Take Part in Research

See below for opportunities to take part in psoriasis research, or to share your experiences. Please note that these projects are not run by the Psoriasis Association, but by external parties such as academic research departments.

We do not normally advertise commercial clinical trials. If the opportunities below do not match the type of project you are looking to be involved in, you can also take a look at 'Be Part of Research', which is run by the National Institute for Health Research (NIHR) and will give you lots of information about taking part in clinical trials and allow you to search for a relevant trial in your area. More information about clinical trials can also be found on the NHS website and at ClinicalTrials.gov.

Help us understand your opinions on using biosimilar treatments for psoriasis

A biosimilar is a cost-saving medicine that is designed to work in the body in the same way as a biologic medicine already available for use in psoriasis. Although trials have not shown any difference between biosimilars and original products, we do not yet know whether this is the same in routine clinics.

Researchers at the University of Manchester are working to examine the use of biosimilars in routine clinical settings.

The research team has launched an online survey to explore people’s concerns, experiences, and opinions on using these new medications for psoriasis.

If you are living with psoriasis, we need your help to make sure our research prioritizes everything important to your psoriasis. The survey will take up to 7 minutes to complete.

You can access the online survey here

For more information about the study please contact Duc Binh Phan: ducbinh.phan@postgrad.manchester.ac.uk

Conditions that can affect appearance: support for concerns related to intimacy and romantic relationships - review of materials

Researchers at the Centre for Appearance Research have developed support materials for adults with conditions which can affect appearance, focussed specifically on intimacy and romantic relationships. They are now looking for individuals with conditions such as psoriasis, to review and provide feedback on these support materials. This will involve listening to/reading some pilot versions of the support materials and responding to a short feedback survey to let them know what was good and what could be improved.

If you have psoriasis, are over 18 years old, have a good understanding of spoken/written English, and are currently or have been based in the UK they’d love to hear from you!

Anyone who completes the survey will be given the opportunity to win a £50 Amazon voucher, as a thank you for their time.

To find out more, go to: visibledifferenceintimacy or email maia.thornton@uwe.ac.uk

Monitoring of Inflammatory Conditions - Online Survey

People with inflammatory conditions treated with immune suppressing medicines are recommended to have regular blood tests to monitor for potential side-effects.

Researchers at the University of Nottingham are undertaking work which aims to create a personalised, long-term monitoring plan that may result in changes to how often someone is recommended to have these blood tests. As part of this work, they are looking for people with inflammatory conditions and taking immune-suppressing medicines to take part in a questionnaire and interview study, which aims to understand:

  1. How often people attend these blood tests as currently recommended (questionnaire).
  2. People’s views and experience of the current blood tests, and potential changes to this in the future (interview).

An information sheet outlining the full details of this study can be viewed here. Please take the time to read this before deciding whether to take part.

If you would like to take part, please fill out this questionnaire. Your answers to these questions will also be used to choose a wide range of people to talk to in the interviews.

For further information please contact: MS-MONICA-Study@nottingham.ac.uk

The APPLE Study; Asking People with Psoriasis about Lifestyle and

Eating

People living with psoriasis often wish to know whether changing what they eat could be helpful for their skin. At present, there isn’t enough high-quality research for us to be able to make specific recommendations. To answer this question, King’s College London have partnered with the Psoriasis Association to launch The APPLE Study!

The study will involve the completion of:

  • An online multiple-choice survey
  • An online diet diary

An internet connection is required to access the survey and diet diary. The researchers strongly encourage you to complete the survey and diet diary on a laptop or desktop computer.

The researchers aim to find out if there are certain foods and lifestyle patterns that are more commonly found in people with more severe psoriasis compared with those with milder forms of psoriasis.

This is the first study of its kind in the UK. The researchers would use this information to work out if dietary changes could be helpful for psoriasis management in the longer term.

Inclusion criteria:

  • 18 years or older
  • Have a medical diagnosis of psoriasis
  • A resident in the United Kingdom
  • Able to complete surveys in English

Upon completion of The APPLE Study, you will receive:

  • A personal nutrition report
  • A webinar invite to “A Guide to Nutrition & Psoriasis” by our Consultant Dermatologist, Dr Thivi Maruthappu.

Take the survey here

Contact details: dietandpsoriasisproject@kcl.ac.uk

Website: https://www.dietandpsoriasisproject-apple.com/

Instagram: the_apple_study

Opportunity for adolescent patients with psoriasis to take part in a trial comparing Risankizumab with Ustekinumab (OptIMMize-1)

***UPDATE - Please note that Parts 1, 2 and 3 of this study are now closed to recruitment. Recruitment for Part 4 of the study has not yet commenced – details will be announced in due course.***

This is an opportunity for 12-17 year old patients with moderate to severe plaque psoriasis. The trial, sponsored by the pharmaceutical company, AbbVie, compares the treatment efficacy and safety of Risankizumab (Skyrizi) vs Ustekinumab (Stelara), two biologic therapies. All participants are guaranteed active treatment, regardless of whether they have had systemic therapy before.

Recruitment criteria (list not exclusive):

  • Aged between 12 to < 18 years at the time of enrolment
  • Have had a diagnosis of chronic plaque psoriasis for at least 6 months
  • Have moderate to severe psoriasis, defined as ≥ 10% Body Surface Area (BSA) psoriasis involvement with a static Physician’s Global Assessment (sPGA) score of ≥ 3, or Psoriasis Area and Severity Index (PASI) ≥ 12

  • No history of:

  • Erythrodermic psoriasis, generalised or localised pustular psoriasis, medication-induced or medication exacerbated psoriasis, or new onset guttate psoriasis;
  • Active skin disease other than psoriasis that could interfere with the assessment of psoriasis;
  • Clinically significant drug or alcohol abuse within the last 6 months;
  • An allergic reaction or hypersensitivity to a biologic agent or its excipients;
  • A latex allergy;
  • An organ transplant that requires continued immunosuppression;
  • Any malignancy except for successfully treated non-melanoma skin cancer or localised carcinoma in situ of the cervix.

  • No evidence of:

  • Hepatitis B (HB) (hepatitis B virus [HBV]) or hepatitis C (hepatitis C virus [HCV]) infection;
  • Human immunodeficiency virus (HIV), defined as confirmed positive anti-HIV antibody (HIV Ab) test;
  • Genetic deficiency in IL-12/IL-23;

  • The following centres are open for recruitment into the study (please email the investigators directly):

  • West Ambulatory Care Hospital, Glasgow: Areti.Makrygeorgou@ggc.scot.nhs.uk
  • Frimley Park Hospital, Surrey: sara.sherif@nhs.net
  • Royal Devon and Exeter Hospital, Devon: naomi.goldstraw@nhs.net
  • Derriford Hospital, Plymouth: thurein.newin@nhs.net
  • Guy’s and St Thomas’ NHS Foundation Trust, London: please email Eva.Hilger@gstt.nhs.uk or call 07917217601

  • Dr Wedad Abdelrahman, Chief Investigator (wedad.abdelrahman@gstt.nhs.uk)
    Prof Carsten Flohr, Study Investigator (carsten.flohr@kcl.ac.uk)
    Consultant Paediatric Dermatologists

    St John’s Institute of Dermatology,
    Guy’s & St Thomas’ NHS Foundation Trust

Volunteers needed for study that tests whether exercise helps psoriasis!

Investigating the therapeutic benefits of exercise in patients with psoriasis.

This study aims to find out if exercise can help psoriasis. To do this, researchers have created a 10-week group walking exercise programme. You only need comfortable trainers to take part.

The study involves:

  • Walking sessions led by a member of the research team
  • 3 appointments at the Dermatology Research Centre, Salford Royal NHS Foundation Trust (psoriasis assessment, heart health-check and blood sample)
  • Contact with the research group for up to 10 weeks after the exercise programme has finished.

They are looking for people who are/have:

  • aged between 18 and 60
  • psoriasis that started before the age of 40
  • some psoriasis on their skin
  • psoriatic arthritis (and those who do not have psoriatic arthritis).

This study is not suitable for people who are/have:

  • restricted mobility
  • pregnant or breastfeeding
  • participating in other exercise programmes
  • taking medicines which affect heart rate (eg beta-blockers).

Inconvenience/out-of-pocket expenses will be reimbursed.

The study has been given favourable ethical approval by the NHS research ethics committee. If you would like to volunteer please contact Mr Rory Sheppard by phone (07918 040402) or email (rory.sheppard@postgrad.manchester.ac.uk).

Take an online survey to help us understand how the COVID-19 pandemic is affecting people with psoriasis

In the video below, psoriasis experts, Professor Catherine Smith and Dr Satveer Mahil of St John’s Institute of Dermatology in London introduce PsoProtectMe – a new survey to support vital research into COVID-19 and psoriasis.

Questions answered in this video include:

  1. What is PsoProtectMe, and why is it important? (0:20)
  2. Who should take part in PsoProtectMe? (1:25)
  3. How can people take part and what will they need to do? (2:17)
  4. Can patients revisit the survey if they catch COVID-19 after completing it initially? (4:12)
  5. How will participants’ data be stored and can they withdraw it if they change their mind at a later date? (5:02)

The Psoriasis Association is honoured to be collaborating once more with world leading experts on psoriasis at the St John’s Institute of Dermatology, Guy’s and St Thomas’ NHS Foundation Trust, London and the University of Manchester on a vital piece of research regarding psoriasis and COVID-19 (coronavirus).

PsoProtectMe (website news)PsoProtectMe is an online survey for people with psoriasis to complete, irrespective of whether you have symptoms of COVID-19 or not.

We are asking everyone with psoriasis to complete this important online survey, or to ask a friend or family member to complete it on your behalf. The online PsoProtectMe survey takes only 5-10 minutes to complete and asks about your symptoms, psoriasis treatments and any underlying health conditions you may have. If you have suffered from COVID-19, you will be asked how this has affected you and your psoriasis. If in the future you develop COVID-19 we would ask that you revisit the survey (you will be provided with a unique reference number at the end) and let us know of your experience.

Please do complete the survey irrespective of the type or severity of psoriasis you have, whether you are currently treating your psoriasis or not. We need all ages to complete the survey in order to build an accurate picture.

Your information will help us understand how the COVID-19 pandemic is affecting people with psoriasis, and whether the treatments used for psoriasis increase or decrease the risk of severe COVID-19 infection. This will help healthcare professionals make important decisions about the clinical care of people with psoriasis during the pandemic. Which is why, even if you are well and have not had any symptoms of COVID-19 we really need you to answer this survey call. It could be that your treatment is beneficial in helping protect people from COVID-19 or it could be that one type, or severity of psoriasis affects the body’s response to this virus.

Your contribution will benefit everyone – please help by completing the PsoProtectMe survey today.

Helen McAteer, Chief Executive of the Psoriasis Association commented, “Whilst the COVID-19 pandemic has been a worrying time for us all, it has again shown the strength of the psoriasis community that registries such as PsoProtect and now PsoProtectMe have been established so quickly to help further our understanding and treat people with psoriasis and COVID-19. The commitment of the teams at the St John’s Institute of Dermatology and the University of Manchester, with support from the Psoriasis Association is essential to the understanding not just of psoriasis, but all health events that may affect people living with the condition. Please do give 5-10 minutes to complete the survey – your information really is important.”

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