dermatologist in fact I was prescribed light treatments and or a medication internally that suppresses the immune system which I opted not to go that route I tried the light treatment once for 15 seconds and paid ridiculous money and found no better results. What are you doing for the rest of your body?

Posted Sun 24 Sep 2017 9.33pm by Col182

Hello :) I'm totally new to this site,

I'm lucky to say I don't suffer with psoriasis on my knees,elbows , hands or feet but my whole torso, ears, face and scalp is terrible and particularly bad at the moment and don't even know where to start with treatments.

I've suffered with this since I was 8 now 26 and just triggered one day. I've tried everything I can think of with diet/ creams etc. I don't feel supported by the hospital as I went for the injection (unsure what it's called) as I suffer with arthritis and over active joints. My gp was all for it but due to me not currently having inflamed joints the idea was scrapped. Is there anything out there for me? I don't know anyone with psoriasis and only know what I'm told by my doctor really.. I've tried changing my diet, t total and creams/treatments yet nothing works longer than a week. It just comes back with a vengeance.. my eyes are even being effected as I'm using steroids on my face as I can't bare the pain on my eyes and face it even looking at the state of it if I don't use it but I'm not being offered anything else that I can use on my face.. I use the sunbeds but even that has got to a point where it's becoming stubborn.

I'm just so sick of it, I've accepted I've got it. But just so tired of fighting a losing battle and all I want todo is just to wear something nice where it's not there winking at me all the time.. or flakes all over my car seat.. or compulsively picking and pulling my hair out!

I've just had it and just don't feel there is a lot of options :(

Thank you for reading

Posted Tue 26 Sep 2017 9.58am by jamuk

Important! please read the whole post.

Hello, I have had a nagging itchy ear problem for about 6 /7 years.I think I picked it up swimming in the sea local, unfortunately in the British isles the water authorities have been very slow to stop sewage discharge into the sea. it's still used as storm overflow.

Anyway my point, I have been to the doctors 4 or 5 occasions and nothing he gave me seemed to work permanently. I would use germolene on a cotton bud when it got to bad and that would relieve it for a while. For the last 3/4 years this itching has been moving down my face, it feels like a creeping itch? it doesn't present itself and you wouldnt notice anything except maybe up really close

THE NUB

I am of an age where my hair is thinning and going grey, I am too young for this to happen to me, so i have been looking for something to combat the problem. I researched the ingredients of many of the shelf products! I also checked out natural remedies including youtube and came accross the following.

Butterfly Pea

Butterfly Pea benefits hair growth by providing nutrients that induce not only hair growth, but also hair colour, especially effective with black hair.

Soapberry

Soapberry is ancient healing remedies for eczema, psoriasis and itchy skin, Prevent dandruff, induce hair and scalp healthy, promote hair growth.

Well I sent off for the RAW basic herb and nut, I blitzed both herbs in a coffee bean grinder and added them to boiled water, put them in a plastic bottle next to the sink and use the mixture on my face, ear and hair. The itchy face and ear that plagued me for years has gone it's only been a month but what a clear itch free month. DYOR give it a try it's natural chemical free cheap and it works! I hope it works for every one.

Posted Tue 26 Sep 2017 12.20pm by Slipit1

Hey Jamuk,

I appreceiate you sharing but what brought you hear with those symptoms? We're you diagnosed with P or E?

Posted Tue 26 Sep 2017 6.39pm by Deeker57

I suffered on every part of my body...some areas worse than others. Exorex lotion was and still is my miracle cure...it's available on prescription. Rub in 2 or 3 times daily, it'll take approximately 4 weeks then you should see the inflammation and the size of the plaques reduce, another 4 weeks or so to clear up. As my plaques cleared up on my arms..legs etc...so did the areas on my back...which I couldn't get to to treat them. The lotion soaks in within a couple of mins....then you can apply moisturiser as the lotion ain't the sweetest smell!

Posted Sun 1 Oct 2017 0.27am by Middy1 (edited Sun 1 Oct 2017 0.31am by Middy1)

Hi I have had the condition since I was 17 yrs old. I always seem to break out when I am worried about things. I would only get it on my knees and elbows then when I was 19 I started planning my wedding and as the date approached I was literally covered head to toe. Nothing helped and I had to get married feeling very sad about the way I looked. I then went away on honey moon and accepted that I couldn't do anything about it, reluctantly I exposed my skin to the world and within three days of relaxing and sunbathing it had almost disappeared. by the time the honeymoon was over I was totally clear and that's the way it stayed. 12years later I was going through a divorce, I suddenly noticed the scales and red patches on my knees and elbows which got really bad over such a short period. with my emotions at the lowest I have ever felt my parents booked a holiday for me. They had not even considered the skin condition they were aware of the stress and wanted me to relax. Exactly the same thing happened I was all clear within 5 days. I decided that there was no point getting stressed about life, I came home relaxed and 5yrs on I am still clear on my body. Although I do have problems with patches on my scalp, I have found that it flares up when I use certain products( I have a list that goes on forever of products that make It worse. I stay well clear of them). I hope this helps a little and I am a believer that psoriasis is triggered through stressful circumstances. I have friends who think the same. One friend who had her own business for 27 years thought her business wasn't stressful, she was always positive about her business. The psoriasis covered her hands she spent thousands over the years, she then sold her business and lives the same life apart from working.. 6 weeks after selling. she phoned me at 7am overjoyed it had totally disappeare,d she is 43yrs old and for the first time she is going to get her nails done. she was to embarrassed before

My dad has it and mum has recently bought him propolis cream from the forever living range it has reduced the redness and it looks as if it's disappearing my dad has always been a mans man but he swears by this cream xx

Posted Thu 5 Oct 2017 10.26am by Tralalal02

My psoriasis was pretty chronic from the age of 3 to early thirties I was seen by Prof Greaves (retired )at the St Johns Institute of Dermatology as an inpatient. when I was 19. Wonderful I learned that for me NATURAL sunlight worked and so instead of holidaying in the sun during the summer like most people I went to the Canary Island s in the winter for 2 weeks as it is still sunny but not too hot. It was great as it meant I could face the spring/summer with some relief. I still took the sun in the summer but in moderation with great care. One more thing I learned was to keep away from sunbeds unless they are special ones in dermatology units as they can really damage your health.

There are very few inpatient facilities for skin now on the NHS anyway not sure about private

Posted Tue 10 Oct 2017 9.44am by mappaman

My plaque psoriasis is so severe it is everywhere and rules my life. What complicates things is I had a brain tumour ten years ago so I am on tablets for life. Lucky to be alive but it is painful. I have tried most things but a lot I cant take due to my meds! I am retired on ill heath from an excellent job and have no money so I cannot get private help. The NHS are useless and take months to get an appointment. I live on my own and my condition means I don't go out. I am 47. I also have depression. The only thing that keeps me going is my children who I see on some weekends. I am desperate for help but I can't find any, don't know what to do with myself. I NEED HELP But their isn't any. Gary

Posted Tue 10 Oct 2017 1.20pm by jdrussell78

Hi MrsBluesky

I have had psoriasis since 2008. I have had a lot of major flare ups in that time. I suffer from guttae psoriasis too. It is everywhere at the moment, over my arms, legs, really bad on my back and in my scalp. I would say at the moment it is about 80% coverage.

I have been on various treatments in the past, i started with UVB light treatment and had two goes at that at the hospital 6 months apart for 6 months. That did initially seem to work. But then when the winter hit, it came back.

I have used various creams for a long time too, dovobet, dovonex (?) and others. One thing that really helps the scratching, which for me is the worst part, is aloe vera. It can really cool the skin and help to stop the want to scratch all the time.

I have recently been prescribed Enstillar foam, which is great. It really works, but have to get a new bottle of that every 2 weeks as it runs out so quickly. For me, this has been the best topical treatment and it really helped.

I was also on cyclosporin for a long time, I was on it for 3 years and when my new dermatologist found out he took me off that straight away and put me on apremilast.

Cyclosporin did really work, I pretty much went down to about 10% coverage, it was amazing. But had to come off due to possible side affects. I had higher blood pressure, had to take medication to keep that in check and had to go for regular blood tests.

After coming off that I have started on humira injections, yesterday in fact. I hope this will work as nothing else apart from the cyclosporin and the enstillar foam had touched the psoriasis before.

Here's hoping that works.

Posted Wed 11 Oct 2017 12.28pm by Gautamse

Hey guys,

I was first diagnosed with psoriasis in November 2011. Since then, I've had multiple treatments but never ever went for allopathic medicine.

Have been following homeopathy right now and much better.

Before the medicine starts it's work, make yourself believe that it'll work.

Be optimistic and try to stay as much confident as you can.

To keep the skin moist, I am using Vaseline body lotion, you may give it a try to.

Get your Vitamin D-3, B-12 checked. Psoriatic patients are often diagnosed with its deficiency. Last year my Vitamin D-3 was 12, which should be between 25-50 if I remember right.

You may also use JRK's 777 oil on the affected areas and take a sunbath of not more than 10 minutes.

Our diet plays a very crucial role to fight with this disease so make sure you do not have anything you are allergic to.

There's a lot of ups and down's I've faced but yes, I know that it's not big enough to defeat my will.

Cheers to everyone fighting with this and lots of love.

All the best with your treatments

Posted Wed 11 Oct 2017 9.46pm by Andy1990

When I get bad P on my legs the main thing is to apply a thick moisturiser daily and exfoliate in the shower. It stops the itching and stops plaques getting caught on clothing. I get a mixture of gutatte and plaque on my legs (especially my thighs!) - I've posted some pics and more tips on my blog: http://ukpsoriasisblog.com/view-all/psoriasis-on-legs/

Posted Wed 11 Oct 2017 10.21pm by Rochelleamy

Hey Guys,

Wondering if you can help me or recommend me anything. I've had P since I was around 2 years old ( I am now 23) I use to have it just on my elbows and ankles and it was really moderate so I wasn't that bothered.

I have recently been under a lot of pressure and the P is now growing up my leg with one of the patches being extremley bad ( it's that bad the flakes are really dark from the blood) im becoming a tad self conscious now...

Would anyone be able to help me? As I have thought about the sunbed.

- also what type of p do I have? I never knew they was categorised ( I haven't really looked into it before just dealt with it)

Rochelle zx

Posted Wed 11 Oct 2017 11.07pm by Psoriasisfree

Hi I’ve had psoriasis since I was 14 after a bout of glandular fever...nothing helped until I tried Juice plus capsules (all 3 types- vegtable blend, berry blend & fruit blend) in 3 weeks my skin was clear!! I don’t sell it or wish to promote juice plus but thought I would share, it is £60 a month but it’s so worth every penny! Xx

Posted Mon 16 Oct 2017 9.01pm by sugarfree

Really sorry to hear these problems Mrs Blue Sky. I sympathise. Please read this if you want a natural solution that worked for me and I'm not selling you anything except perhaps someone else's book and I'm not on commission - sadly because I could do with funding for the charity I run CO-Gas Safety on carbon monoxide poisoning!

I was diagnosed in summer 2015 and the creams helped a bit but I felt there was something wrong with me deep down. I didn't feel right. It had started in my mouth which kind of furred up. My tummy button smelled. I had red patches on my torso and they got bigger. Then all my orifices itched or hurt. I even got Psoriasis in my ears and when wax came out it was full of skin too. My scalp was covered in spots and scabs YUK! My brain wasn't working properly either. Until I wrote this I hadn't admitted how bad it was, even to myself.

Then I came across a book written by Dr Sarah Myhill, a medical doctor but also a believer in alternative medicine and who keeps an open mind. She had, in my opinion, been bullied and persecuted by the medical establishment and I had been to support her at a rally at the BMA. I admit I like people who think for themselves. I know medics can be too 'establishment' - have you read about Barry Marshall who found a cure for ulcers (short course of antibiotics) but the medical establishment had refused to take any notice for years - but they do now.

I therefore bought Dr Myhill’s new book out of curiosity but mainly to support her. It has a pink sugary cupcake on the front fitted with Devil's horns and a tail! It can be bought from Amazon see https://www.amazon.co.uk/d/Books/Prevent-Cure-Diabetes-Delicious-Diets-Dangerous-Drugs/1781610770/ref=sr_1_fkmr2_1?s=books&ie=UTF8&qid=1483568270&sr=1-1-fkmr2&keywords=How+to+prevent+and+cure+diabetes+Dr+Myhill

Type 2 diabetes is a growing problem and I didn't want to get it. Also I knew that slim fit people (as I am) still get type 2 diabetes as they get older so thought there might be an explanation for this and I think there is.

Basically as I see it Dr Myhill's message is to stop eating sugar and you will hopefully decrease your risk of type 2 diabetes plus your psoriasis will greatly reduce and virtually disappear too!

My experience of creams and treatments

1. Eumovate useful but I try not to use it much.

2. Dermalex from Boots for Psoriasis is good but expensive but the scalp one is by far the best for me and I notice that this product often sells out. As well as using it on my scalp after shampooing (while the scalp is still wet) I use it on my forehead, eyelids and neck at night with good results. Hardly use any now though as I don't need it.

3. T Gel mild (without heavy tar) shampoo is helpful.

4. Best help of all is giving up sugar.

I eat meat, fish and diary - not everyone can eat diary but I seem fine with cheese anyway. I also eat more nuts, butter, whole grains, dark chocolate, lots of vegetables and fruits especially berries. I have got to like dark chocolate at 90% but not everyone can enjoy this. Try 70% and work down in the sense of increasing the percentage - I now eat 90%. I eat the chocolate with a banana (probably ill-advised but I have to eat bananas!) and also desiccated coconut that helps make the chocolate more palatable. Delicious.

I've always felt better on whiskey, (Irish hence the spelling - so much smoother than Scotch - try Old Bushmills, the ordinary not more expensive kind). Stop drinking wine. Wine never suited me and now I know why. Most spirits do not contain sugar. Wine can contain a lot of sugar. Start reading every label on everything.

I feel giving up sugar has got to the root of the problem whereas the creams were just dealing with the symptoms. I haven't really changed my diet in a huge way - just cut out sugar, wine, fruit juice (but not whole fruit) and jam and I've tried to reduce carbs a bit. I always liked whole grain bread and brown rice. Brown pasta is OK but not as nice as brown rice. The problem with brown rice is that it takes at least 30 minutes to cook. Solution - cook loads, cool quickly and freeze in small bags. Reheat in microwave.

I feel incredibly much better, healthier and my brain is working better. So what's not to like about the sugar free way? Who wants sugar if it brings you out in itchy scabs? Sugar gives you some energy but you often get a reaction after the body has mopped it up with insulin that leaves you feeling tired, plus you get no nutrients from sugar other than calories.

I tried telling my specialist but a look came over his face that said 'mad lady alert' so I stopped. If I could quote others, that might change mightn't it? Pharmacists however are very interested - well the two I've spoken to so far were and took down the details of Dr Myhill’s book.

I would love to hear about anyone's experience and if going sugar free helps or not.

It does take a few months to work through however although I felt an improvement almost immediately but told myself it was probably just the placebo effect. I have now done a full year and jsut don't have psoriasis anymore thank goodness.

I am just thrilled to have found something natural, health giving and easy that works! I am keeping an open mind but I do hope my experience helps others! Do please let me know. Maybe if this helps people they would be willing to let me or someone like Dr Myhill have their names so that we could persuade a university to undertake some recognised research that could really save a lot of people as well as NHS funding?

Psoriasis is supposed to be caused by stress and I have a thought about that. We were having a house built plus I was going through a very difficult time re the charity I run. I therefore tended to have quite a bit of toast and jam and I think that is what did it. So stress and psoriasis could well go together but not quite in the way the medics think!

Posted Fri 20 Oct 2017 0.29am by Cecilia mcclay

Hello. I'm American and our food here is specially designed to keep us all sick so that the Chemical, Food, Pharmacicutials, and Medical industry can line their greedy pockets. Psoriasis is one symptom of the many autoimmune disorders in the usa. These chemicals are the CAUSE, not a trigger of my psoriasis. . High fructose corn syrup, gluten, and all artificially colored soda, nitrates , GMOs, BVTs, ..I could go on and on .. you're lucky to be in the UK. Our doctors do nothing for us but advise us to take a pill! I have proven to myself these chemicals cause my psoriasis. I went on a complete elimination diet. I was above 50% .covered .mostly on my arms and legs. When it spread to my back and butt, I had enough. I first gave up High Frotruse corn syrup which, by the way is in 85% of our food and saw a 25% improvement, next I eliminated all gluten and after 2 weeks, half was gone but it wasn't until I gave up Diet Coke which contains aspartame and artifical caramel color that it went away almost completely. Now i just have plaque scars but they are fading. Now I keep an organic diet. It's very expensive and the food companies lie on the packages, trying to hide their toxins with different words .4 different doctors told me that what I eat has nothing to do with psoriasis. .an allergist, a dermatologist, a rhomatoud specialist and my primary care physician. ..either they're all very stupid or they're making $$$ on every prescription they write...it sucks. Good luck and remember, you are what you eat. Eliminate sugar but any fruit is good. Mother nature or God made fiber with sugar like in apples, bananas, pineapple. Pineapple, if it's not contaminated with chemicals is really good for you. No tuna or any other mercury containing fish. Mercury is deadly and is in high fructose corn syrup.! But no one in government seems care! Jeepers, I feel better now that I got this off my chest!

Posted Fri 20 Oct 2017 7.38pm by Chan2010

Hey guys

I'm new to this forum.

I have been a psoriasis sufferer for around 20 years, it all tarted when I was around 9-10 and I've been up and and down with it all my life. I have tried every cream you could imagine and also had light treatment 4 times, this worked well the first 2 times then not so well after. At my last appointment with my dermatologist we spoke about tablet form treatment she gave me a load of information and links to websites and she asked me to go away and do some research and have a think about what I wanted to do. Research is ok but I'd rather hear from people that have experienced it.

Has anyone had any of the tablets? What was your experiences like?

I am trying for a baby (which is hard when your confidence is so low) so I'm sure that limits me to my options?

I need to do something about it before I lose my mind.

Thankyou

Posted Sat 21 Oct 2017 4.13am by Gautamse

Hi Chan2010,

I am a sufferer from since 2011, You can get in touch with me on Facebook at https://fb.com/convolute

I shared some info above which I think you would have gone through,

All the best !

stay optimistic and strong.

Posted Sat 21 Oct 2017 4.43am by Deeker57

Hi Rochelle/Chan2010

Took a look at my post above regarding Exorex Lotion, which is a coal tar lotion...that needs time to work. Hope it works for you.

Posted Sat 21 Oct 2017 8.54am by Ivor
32. Covered from neck to ankles (Oct 2017). Very sore and itchy. Due to start biologics in Feb 2018.

Hi Chan2010. In terms of tablets, with Methotrexate I had some mild side effects for the first couple of weeks (e.g. nausea) and after around 6 months I found that it had no effect on my psoriasis. Ciclosporin was a little better, reducing the extent of my psoriasis to a limited extent. (There are a few forum threads with new posts made in the last couple of weeks that compare Methotrexate and Ciclosporin, so you might find those useful.) Then a course of UVB phototherapy cleared my psoriasis once, but my second course didn't work. Got an appointment at end of January to start biologics, which I hear have a much higher success rate.

Posted Sat 21 Oct 2017 6.09pm by sugarfree

Hi Cecila

Very interested in your post Re your point that I'm lucky to be in the UK because in the USA 'Our doctors do nothing for us but advise us to take a pill!' I fear on the whole that's what happens in the UK too. Dr Sarah Myhill is very unusual in being a properly qualified doctor but also who uses her common sense and powers of observation. Could the sugar and other chemicals interfere with our gut bacteria which enable us to digest things easily? I think that could be the key.

What is biologics Ivor? Please do tell me.

The other thing to bear in mind is that people with various bowel problems can be cured by a fecal/poo infusion - vile sounding I know but it worked so well on desperate people doing DIY infusions that now the NHS is doing it or so I've heard.

Please also remember Barry Marshall who found a cure for stomach ulcers which involved taking an antibiotic for a week. He had such a hard time he went to Australia and stayed there and waited 'for the dinosaurs to die out'. Now antibiotics are given to those with bad stomach ulcers and they cure most people.

Posted Sun 22 Oct 2017 2.36pm by Ivor
32. Covered from neck to ankles (Oct 2017). Very sore and itchy. Due to start biologics in Feb 2018.

Hi sugarfree. Biologics are the latest drugs for treating psoriasis and some other conditions, synthesised using animal and human proteins which result in a range of benefits over other drugs. They are incredibly expensive, so in the UK they are only prescribed if other treatments aren't suitable or haven't worked. See https://www.psoriasis-association.org.uk/psoriasis-and-treatments/treatments/from-a-dermatologist.

Posted Tue 24 Oct 2017 9.36am by vijaykum

HiMissy

Sorry to hear about your problem. I had a bad bout of Plaque psoriasis with Psor Arthiritis. I used an herbal cream called PSORfix sent to me from India for my Silvery scales and cracked toes. I got instant relief after about 7-8 applications twice a day. Please try this cream and feel the difference.

It's all herbal hence no side effects at all. Good luck.

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