feeling misunderstood..

Posted Wed 28 Nov 2018 0.08am by Loopylou

Hi guys, hoping you might understand where I'm coming from and tell me what I'm describing is or isn't like psoriatic arthritis. and give me advice as to what to do!

If it isn't, psoriatic arthritis, I can go and look elsewhere for an explanation for my symptoms.

I have pain in my neck, both shoulders, the tendon insertions at both elbows, pain at both wrists, MCP and PIP joints, 3rd and 4th costochondral joints, My big toes are very swollen and sore such that in the last 3 weeks i have had difficulty walking and have had to buy shoes a size larger.

I have intermittent diarrhoea and dry eyes with intermittent itchy red eye.

i have an aching pain in my neck, upper arms, tenderness over my left 3rd and 4th costochondral joints, aches in my wrists, MCP and DIP joints, ankle and MTP joints.

I am constantly fatigued but perhaps this is normal fatigue of normal life???

Posted Wed 28 Nov 2018 7.24pm by OhNo_NotAgain?

In terms of looking elsewhere for an explanation, have you consulted a doctor?

Posted Wed 28 Nov 2018 9.07pm by Loopylou

sorry, my post didn't really make sense. Thank you very much for taking the time to read it and reply.

I was so upset last night, having had a difficult consultation with a rheumatologist and I was crying.

I'll start again...

I have psoriasis and one nail affected. I have had pains in my fingers and toes, neck, shoulders, wrists and ankles for about 8 years. I have had a period on sulfasalazine, then methotrexate, then 5 years ago a rheumatologist decided I didn't have psoriatic arthritis after all and stopped all medications.

since then, i have struggled on with aches and pains. 3 years ago I developed blood clots in the veins in my head which was unexplained (but can be caused by inflammatory disease amongst other things) and I had to have a year of blood thinners. I became deaf in my right ear, developed dizziness and loss of balance and had some difficulty finding words as well as severe migraines which have never left me.

Over the past 6 months, my joint/tendon pains have worsened. My big toes are very sore, hot, swollen and I am miserable.

I saw the rheumatologist yesterday and he says I have osteoarthritis (wear and tear) in my big toes and that I need to wear special shoes for the rest of my life and no more exercise. I think he was ready to push me out of the door until I asked him what was causing all my other pains. He reluctantly said it was possible I might have mild psoriatic arthritis.

So having said I just needed to take painkillers for wear and tear, he seemed to do a complete u-turn and say I had psoriatic arthritis after all and he might give me a biologic.

I feel he was ready to dismiss me totally, and now I feel like I've "made a fuss". Perhaps I should just put up with the pain/discomfort?

Posted Fri 30 Nov 2018 10.46pm by Loopylou

Thank you very much again for taking the trouble to reply and I will certainly try the FODMAP diet. I had been half heartedly trying it anyway but I guess you really have to do it properly to see the effects so i’ll Put more effort in.

And as for ‘making a fuss’ it’s not my thing at all but from what you say and from reading more posts on the forum it seems that a lot of people have had to push to get their diagnosis.

Thank you for your support and advice.

Posted Wed 2 Jan 2019 6.13am by sherryvan

I am wondering if I can use hot and cold therapy. some people suggest me that simple hot and cold treatments can make a world of difference when it comes to arthritis pain. I use the knee pillow to improve the blood circulation.https://www.cuou.net/knee-pillow.html

To take part, sign in or register with us

The Psoriasis Association is the UK's leading national charity and membership organisation for people affected by psoriasis – patients, families, carers and health professionals Read More >

Get in touch

The Psoriasis Association Dick Coles House 2 Queensbridge Northampton NN4 7BF

Email: mail@psoriasis-association.org.uk

Tel :
01604 251 620
Fax :
01604 251 621
Registered with Fundraising Regulator -

© The Psoriasis Association Charitable Incorporated Organisation Number: 1180666 Scotland: SC039886 Privacy PolicyCookies

Site by Spoken Image | glitterfish

We use cookies to help us provide you with a better service, but do not track anything that can be used to personally identify you.

If you prefer us not to set these cookies, please visit our Cookie Settings page or continue browsing our site to accept them.