My story

Posted Sat 4 Jan 2020 6.27am by Gary

Life is really rotten with this condition. I developed an outbreak on my index finger 5 years ago when my marriage broke down and now I only get to see my boys at weekends. The condition worsened when my mam passed away last year and now it is having a major impact on my job as a nurse. The area has grown to include both hands neck chest and arms. Nothing appears to help. Steroid creams just appear to accelerate the itchy areas, there is a constant burning and itchiness and small cuts are painful. Any advice on treatment will be gratefully received.

Posted Sat 11 Jan 2020 4.20pm by Gary

Thanks for nothing no one wants to help no replies

Posted Sat 11 Jan 2020 6.25pm by FairyDust (edited Sat 11 Jan 2020 6.27pm by FairyDust)

Hi Gary sorry to hear that. But I can totally relate to what you are going through. My psoriasis came out all singing and dancing when my parents suddenly separated. It was all quite traumatic and on top of everything else I had to deal with painful flakey skin. Not good.

Please discuss with your GP or hospital dermatologist the possibility of starting biological therapy. This is what I’m on now and there has been a massive different to my skin. Lifestyle and above all mental health. Remember you are not alone in this. Hope things Improve soon

Posted Sun 12 Jan 2020 6.12pm by Gary

Hi thanks for replying. At least someone cares. Can you explain more about biological therapy? Im sure my doctor wont have a clue. Just keeps prescribing steroid creams that worsen my condition.

Posted Mon 13 Jan 2020 11.40am by PsoAdmin (edited Mon 13 Jan 2020 11.41am by PsoAdmin)

Hi Gary,

Sorry to hear you are having a hard time with your psoriasis at the moment, it must be really difficult, particularly with your work being affected.

If you would like to talk to someone for one on one support and advice we have a helpline which you can contact. You can get in touch by phone on 01604 251 620, email on mail@psoriasis-association.org.uk or WhatsApp on 07387 716 439. I hope this helps!

Amber,

Psoriasis Association

Posted Tue 14 Jan 2020 11.27pm by Lasttime

Take a read here biological therapy take a look at other pages

https://www.enbrel.com/plaque-psoriasis/about-enbrel-for-pso

Posted Tue 21 Jan 2020 3.16pm by Bubblefish

Hi Gary

Can totally relate to how stress and loss can make the condition worse. I've had my ups downs and further downs and it usually follows that it gets worse at those times. Though it can flare up for no obvious reason too but I find that rare.

My experience over the last 37 years, I started with psoriasis at 5, where a GP is concerned is that they tend to follow a very small rule book with equally small options as to treatment. Why would they do more after all I doubt they've a UVB machine tucked away so they are going to be limited. I usually find that if the go to treatment isn't working a referral to a dermatologist is necessary. I've had to wait months but I've also had one the next day due to it being so bad.

Steroid creams are usually reasonable I find at getting a bad outbreak under control but once you stop it often returns with a vengeance. Everyone thankfully is different.

I can't offer advice on biologicals as I've avoided these purely down to choice but as I get older iam open to reconsidering them. Don't get me wrong, I doubt the answer lies solely with a dermatologist, they at least have options that may make things more manageable.

Sadly as you no doubt know there's no cure but half the battle is dealing with how you feel and how it makes you feel. I've tried various things including counseling and acupuncture and have found a combination of different things helpful. I've just started eating blueberries, I'm willing to give most things a go now.

Currently I have extensive psoriasis over most my body, I'm using creams of different types, cetraben and similar to ease the cracking and dead sea salt baths. It's a constant repetitive routine of applying something depending on how that part of me responds. But I know that it will respond after years of cycles of awful, improving and there but less noticeable. It's a case of finding what works for you. Try and get a referral if you haven't already.

Wishing you the best of luck

Helen

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