Click here for COVID-19 (coronavirus) advice for people living with psoriasis and psoriatic arthritis.
There are often opportunities to help raise awareness of psoriasis, contribute to projects and initiatives, and share your experiences.
Listed below are various opportunities that the Psoriasis Association, or other organisations, are looking for people to get involved with. If you are interested in getting involved in psoriasis research, please see our Research pages.
Become a Patient Associate Editor for the British Journal of Dermatology
The British Journal of Dermatology (BJD) is looking to recruit one Patient Associate Editor to join its editorial team, influence academic publishing and help further promote the BJD’s Plain Language Summaries.
This opportunity is open to anyone who is living with a condition which affects the skin, or who cares for someone who does. It is also currently open to applicants living anywhere in the world.
As with all BJD Associate Editor posts, this is a voluntary (unpaid) role, but any travel, accommodation or out of pocket expenses for journal work will be reimbursed. The estimated time commitment for the role is two hours per week (on average), with a term of office of two years.
Please find a full advert for the position here.
The deadline for applications is Sunday 5th September 2021 and shortlisted candidates will be invited for a Zoom interview during the week commencing 4th October 2021.
Further information and the job description can be obtained from John Caulfield, Editorial Manager in the British Association of Dermatologists’ editorial office, at email@example.com.
Survey to understand your experiences of living with and being treated for psoriasis
Are you over 18 and being treated by a specialist nurse or dermatologist for your psoriasis? Then we need your help! We’re working with UCB, a pharmaceutical company, sharing their survey to find out more about your experiences of living with and being treated for psoriasis.
The survey should only take about 30 minutes of your time, and the insights from the survey will be used by the Psoriasis Association and UCB to help build understanding of the real-life experience of people living with psoriasis. To find out more and to take part in the survey, click this link.
If you have any issues accessing the survey please send an email to firstname.lastname@example.org
The team behind the PsoProtectMe psoriasis and COVID-19 registry would be interested to hear more about your hopes and fears relating to your psoriasis as you look to the future beyond the COVID-19 pandemic.
Have you been unable to get the care and treatment you needed for your psoriasis during the pandemic and you're looking forward to having a face-to-face appointment with your dermatologist again? Or perhaps your psoriasis has been well-controlled during the pandemic and you're anxious about how re-adjusting to life in the outside world may impact your skin?
However you're feeling about the future, we would love to hear from you!
Would you be happy to share a quote and/or a short written piece (250 words or less) about your thoughts? Would you be happy for these to be published (including on social media) in order to raise awareness of psoriasis and the PsoProtectMe initative?
If so, please contact email@example.com to register your interest in taking part.
Please do get in touch whether you have already taken the PsoProtectMe survey or not.
Join a project group to help shape dermatology services in Lancashire and South Cumbria - EXTERNAL OPPORTUNITY
NHS Clinical Commissioning Groups in Lancashire and South Cumbria (with the exception of West Lancashire), who buy health services on your behalf, are looking to procure new dermatology services and as part of the procurement, they would like to recruit some patient reps to help them shape how the services will look in the future.
The project group will meet online monthly for the next 12 months for around an hour. They will provide training and support to any patient reps so you don’t need to worry if you haven't done anything like this before. The patient reps will help design surveys, new patient materials, website content etc.
If you would like more information before committing to become a patient rep, please contact Bwdandeast.firstname.lastname@example.org.
Share your story with us
Are you inspired by other people's stories and interested in sharing your own experiences of psoriasis and/or psoriatic arthritis? Would you like your story to be featured on our website, and on our social media channels?
We are looking for...
- Your story of life with psoriasis or psoriatic arthritis (or both) in your own words
- Ideally 400 words or less (if you want to write more, that's fine too)
- A photo of yourself to accompany your story (you can provide as many photos as you like)
If you're interested in taking part and sharing your story, or you'd like more information about the project, please contact us at email@example.com
Take part in our new 'Active Lifestyles' Photoshoot (now due to take place in 2021)
The Psoriasis Association is currently looking for participants for our exciting new ‘Active Lifestyles’ photoshoot.
We are launching an exciting new project to refresh the look and feel of our website and promotional materials with a brand new set of vibrant images and photographs that focus on an active lifestyle.
It is hoped that the new images will show a more holistic approach to living with psoriasis, which shows the condition as one part of someone’s life, which does not have to stand in the way of them doing anything they want to do.
So, if there is a hobby or sport that you enjoy and would be interested in having your photo taken while participating in, then please do let us know. We are particularly interested in activities including swimming, cycling, dog walking, painting, rambling, reading, cooking, or chatting with friends.
The photoshoot will take place next year (2021) in venues around Northamptonshire using our head office as a base. The specific date has not yet been set due to current circumstances with COVID-19, however we are keen to get a feel for who might like to be involved.
For further details, or to register your interest, please contact Dominic Urmston via email at firstname.lastname@example.org.
We are always looking for volunteers who would like to help us with our work whether this is by becoming a media contact, reviewing our information or speaking at events or conferences. If you would like to be involved with any of the opportunities listed below please fill in this form and send it to email@example.com.
Whilst we try our best to match all of our volunteers with relevant opportunities, please keep in mind that due to the specific requirements of some requests we cannot guarantee you will be contacted.
Become a media contact
often receive requests from journalists at newspapers and magazines, or
production staff at TV companies looking for case studies. Sometimes we also
contact the media ourselves to raise awareness of Psoriasis Association events
and achievements. If you’d be willing to share your experiences of psoriasis or
psoriatic arthritis and raise awareness through the media, let us know.
Review our information
We're committed to producing high quality information about psoriasis and receiving feedback from people living with the condition is key to ensuring our information is accessible and easy to understand.
We regularly produce new information sheets and leaflets about psoriasis, psoriatic arthritis and their treatments and we are looking for people based in the UK who would like to feedback on our new and existing information.
Volunteer to be an event speaker
Occasionally we need people with psoriasis or psoriatic arthritis to share their experiences at an event such as a conference or lecture, support group or meeting. If you might be interested in any opportunities to tell an audience about your psoriasis let us know.
Join a consultation panel
Join a consultation panel if you’re happy to be contacted to offer your opinion or comment on anything from our own services and literature to taking part in industry or academic initiatives.
Distribute our posters or leaflets
If you’d like to take our literature into your local GP surgery or Dermatology clinic, do let us know and we can send you some information to distribute.
Join our Research Network
To receive emails with opportunities to take part in or to help shape psoriasis research sign up to our Research Network. Please note, these opportunities may come from third parties e.g. academic researchers as well as from the Psoriasis Association.