Click here for COVID-19 (coronavirus) advice for people living with psoriasis and psoriatic arthritis.
There are often opportunities to help raise awareness of psoriasis, contribute to projects and initiatives, and share your experiences.
Listed below are various opportunities that the Psoriasis Association, or other organisations, are looking for people to get involved with. If you are interested in getting involved in psoriasis research, please see our Research pages.
Apply to become a Psoriasis Patient Representative on the British Association of Dermatologists Biologics and Immunomodulators Register (BADBIR) Steering Committee
The British Association of Dermatologists (BAD) is looking for an enthusiastic psoriasis patient representative to become a member of the BAD Biologics and Immunomodulators Register (BADBIR) Steering Committee.
BADBIR is a UK and Eire observational study seeking to assess the long-term safety of biologic treatments for psoriasis. The Steering Committee is responsible for the overall objectives of the study as well communicating to the BAD members and to patient care and representative organisations.
Ideally you will be a patient with moderate to severe psoriasis with an interest in providing first-hand experience of the problems faced by patients. There are three meetings held each year and it is expected all members attend a minimum of two meetings. The term of appointment is for three years.
If you would like to apply or find out more, please contact Lillie Turnbull-Jones, BAD Research Coordinator: email@example.com.
You can find out more about the role and person specification here.
The next BADBIR Steering Committee meeting will be held on Wednesday 15th June 2022.
The team behind the PsoProtectMe psoriasis and COVID-19 registry would be interested to hear more about your hopes and fears relating to your psoriasis as you look to the future beyond the COVID-19 pandemic.
Have you been unable to get the care and treatment you needed for your psoriasis during the pandemic and you're looking forward to having a face-to-face appointment with your dermatologist again? Or perhaps your psoriasis has been well-controlled during the pandemic and you're anxious about how re-adjusting to life in the outside world may impact your skin?
However you're feeling about the future, we would love to hear from you!
Would you be happy to share a quote and/or a short written piece (250 words or less) about your thoughts? Would you be happy for these to be published (including on social media) in order to raise awareness of psoriasis and the PsoProtectMe initative?
If so, please contact firstname.lastname@example.org to register your interest in taking part.
Please do get in touch whether you have already taken the PsoProtectMe survey or not.
Join a project group to help shape dermatology services in Lancashire and South Cumbria - EXTERNAL OPPORTUNITY
NHS Clinical Commissioning Groups in Lancashire and South Cumbria (with the exception of West Lancashire), who buy health services on your behalf, are looking to procure new dermatology services and as part of the procurement, they would like to recruit some patient reps to help them shape how the services will look in the future.
The project group will meet online monthly for the next 12 months for around an hour. They will provide training and support to any patient reps so you don’t need to worry if you haven't done anything like this before. The patient reps will help design surveys, new patient materials, website content etc.
If you would like more information before committing to become a patient rep, please contact Bwdandeast.email@example.com.
Share your story with us
Are you inspired by other people's stories and interested in sharing your own experiences of psoriasis and/or psoriatic arthritis? Would you like your story to be featured on our website, and on our social media channels?
We are looking for...
- Your story of life with psoriasis or psoriatic arthritis (or both) in your own words
- Ideally 400 words or less (if you want to write more, that's fine too)
- A photo of yourself to accompany your story (you can provide as many photos as you like)
If you're interested in taking part and sharing your story, or you'd like more information about the project, please contact us at firstname.lastname@example.org
We are always looking for volunteers who would like to help us with our work whether this is by becoming a media contact, reviewing our information or speaking at events or conferences. If you would like to be involved with any of the opportunities listed below please fill in this form and send it to email@example.com.
Whilst we try our best to match all of our volunteers with relevant opportunities, please keep in mind that due to the specific requirements of some requests we cannot guarantee you will be contacted.
Become a media contact
often receive requests from journalists at newspapers and magazines, or
production staff at TV companies looking for case studies. Sometimes we also
contact the media ourselves to raise awareness of Psoriasis Association events
and achievements. If you’d be willing to share your experiences of psoriasis or
psoriatic arthritis and raise awareness through the media, let us know.
Review our information
We're committed to producing high quality information about psoriasis and receiving feedback from people living with the condition is key to ensuring our information is accessible and easy to understand.
We regularly produce new information sheets and leaflets about psoriasis, psoriatic arthritis and their treatments and we are looking for people based in the UK who would like to feedback on our new and existing information.
Volunteer to be an event speaker
Occasionally we need people with psoriasis or psoriatic arthritis to share their experiences at an event such as a conference or lecture, support group or meeting. If you might be interested in any opportunities to tell an audience about your psoriasis let us know.
Join a consultation panel
Join a consultation panel if you’re happy to be contacted to offer your opinion or comment on anything from our own services and literature to taking part in industry or academic initiatives.
Distribute our posters or leaflets
If you’d like to take our literature into your local GP surgery or Dermatology clinic, do let us know and we can send you some information to distribute.
Join our Research Network
To receive emails with opportunities to take part in or to help shape psoriasis research sign up to our Research Network. Please note, these opportunities may come from third parties e.g. academic researchers as well as from the Psoriasis Association.