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Supporting psoriasis research has been one of the key aims of the Psoriasis Association since we were founded in 1968. We want to help researchers conduct research that has the best chance of having a real impact on the lives of people with psoriasis. To do this, we are pleased to not only fund research, but also support researchers with recruitment, patient and public involvement (PPI), and publishing their work in an open-access manner.
Recruiting research participants:
Matching the right people to the right research is not always easy. The Psoriasis Association can offer support in recruiting by promoting your study and its inclusion criteria to our community through various channels.
Please note that all studies that are looking to recruit participants are required to have ethical approval before they can be promoted by the Psoriasis Association.
Patient and Public Involvement (PPI):
PPI is defined by NIHR INVOLVE as research that is ‘being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them’.
As a patient organisation, we believe that research has the most impact when people with psoriasis are involved in the project. This can include:
- reviewing a research proposal,
- attending a focus group,
- sitting on the steering committee,
- consulting on research materials,
- consulting on the research ethics,
- reviewing dissemination plans, presentations and engagement activities,
- being a co-applicant and co-researcher
We are happy to promote PPI opportunities to our Research Network and to our wider community as appropriate.
What we offer
There are multiple ways that the Psoriasis Association can support researchers in recruitment or PPI:
Our Research Network is a group of people with psoriasis who are specifically interested in research. Opportunities to take part, or to be involved, in research are sent directly to members of the Network, allowing interested individuals to then get in contact with the researcher or take part.
The Psoriasis Association website has a ‘Taking part in research’ page, where current involvement and recruitment opportunities are listed. Opportunities can be advertised for as long as needed and allow anyone to take part or contact the lead researcher.
We have a number of social media channels, which allow us to communicate with a wide range of people affected by psoriasis. Depending on the suitability and the current posting schedule, our Communications team can post about research projects that we are promoting and direct people to the Psoriasis Association website or to the study itself.
Who we support
The Psoriasis Association is pleased to support researchers based in a UK university or hospital whose work is focussed on researching the causes, nature, or care of psoriasis.