Posted Tue 5 Feb 2019 2.45pm by hannahmo
18 years old and I've had psoriasis since i was 14 :)
I'm currently having a really bad flare up of my psoriasis - it's covered my whole scalp and around 80% of my body. I'm struggling to 'cope' with this and its resulting in me having breakdowns every night. I've tried different things to soothe and calm myself down, such as having a bath and having candles and my music on, this seemed to calm me down but as soon as I got out the bath and saw myself in the mirror, I started to shut down and I just cry my eyes out. I've started to notice people looking at me at work and whilst I'm doing anything in public - this is really getting me down. I don't know what to do anymore, any ideas??
Posted Sun 10 Feb 2019 0.36am by Jeannette50
Ask your GP for referral to hospital dermatology specialist - sounds like you are a candidate for phototherapy. Good luck, don't despair.
Posted Sun 10 Feb 2019 1.20am by Charlyg
I’m in exactly the same situation as you at the moment. Get referred to the dermatologist as soon as possible the wait is long. but If like me there is so much and especially on your scalp they are able to prescribed immune deppresents that help deal with the symptoms. I’ve just started mine and it’s the first time in months I’ve not felt trapped in my skin. I’ve tried everything and nothing else has even remotely worked for me.
In the mean time I would try the different ointments Avalible from the gp to help manage it.
It really gets me down too and I’m always trying to find ways to cover it. There are lots of people on instagram sharing their pictures and stories about psoriasis and I find this really helpful being able to see how other people are able to embrace it.
Posted Sun 10 Feb 2019 9.10am by AndyR
I was the same, constant itching and flaring up in different places,
I suffer from Psoriatic arthritis,
so speaking to the consultant I mentioned this, she referred me to dermatology, I was hopeful but didn't think there would be anything available to stop this, within 10 minutes she took a look at my knees and elbows, and prescribed Enstilar foam, I said, will it ease the itching? she replied it will clear the psorisis.
well amazing! releif strait away, I am on week 4 of a 6 week course, I am just watching it disappear.
After the course I will be using it as and when required.
Posted Sun 10 Feb 2019 6.59pm by AlyvK
Hi. Brand new to this association but hope to find it useful to chat with people suffering similar like me.
First off had flaky hands and feet in 2006 doe a couple of years then nothing until a couple of years ago and had a elbow soft tissue injury. That started my journey. Doctor diagnosed psoriasis. Gave me various creams and ointments.
Now it’s spread to arms and upper body.
Using a combination of calciprirol (?) cream, childs farm mosituriser and bee propolis orally and as a cream.
What else do you all use that could work. Can’t get a doc appointment for 3 weeks atm! Thanks for any advice and hope to maybe share some too in the future. 😃
Posted Sun 10 Feb 2019 10.54pm by Abbleighxx
Ah it’s difficult each day living with psoriasis! People looking and commenting really annoys me!! So had my little boy 4 weeks ago tomorrow! And I just came out with this rash all over me from head to toe about 2 weeks ago so I was using e45 trying to clear it up, so ended up going to see gp and now Iv Just been diagnosed with Erythrodermic psoriasis have an emergency appointment on Tuesday! Has anyone on here experienced this type before??? Xxx