Posted Wed 9 Jan 2019 8.53pm by Shaun
Having had 3 outbreaks in the last 20 years, 70% of my body affected. The last outbreak in 2017 the NHS was a waste of time. Went private and was put on Daximune ( lots of side affects and need to be monitored for blood pressure and liver function) I coped well and this treatment is a 100% within 3 weeks totally clear. Still on the tablets but reduced dosage and hopefully will stop within 3 weeks. Also the doctor I was under was very very positive regarding new treatments. The treatment is costing around £300 per month but nearer been so happier when you have clear skin
Posted Wed 9 Jan 2019 9.48pm by wendyloish
Looked it up as I had not heard of it. Deximune has the active ingredient ciclosporin, an immune suppressor about which much has been written on the forum.
Posted Wed 9 Jan 2019 10.02pm by Shaun
Hi yes the drug is a form of ciclosporin but worked wonders for me. Started off on 400gm ( very high dose) then after 4 weeks half the dose. If you are fit and healthy this will work for you. This treatment may not be available on the nhs but if you get referred privately they have so many new treatments available ps some can cost £10000 but at least you will be happy and clear
Posted Wed 9 Jan 2019 10.15pm by wendyloish
I am glad you have found the stream on ciclosporin. Nice to see someone so enthusiastic.
Posted Wed 9 Jan 2019 10.16pm by Shaun
Hi Wendy have you tried the treatment
Posted Wed 9 Jan 2019 10.47pm by wendyloish
No. I am trying to control symptoms, mainly psoriatic arthritis and spondilitis (psoriatic arthritis in the spine) by a diet called FODMAP that eliminates inflammation causing foods. This diet is designed to control irritable bowel syndrome, another one of my autoimmune problems. I eat a diet high in gelatine to control the psoriasis in my nails (works more or less). I take vitamin D supplements and spend time in the sun for my skin. (I live in Australia) And I use topical ointments and shampoos for the affected skin areas.
it is of course all a holding pattern. Not a cure. And at the moment it is working. But my face is not good, as every time we have a heatwave my face gets worse. So summer is a problem for me, and we here are just moving into that now.
I keep up with the various medications available, as I am a realist, and know that at some stage I may need something besides diet. If and when I do I will be able to be part of an informed decision making. Here's hoping that time does not come!
I like enthusiasm and a positive attitude and try to maintain them myself.