Help needed for Ciclosporin
Posted Sat 18 Feb 2017 9.43am by Holly1
Has psoriasis since 2001
2
Posted Wed 22 Feb 2017 12.05pm by EQ
Posted Wed 22 Feb 2017 8.53pm by Holly1
Has psoriasis since 2001
Posted Sun 26 Feb 2017 1.40pm by Roland
Posted Sun 26 Feb 2017 3.23pm by Holly1
Has psoriasis since 2001
Posted Sun 26 Feb 2017 8.53pm by EQ
Posted Mon 6 Mar 2017 11.20pm by Roland
Posted Wed 8 Mar 2017 10.48am by Roland
Posted Wed 8 Mar 2017 11.03am by Holly1
Has psoriasis since 2001
Posted Wed 8 Mar 2017 11.12am by Roland
Posted Wed 8 Mar 2017 11.25am by Holly1
Has psoriasis since 2001
Posted Wed 8 Mar 2017 12.02pm by Roland
1
Posted Thu 9 Mar 2017 1.29pm by Roland
2
Posted Sat 11 Mar 2017 9.51am by DanielC
Had psoriasis since I was 17, now 50+
Posted Tue 14 Mar 2017 12.05pm by Holly1
Has psoriasis since 2001
Posted Wed 15 Mar 2017 10.10am by Holly1
Has psoriasis since 2001
1
Posted Wed 15 Mar 2017 1.57pm by Giacy2009
2
Posted Wed 15 Mar 2017 6.47pm by Roland
Posted Sun 19 Mar 2017 10.36pm by Roland
Posted Sun 19 Mar 2017 10.46pm by Holly1
Has psoriasis since 2001
Posted Sun 19 Mar 2017 11.18pm by Holly1
Has psoriasis since 2001
Posted Tue 21 Mar 2017 8.11pm by Holly1
Has psoriasis since 2001
Posted Tue 21 Mar 2017 10.24pm by Roland
Posted Wed 22 Mar 2017 1.28pm by Roland
Posted Wed 22 Mar 2017 2.01pm by Holly1
Has psoriasis since 2001
1
Posted Fri 24 Mar 2017 3.16pm by EQ
Posted Tue 28 Mar 2017 11.32pm by Holly1
Has psoriasis since 2001
Posted Thu 30 Mar 2017 10.43am by Roland
Posted Thu 30 Mar 2017 8.14pm by Holly1
Has psoriasis since 2001
Posted Thu 13 Apr 2017 1.01am by Holly1
Has psoriasis since 2001
Posted Fri 14 Apr 2017 8.39am by Roland
Posted Wed 19 Apr 2017 11.04pm by Roland
Posted Thu 20 Apr 2017 5.44pm by Blaynster
Sufferer for 8yrs+
Posted Fri 21 Apr 2017 10.57pm by Kirsty
Posted Sun 23 Apr 2017 9.10am by EQ
Posted Thu 18 May 2017 1.01pm by neas83
Posted Wed 21 Jun 2017 8.38pm by Holly1
Has psoriasis since 2001
1
Posted Sun 2 Jul 2017 6.04pm by EmmaG
Posted Tue 4 Jul 2017 8.25am by DodgeWC51
Posted Wed 5 Jul 2017 3.28am by EmmaG
Posted Wed 5 Jul 2017 8.15am by DodgeWC51
Posted Mon 24 Jul 2017 4.37pm by Jamie
Posted Mon 24 Jul 2017 5.17pm by DodgeWC51
Posted Mon 24 Jul 2017 5.42pm by Jamie
Posted Mon 24 Jul 2017 5.57pm by DodgeWC51
Posted Mon 24 Jul 2017 6.12pm by Holly1
Has psoriasis since 2001
Posted Mon 24 Jul 2017 6.18pm by DodgeWC51
Posted Mon 24 Jul 2017 6.35pm by Jamie
Posted Mon 24 Jul 2017 6.47pm by DodgeWC51
Posted Mon 24 Jul 2017 6.52pm by Jamie
Posted Thu 27 Jul 2017 6.24pm by Jamie
Posted Thu 27 Jul 2017 6.55pm by DodgeWC51
Posted Thu 27 Jul 2017 7.22pm by Jamie
1
Posted Thu 27 Jul 2017 7.35pm by DodgeWC51
Posted Thu 27 Jul 2017 7.38pm by Jamie
Posted Thu 27 Jul 2017 7.40pm by DodgeWC51
Posted Tue 1 Aug 2017 12.15pm by ClearskinPls
Since 2001, tried uvb and creams
Posted Tue 1 Aug 2017 12.20pm by DodgeWC51
Posted Tue 1 Aug 2017 12.33pm by ClearskinPls
Since 2001, tried uvb and creams
Posted Tue 1 Aug 2017 12.42pm by DodgeWC51
Posted Tue 1 Aug 2017 12.46pm by ClearskinPls
Since 2001, tried uvb and creams
1
Posted Tue 1 Aug 2017 12.57pm by DodgeWC51
1
Posted Wed 2 Aug 2017 5.01pm by Giacy2009
1
Posted Wed 2 Aug 2017 5.03pm by DodgeWC51
1
Posted Wed 2 Aug 2017 5.29pm by Giacy2009
1
Posted Wed 2 Aug 2017 5.38pm by DodgeWC51
Posted Thu 3 Aug 2017 7.49am by Holly1
Has psoriasis since 2001
Posted Thu 3 Aug 2017 7.54am by DodgeWC51
1
Posted Thu 3 Aug 2017 7.57am by Holly1
Has psoriasis since 2001
Posted Thu 3 Aug 2017 8.04am by DodgeWC51
Posted Thu 3 Aug 2017 8.11am by Holly1
Has psoriasis since 2001
Posted Thu 3 Aug 2017 8.13am by DodgeWC51
Posted Wed 9 Aug 2017 12.03pm by ClearskinPls
Since 2001, tried uvb and creams
1
Posted Wed 9 Aug 2017 12.11pm by DodgeWC51
Posted Wed 9 Aug 2017 12.17pm by ClearskinPls
Since 2001, tried uvb and creams
Posted Wed 9 Aug 2017 12.43pm by DodgeWC51
Posted Wed 9 Aug 2017 12.52pm by ClearskinPls
Since 2001, tried uvb and creams
Posted Wed 9 Aug 2017 1.20pm by DodgeWC51
Posted Wed 9 Aug 2017 1.31pm by ClearskinPls
Since 2001, tried uvb and creams
Posted Wed 9 Aug 2017 1.48pm by DodgeWC51
Posted Wed 9 Aug 2017 1.56pm by ClearskinPls
Since 2001, tried uvb and creams
Posted Wed 9 Aug 2017 2.07pm by DodgeWC51
Posted Wed 9 Aug 2017 2.13pm by ClearskinPls
Since 2001, tried uvb and creams
Posted Wed 9 Aug 2017 8.41pm by DodgeWC51
Posted Sat 12 Aug 2017 8.17pm by marylou
Posted Sat 12 Aug 2017 8.43pm by DodgeWC51
Posted Sat 12 Aug 2017 10.34pm by marylou
Posted Sun 13 Aug 2017 10.45pm by Blaynster
Sufferer for 8yrs+
1
Posted Mon 14 Aug 2017 10.36am by DodgeWC51
Posted Tue 22 Aug 2017 8.37pm by Blaynster
Sufferer for 8yrs+
Posted Tue 22 Aug 2017 9.46pm by DodgeWC51
Posted Tue 22 Aug 2017 10.27pm by Holly1
Has psoriasis since 2001
Posted Tue 22 Aug 2017 11.19pm by Blaynster
Sufferer for 8yrs+
Posted Thu 24 Aug 2017 4.30pm by ClearskinPls
Since 2001, tried uvb and creams
1
Posted Thu 24 Aug 2017 4.40pm by DodgeWC51
Posted Thu 24 Aug 2017 4.47pm by ClearskinPls
Since 2001, tried uvb and creams
Posted Thu 24 Aug 2017 4.57pm by Blaynster
Sufferer for 8yrs+
Posted Thu 24 Aug 2017 5.02pm by ClearskinPls
Since 2001, tried uvb and creams
Posted Thu 24 Aug 2017 5.11pm by Blaynster
Sufferer for 8yrs+
1
Posted Thu 24 Aug 2017 5.16pm by DodgeWC51
1
Posted Thu 24 Aug 2017 5.16pm by ClearskinPls
Since 2001, tried uvb and creams
Posted Thu 24 Aug 2017 6.02pm by DodgeWC51
Posted Wed 13 Sep 2017 5.07am by DodgeWC51
Posted Wed 13 Sep 2017 5.29am by ClearskinPls
Since 2001, tried uvb and creams
Posted Wed 13 Sep 2017 7.58am by Holly1
Has psoriasis since 2001
Posted Wed 13 Sep 2017 9pm by DodgeWC51
Posted Thu 14 Sep 2017 9.26am by Roland
Posted Sat 4 Nov 2017 11pm by DodgeWC51
Posted Sun 5 Nov 2017 0.12am by Holly1
Has psoriasis since 2001
Posted Sun 5 Nov 2017 5.16am by DodgeWC51
Posted Thu 9 Nov 2017 3.36pm by BGFC
Posted Thu 9 Nov 2017 5.11pm by DodgeWC51
Posted Fri 10 Nov 2017 0.45am by Vic90
Posted Fri 10 Nov 2017 4.28am by DodgeWC51
Posted Fri 10 Nov 2017 8.26am by Vic90
Posted Fri 10 Nov 2017 5.19pm by DodgeWC51
1
Posted Mon 13 Nov 2017 6.48pm by Smiler40
Posted Mon 13 Nov 2017 7.01pm by Roland
Posted Mon 13 Nov 2017 7.39pm by Smiler40
Posted Sun 3 Dec 2017 10.17am by Idy
Phototherapy, methotrexate, ciclosporin and stelara afficionado
Posted Sun 3 Dec 2017 2.44pm by DodgeWC51
Posted Sat 9 Dec 2017 12.51pm by Idy
Phototherapy, methotrexate, ciclosporin and stelara afficionado
Posted Wed 13 Dec 2017 9.05am by DodgeWC51
Posted Thu 14 Dec 2017 3.21pm by Elsa81
Posted Thu 14 Dec 2017 6.21pm by DodgeWC51
Posted Thu 14 Dec 2017 6.58pm by Holly1
Has psoriasis since 2001
Posted Fri 15 Dec 2017 4.19am by DodgeWC51
Posted Fri 15 Dec 2017 7.08am by Kier1993
24, always lived a happy healthy life until my PPP diagnosis. Now I feel so alone & desperate to find some relief. My depression is horrible
Posted Fri 15 Dec 2017 5.37pm by DodgeWC51
Posted Sat 16 Dec 2017 9.38pm by Ausum
Posted Sat 16 Dec 2017 10.20pm by Oread Therapeutics
We are trying our best to improve lives through science!
Posted Thu 21 Dec 2017 9.39am by Joe woods
11
Posted Thu 21 Dec 2017 9.40pm by DodgeWC51
Posted Thu 21 Dec 2017 10.58pm by Holly1
Has psoriasis since 2001
Posted Fri 22 Dec 2017 9.19am by Joe woods
Posted Fri 22 Dec 2017 9.17pm by DodgeWC51
Posted Thu 4 Jan 2018 1.43pm by JoeOH
Posted Thu 4 Jan 2018 5.36pm by DodgeWC51
Posted Thu 4 Jan 2018 7.56pm by Elsa81
Posted Fri 5 Jan 2018 4.23am by DodgeWC51
Posted Fri 5 Jan 2018 1.26pm by Elsa81
Posted Sun 21 Jan 2018 2.24pm by Anand Rastogi
1
Posted Sun 21 Jan 2018 4.10pm by DodgeWC51
Posted Mon 22 Jan 2018 7.06pm by Anand Rastogi
1
Posted Mon 22 Jan 2018 7.14pm by DodgeWC51
1
Posted Tue 23 Jan 2018 4.54am by Cazzy27
Posted Wed 11 Apr 2018 11.17am by Bethkin
Posted Wed 11 Apr 2018 9.23pm by DodgeWC51
Posted Wed 11 Apr 2018 9.44pm by Bethkin
Posted Thu 12 Apr 2018 4.35am by DodgeWC51
Posted Fri 13 Apr 2018 10.02pm by Heidiloobylou75
Posted Sat 14 Apr 2018 6.46am by DodgeWC51
Posted Sat 14 Apr 2018 10.47am by Bethkin
Posted Mon 18 Jun 2018 5.21pm by Holly1
Has psoriasis since 2001
Posted Mon 18 Jun 2018 8.39pm by OhNo_NotAgain?
Posted Tue 19 Jun 2018 12.31pm by Holly1
Has psoriasis since 2001
Posted Tue 19 Jun 2018 2.55pm by OhNo_NotAgain?
Posted Tue 19 Jun 2018 6.01pm by Holly1
Has psoriasis since 2001
Posted Tue 19 Jun 2018 8.38pm by OhNo_NotAgain?
Posted Wed 20 Jun 2018 0.19am by ScottishGirl
Had psoriasis for 15+ years
Posted Wed 20 Jun 2018 7.34am by DodgeWC51 (edited Wed 20 Jun 2018 7.35am by DodgeWC51)
Posted Wed 20 Jun 2018 8.02am by Holly1
Has psoriasis since 2001
Posted Wed 20 Jun 2018 11.39pm by ScottishGirl
Had psoriasis for 15+ years
Posted Thu 11 Oct 2018 10.11pm by Holly1
Has psoriasis since 2001
Posted Thu 11 Oct 2018 10.13pm by Holly1
Has psoriasis since 2001
Posted Thu 1 Nov 2018 11.15pm by Tom92104
Posted Mon 12 Nov 2018 10.52pm by Megan1998
Posted Tue 13 Nov 2018 7.58am by Heidiloobylou75
Posted Fri 14 Dec 2018 2.25pm by angrycloud
Posted Fri 28 Dec 2018 3.55pm by Ryreww
Posted Sun 30 Dec 2018 8.55am by Heidiloobylou75
Posted Mon 31 Dec 2018 3.37pm by pdr321
A long sufferer of plaque psoriasis who found an effective treatment after 27 years (blueberries). I have now been clear for 4 years.
Posted Sun 8 Mar 2020 1.40pm by JH2020 (edited Sun 8 Mar 2020 4.58pm by JH2020)
1
Posted Sun 8 Mar 2020 2.09pm by DodgeWC51
Posted Sun 8 Mar 2020 5.01pm by JH2020 (edited Sun 8 Mar 2020 5.41pm by JH2020)
1
Posted Sun 8 Mar 2020 6.31pm by DodgeWC51
1
Posted Sun 8 Mar 2020 10.08pm by DanielC
Had psoriasis since I was 17, now 50+
1
Posted Mon 9 Mar 2020 10.20am by Bethkin
1
Posted Mon 9 Mar 2020 8.54pm by DodgeWC51
Posted Mon 9 Mar 2020 9.09pm by Bethkin
Posted Mon 9 Mar 2020 9.25pm by DodgeWC51
Posted Mon 9 Mar 2020 10.05pm by Bethkin
Posted Tue 10 Mar 2020 5.23am by DodgeWC51
Posted Tue 10 Mar 2020 8.27am by JH2020
Posted Tue 10 Mar 2020 9.43am by Bethkin
Posted Tue 10 Mar 2020 10am by JH2020
Posted Tue 10 Mar 2020 9pm by DodgeWC51
Posted Tue 17 Mar 2020 7.52pm by JH2020
Posted Tue 17 Mar 2020 8.58pm by DodgeWC51
Posted Wed 18 Mar 2020 10.03am by Bethkin
Posted Wed 18 Mar 2020 10.40am by DodgeWC51
Posted Wed 18 Mar 2020 10.46am by Bethkin
2
Posted Wed 18 Mar 2020 11.37am by DodgeWC51
Posted Thu 23 Apr 2020 5.12pm by JH2020
2
Posted Thu 23 Apr 2020 7.32pm by Heidiloobylou75
2
Posted Thu 23 Apr 2020 8.26pm by DodgeWC51
1
Posted Thu 23 Apr 2020 8.49pm by JH2020
Posted Thu 23 Apr 2020 11.04pm by Bethkin
1
Posted Fri 24 Apr 2020 5.21am by DodgeWC51
Posted Fri 24 Apr 2020 8.11am by Heidiloobylou75
Posted Fri 24 Apr 2020 8.37am by Bethkin
1
Posted Fri 24 Apr 2020 6.28pm by DodgeWC51
1
Posted Mon 31 Aug 2020 0.57am by JH2020
Posted Mon 31 Aug 2020 8am by DodgeWC51
Posted Tue 27 Oct 2020 9.55am by Breannacourtneyy
Hey guys! Iv been reading this thread and y’all have really calmed me down that’s for sure lol! I have extreme anxiety especially with taking pills and I’m definitely a hypochondriac when it comes to swallowing medication 😅 i got diagnosed with eczema and psorasis at 16. Never once had any huge flare ups though until about 19 years old. Was told it was an allergic reaction though so I didn’t think twice about it. They gave me a steroid injection at the ER and it disappeared in 2-3 weeks 🤷🏻♀️
So after that, I would occasionally get a scale here or there but iv always had it severely on my scalp. UNTIL THIS YEAR OH MY GOD. If I could show y’all pictures on here I would! My dermatologist and doctors are going nuts trying to figure out what’s different or what caused it. There’s many theories. 2 months ago I stayed at an air b&b and I woke up in hives. Thought it was bed bugs but it was spreading everywhere so I went to ER. They told me it was an allergic reaction to something so they gave me doxycycline...my body HATED the doxycycline so I refused to finish it. Well then about a month later I ended up coming in contact with someone who had strep throat and I didn’t know. So I then developed strep 🙃 went back to ER and got prescribed amoxicillin... ended up being severely allergic to it 😩🤦🏻♀️ So I had about 2 days left of it and I could NOT take it.
Well because I didn’t finish that medication my dermatologist told me that I developed another type of psorasis from the strep which most of us know as Guttate Psorasis. My skin .. when I tell you looked like I rolled in multiple ant hills.. it was BAD. Tried multiple ointments, nothing worked. Home remedies, oatmeal baths, bleach baths, epsom salt baths, anti fungal baths even 🤷🏻♀️ my skin wouldn’t budge.
(I promise there’s a reason this story is so long lmao)
Keep in mind, iv never ever had this bad and long of a flare up. It traveled all the way up from toes to cheeks! So I went to the ER again because I was desperate and my skin was starting to burn actually.. so I convinced the ER doctor 2 weeks ago to give me another steroid shot since it worked so well for me at 19. (I’m 27 now) - DID ABSOLUTELY NOTHING.
I marched back up to my dermatologist next morning almost in tears because this was taking over my life! I couldn’t even hide it anymore with clothing at work. SO she prescribed me triamcinolone acetonide cream 0.1% and OH MY GOD this is by far a miracle ointment! It’s been 4 days and my back which was COVERED is now pretty much cleared. My legs are taking a bit longer but it’s definitely working.
I was supposed to only use this ointment to hold me over until my lab results came back to get approved for Cyclosporine. Well I’m supposed to start it tomorrow (6 pills in the morning and 6 pills at night 300mg for 3 months) and now I’m sort of wondering if I should wait a little longer to see if this ointment clears me first? Cyclosporine scares me. The side effects are really extreme and me being nervous just taking an Advil.. would prefer to not be on cyclosporine if possible.. however I’m afraid that if I don’t take the cyclosporine then this will come back in full force.
I was warned by my pharmacy, doctors and dermatologist that this medication can lead to death if not monitored religiously. Which honestly makes me feel like it’s not worth it.
I just recently lost 140 pounds so weight gain side effect scares me. I worked really hard to lose this weight. And hair loss on head and growth everywhere else?! Heck no!! The swallowing I’m reading that some of y’all are having trouble with and sore throat ?.. actually terrifying let’s be real for a second.
Who has taken a dosage as high as I was prescribed of cyclosporine who also has extreme anxiety like me? I need YALL to tell me what’s really going on 😂 the reviews are great here but the reviews iv read elsewhere are terrifying 😩 halp!
Posted Tue 22 Dec 2020 10.22pm by Jenora
Posted Tue 22 Dec 2020 10.40pm by DanielC
Had psoriasis since I was 17, now 50+
1
Posted Wed 23 Dec 2020 4.03am by DodgeWC51
1
Posted Wed 23 Dec 2020 7.23am by Jenora
Posted Wed 23 Dec 2020 7.51am by BGFC
Posted Wed 23 Dec 2020 1.37pm by DodgeWC51
Posted Wed 23 Dec 2020 2.11pm by Jenora
Posted Sat 2 Jan 2021 7.23pm by Jenora
Posted Sat 2 Jan 2021 7.55pm by DodgeWC51
Posted Sat 2 Jan 2021 8.30pm by Jenora
Posted Sat 2 Jan 2021 11.17pm by DodgeWC51
Posted Thu 7 Jan 2021 7.17pm by K
Posted Thu 7 Jan 2021 7.48pm by Jenora
Posted Thu 7 Jan 2021 7.49pm by DodgeWC51
1
Posted Thu 7 Jan 2021 8.12pm by DodgeWC51
Posted Thu 7 Jan 2021 8.17pm by K
Posted Thu 7 Jan 2021 8.24pm by K
Posted Fri 8 Jan 2021 4.37am by DodgeWC51
Posted Fri 8 Jan 2021 1.24pm by Jenora
Posted Fri 8 Jan 2021 1.52pm by DodgeWC51
Posted Fri 8 Jan 2021 1.55pm by DodgeWC51
Posted Fri 8 Jan 2021 3.53pm by K
Posted Fri 8 Jan 2021 5.10pm by Jenora
Posted Fri 8 Jan 2021 5.31pm by DodgeWC51
Posted Wed 13 Jan 2021 2.10pm by K
Posted Wed 13 Jan 2021 2.21pm by DodgeWC51
Posted Wed 13 Jan 2021 9.14pm by Jenora
Posted Wed 13 Jan 2021 9.26pm by DodgeWC51
Posted Sun 17 Jan 2021 6.44pm by Jenora
Posted Sun 17 Jan 2021 8.51pm by K