Palmoplantar Pustulosis Psoriasis
Posted Thu 30 Jan 2020 12.20 by heikefa
I suffered from psoriasis palmar-plantar for 10 yrs. Tried every cream out there, did PUVA light therapy in-patient...all did not help. Finally, I found a psoriasis specialist in Germany. Although I did not expect him to be able to help, (my last dermatologist told me to get used to it as there is no cure) I went anyway. He gave me an expensive medication called Otezla. 15,000 Euros per yr. My insurance covered it and low and behold - my hands and most of my feet blisters have cleared after 3 months. It's not perfect yet, but I am hopeful. I still have rough areas that are red and look like dry skin. I have also contracted Psoratic Arthritis and this medication helps counter this too. Don't give up. Keep seeing specialists and ask about Otezla. Side effects include, in my case, a bit of weight loss due to bowels being moved frequently. A bit of a pressure headache is felt often. Considering the benefits, I am sad this medication was not offered sooner.
Posted Thu 30 Jan 2020 15.56 by Helsbells
This is such a soul destroying illness,I just cant believe what is doing to me as a person.This all started 2 years ago I tried lots of creams a the puve light treatment with no relief.Last year I took the plunge and went on Cyclasporin,omg amazing the whole cleared up it was like a miracle,but the the consultant said it was effecting my kidneys this was shown through the blood test I had to immediately stop it I was gutted.A couple of months went by and it all came back.I was devastated.It was suggested I tried Accretin my hands have cleared up but my feet are so sore I can barely walk,they dont look as horrendous as they did and I haven't got the thick skin and splits but my skin seems so thin on my feet it is very very painfull to walk and the skin is very sore and bleeds.I try to ke ep cheerfully as I no there are alot of people worse off and dying,but this is like being tortured every day and night.Sorry to sound so dramatic,but I wouldn't wish it on anyone.I got told by dr Tang Shim at Coventry University hospital England to basically manage it.Thanks
Posted Thu 30 Jan 2020 16.09 by Bethkin
Heikefa was otezla available in the UK? I will have to look into this!
Helsbells I’m so sorry to hear this! I am exactly the same and have had the same treatment as you. I’ve had it for around 2 1/2 years now and ciclosporin was doing wonders but my kidneys didn’t like it. They moved me to methotrexate but now I’m getting big boil like cysts all over my face! Very sore inflamed and red and on top my feet are literally open wounds! So sore to get shoes on and off and walking around is constant nightmare! I’m only 27 and am considering having children soon so I’m seeing my consultant on the 11th feb as I don’t want to continue methotrexate if the boils and cysts on my face continue as my face looks a right mess and as a community nurse I find this highly imbarrassing seeing patients daily! I’ve also been told it’s a lifelong thing I’ll struggle with and there’s no cure but there are so many treatments to have anything is worth a try!
Posted Fri 31 Jan 2020 12.41 by Allie
I had psoriasis in my 20s and have had pustular psoriasis for 3 months which has coincided with the onset of kidney stones. At first my GP thought the stress of kidney stones was causing the psoriasis but now due to the dehydration effects, it is thought the psoriasis is causing me to have kidney stones. I have just realised the stones/psoriasis gets worse after my hairdressers appointment to have my hair coloured (dark). I started with a new hairdresser just before the first onset and did not have a patch test. (I notice there are a couple of Haidressers posting on here). Could dark hair dye be a trigger?
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