Take Part in Research
See below for opportunities to take part in psoriasis research, or to share your experiences. Please note that these projects are not run by the Psoriasis Association, but by researchers based in UK academic institutions and/or NHS Trusts.
We do not normally advertise commercial clinical trials. If the opportunities below do not match the type of project you are looking to be involved in, you can also take a look at 'Be Part of Research', which is run by the National Institute for Health Research (NIHR) and will give you lots of information about taking part in clinical trials and allow you to search for a relevant trial in your area. More information about clinical trials can also be found on the NHS website and at ClinicalTrials.gov.
From Partner to Caregiver: Identity Change and its Consequences in Autoimmune Disease
Are you the partner of someone living with psoriatic arthritis (PsA), an autoimmune condition characterised by flare‑remitting symptoms? If you have been your partner’s primary caregiver during flare periods for at least 24 months, you may be eligible to take part in a University of Liverpool MSc Psychology study.
This research explores how romantic partners make sense of becoming caregivers, how this shift affects identity, and the emotional, psychological and relational impact of moving between partner and caregiver during flare episodes.
Participants will take part in a 60–90 minute one‑to‑one online interview via Microsoft Teams, where you will be invited to share your experiences and reflections. Participation is voluntary, confidential, and you may withdraw at any time.
To express interest, please complete the short screening form: https://forms.cloud.microsoft/e/z91XRBNUeE
Researcher: Rachel Hayes Contact: hlrhayes@liverpool.ac.uk
HPOS trial to identify who might develop psoriatic arthritis
How to get involved
Taking part is simple. Participants, who are over 18 years of age and diagnosed with psoriasis, but not with psoriatic arthritis, will be asked to complete an online questionnaire every 6 months.
Over a period of 3 years, the responses will be monitored and from the results the researchers will be able to identify which patients will go on to develop arthritis. The long-term aim is to try to prevent the development of arthritis before it occurs.
Please help and sign up at this link: https://www.hpos.study/
Make A Difference
Take a look at the video below to learn more about the study, or click this link to watch the video on YouTube.
Developing a social media intervention to increase awareness and understanding of psoriasis: A mixed-methods project using co-production with adults with psoriasis
Do you live with psoriasis and use social media? We want to hear from you!
We're recruiting for an exciting research study exploring the experiences of people living with psoriasis and the social media content around psoriasis.
You could help shape better support and awareness for the psoriasis community.
How to get involved
Get involved by completing the survey linked here.
Research contact:
Mani: emmanuel.toni@uwe.ac.uk
Instagram Live Q&A Recap
The Psoriasis Association hosted an Instagram Live Q&A with Mani, Dermatology ANP, to answer your questions about getting involved in the study.
You can watch a recap in the video below, or click this link to watch the video on YouTube.
Opportunity for adolescent patients with psoriasis to take part in a trial comparing Risankizumab with Ustekinumab (OptIMMize-1)
***UPDATE - Please note that Parts 1, 2 and 3 of this study are now closed to recruitment. Recruitment for Part 4 of the study has not yet commenced – details will be announced in due course.***
This is an opportunity for 12-17 year old patients with moderate to severe plaque psoriasis. The trial, sponsored by the pharmaceutical company, AbbVie, compares the treatment efficacy and safety of Risankizumab (Skyrizi) vs Ustekinumab (Stelara), two biologic therapies. All participants are guaranteed active treatment, regardless of whether they have had systemic therapy before.
Recruitment criteria (list not exclusive):
- Aged between 12 to < 18 years at the time of enrolment
- Have had a diagnosis of chronic plaque psoriasis for at least 6 months
- Have moderate to severe psoriasis, defined as ≥ 10% Body Surface Area (BSA) psoriasis involvement with a static Physician’s Global Assessment (sPGA) score of ≥ 3, or Psoriasis Area and Severity Index (PASI) ≥ 12
- Erythrodermic psoriasis, generalised or localised pustular psoriasis, medication-induced or medication exacerbated psoriasis, or new onset guttate psoriasis;
- Active skin disease other than psoriasis that could interfere with the assessment of psoriasis;
- Clinically significant drug or alcohol abuse within the last 6 months;
- An allergic reaction or hypersensitivity to a biologic agent or its excipients;
- A latex allergy;
- An organ transplant that requires continued immunosuppression;
- Any malignancy except for successfully treated non-melanoma skin cancer or localised carcinoma in situ of the cervix.
- Hepatitis B (HB) (hepatitis B virus [HBV]) or hepatitis C (hepatitis C virus [HCV]) infection;
- Human immunodeficiency virus (HIV), defined as confirmed positive anti-HIV antibody (HIV Ab) test;
- Genetic deficiency in IL-12/IL-23;
- West Ambulatory Care Hospital, Glasgow: Areti.Makrygeorgou@ggc.scot.nhs.uk
- Frimley Park Hospital, Surrey: sara.sherif@nhs.net
- Royal Devon and Exeter Hospital, Devon: naomi.goldstraw@nhs.net
- Derriford Hospital, Plymouth: thurein.newin@nhs.net
- Guy’s and St Thomas’ NHS Foundation Trust, London: please email Eva.Hilger@gstt.nhs.uk or call 07917217601
No history of:
No evidence of:
The following centres are
open for recruitment into the study (please email the investigators directly):
Dr Wedad Abdelrahman,
Chief Investigator
(wedad.abdelrahman@gstt.nhs.uk)
Prof Carsten Flohr,
Study Investigator (carsten.flohr@kcl.ac.uk)
Consultant Paediatric Dermatologists
St John’s Institute of
Dermatology,
Guy’s & St Thomas’
NHS Foundation Trust