UVB unit for home therapy.

Hi. Are these beds like the sunbeds,or is it like the philips uvb light you hold in your hand Colin

Mine is a sunbed. it has 9 Phillips Tl01 uvb tubes, http://www.skinmattersbristol.com/9_Lamp_UVB_Narrowband_Phototherapy_Unit3.html

Hi, I was going to purchase one of the hand held ones are they as effective?

As far as I know its not suitable if you have it all over your body as it only covers a small area. so would be very time consuming.

Just to update everyone. I have been using it every other day since I purchased it, My psoriasis is nearly cleared. a small bit on my elbows these were really thick plaques, but all other patches have cleared I am delighted with it.

Hi I received my bed Philips 9 tube tl01 bed about 3 weeks ago, the dermatologist would not refer me to the hospital, basically i wasn't covered enough, this was last year, I did my research and found the bed on line, I asked the dermatologist and showed him the Philips bed, he told me this is the tube the hospital use, begging of this year my skin had a nasty flair up, I was not going down the rout of referrals, it takes far to long, so I looked in to buying the bed, I did read up a lot befor I bought it, I am absolutely amazed at the results, the doctors told me I had had a virus, which I had had a nasty cold, she told me I had had a break out of tear drops, (I also do suffer with psoriasis) , which were all over my back and arms, this spring there was no way I could were a t shirt, I use it every other day, for 70 seconds on the front and 70 seconds on the back, Iv been on it 13 times, I was advised to start at 30 seconds and add 10 seconds on, I'm hoping in the next few times I will have a break form it, and see how I get on, it was a lot of money £1360 I was very sceptical if it would work, but I can honestly say, it has, im amazed at the results, and so are the few people who I should my skin to prior to purchasing the bed, if you need any more advice, please ask, I hope this helps you

Hi Jackie and Summer, I too have purchased the 9 tube TL01 tube sun canopy and can't wait for it to be delivered, will report on how I get on, hoping I will have the same results as you, I am currently covered head to foot with plaque. Going on holiday Sunday, so hopefully won't be mistaken for a big fish when swimming in the sea Lol.

Hi Tracey. I am psoriasis clear, The bed has been amazing for me, I am currently only using it 2/3 times a week just to keep it at bay. I have been using the body shop hemp cream moisturiser as well as I dont like the creams the doctor prescribes, I find that to be the one that works for me & my skin. I hope you have the same results, it is slow in the beginning it took me a couple of weeks to notice the difference but 8 weeks in and I am clear. Good Luck, Enjoy you're holiday.

Hi Tracey I'm sure you will get brilliant results, had my bed may16th, Iv used it every other day in total 16 times, starting at 20 seconds and adding on 10 seconds till I go to 80 seconds, front and again on back, People who I had show my arms to before the bed, can't believe the results I have had, my body is now clear, I'm sure it will come back, then I will ha e to get back on it, hope you too get great results, & im sure the sun will be a great help Enjoy Summer

Hi all, Where do you buy replacement Phillips Tl01 uvb tubes?

Hi Krag87 When I have to replace mine, I shall go to MBS that's where i purchased it, I think they are around £70.? Per tube.

Hey you, So pleased that you have good results, but have you seen the new Philips blue light therapy unit ?????? No nasty uva/uvb rays and results have been amazing !!!!! I have just bought one on a 90 day free trial so i will keep you informed of its results hun x Mel Wilde

Hi everyone this is the first time on. I'm a 51 yr old male ive suffered with this awful condition for about 7 yrs now ive tried all the creams oils moisturizers etc the only thing that worked for me was the uvb treatment that was through the nhs unfortunately my P returned but for the 2 or 3 months after the uvb treatment I was P free such relief even for a short time I felt "normal" it was great. Ive recently ordered the uvb lamps to use at home and can't wait till its up and running

Hi, glad you decided to purchase the lamps. I have had great success with my bed. I haven't used it for a few weeks and I have a few bits on my elbows, dont want to use it if I dont really need to but with the moisturizer I use it reduces it too. Its all about finding out what works best for you...... The light treatment will help though, hope you have the same results, keep us updated. Jackie.

Hi All, I bought http://www.treatpsoriasistl01uvblamps.co.uk/index.php/3 (Philips 9 tube tl01) and started treatment on the day it was delivered - 28 Sep 2017. I have had moderate to severe psoriasis (head to toe; back, front and sides) for just over 30 years (I am 60). I had hospital based UVB treatment several years ago which did work well but was really inconvenient - a one hour round trip every two days for a treatment measured in seconds anybody? My dermatologist (at the time) was not a fan of UVB treatment and he discontinued my (NHS hospital) UVB treatment in favour of methotrexate which worked when I took it - but I could not cope with the "zero alcohol" regime that came with it and I reverted to "creams" which (for me) did nothing but "keep the weeds down". I only recently discovered that machines using "hospital grade" UVB tubes were available for home use. At hospital, I had used a "walk in" unit (four sides treated at a time) but such a unit (even if I had space for it) was very expensive. I went for the above unit (also quite expensive) which I use "standing up". For each session I calculate the total time due for "both sides" (i.e. start low and add a bit more every time until you hit the max for your skin type) and I do a quarter turn every 10 seconds (a bit like a vertical hog roast) protecting my face which is thankfully not affected (of course also wearing dark goggles and socks over my "man bits" which other gentlemen who have had hospital treatment will know all about). It always makes me laugh to imagine what people would think if I suffered a (co-incidental) fatal heart attack when so attired! I keep a record of exposure and being "skin type 4" I was happy to "start low" on 28 Sep 2017 (at "40 secs per side") and "go max" on 28 Oct 2017 (I use the machine every other day). As of o6 Nov 2017 (nearly 7 weeks in) my skin is "near normal". You can certainly still see where the psoriasis "was" (the skin is relatively dark - but it is flat and smooth) and some patches "persist"; relative to the rest of my body they are not yet quite "flat and smooth" - but they are not "scaly or flaky" either. I did notice some "itchiness" a couple of weeks in but this did not bother me because I had experienced this before (during NHS treatment). It soon passed (for me). My core regime (not that I don't wash at other times) is to have a long, hot shower every other day and scrub off all the dead skin (mercifully less every time) and wash my hair with (coal tar based) shampoo: https://helloskinshop.co.uk/products/artnaturals-argan-oil-shampoo-473ml I then do the UVB thing and apply (coal tar based): http://stores.ebay.co.uk/marketingnewyork/?_dmd=1&_nkw=mg+217 I have no connection with any of the above suppliers - over and above being a customer. It can't be cured but I wish you improvement... Simon

I am interested in your posts Simon and Tracey. Are you both in the belief that exposure to UVB for 70 seconds until the psoriasis disappears. No further increase in exposure times and every other day. I have just got the same unit and would be happy to follow this routine. Have these timings increased and have the psoriasis diminished in this course if treatment.

Are any of the original posters still live on this forum?

Yes I am.

Yes I am.