Posted Tue 14 Jan 2020 7.40pm by Everydaynormalguy
Hi all I hope someone can help me please , I will try keep a long story short (ish) but iv been suffering with joint pain due to psa for about 6 years , I was working full time and nobody looked into the cause of my pain , every time I managed to get time off work to see a gp they just give me painkillers and that was that , each one put it down to wear and tear even though I’m only 30 lol. I recently had to quit my job as it was getting too hard for me to deal with the pain and exhaustion .I recently see a rheumatologist and he says there is 99.9% chance I have psoriatic arthritis and that would explain how iv been feeling for last couple few years . Im just wondering if some people can share their symptoms with me ? Because My fingers and certain joints swell up and hurt after using them , also my hips after walking and using them are really painful and I struggle to walk , but then some things can hurt after inactivity or randomly ? Is this normal ? As I’m struggling to find the right balance , I understand exercise is good but after walking my hips are really painful , i thought psa pain was worse with inactivity ?
Posted Wed 15 Jan 2020 9.27am by PsA@32
I can certainly relate to this. I am now 35 and was suffering the same symptoms as you. Getting up in the mornings was a real struggle and even getting to the office from the car was a feat! It took a while to be referred to a rheumatologist who diagnosed PsA and proceed to try me on a number of treatments (methotrexate etc) which didn't really make a difference. I was finally given a biological treatment called Adalimumab and this has changed my life to be honest. I can do things and move around. I still have some joint pain and flare ups and get exhaustion - but at least I can get out of bed!
Work is an issue - before I was diagnosed I was taking time off, even signed off by the GP for a month. This just leads to feelings of guilt and that I am a burden to the work place. I am currently contracting and looking to what my next move will be this year. i have considered applying for PIP payments to help me with where I struggle.
Keep the faith, there are good treatments out there, its just playing the game to see what works for you. The fact you have been referred to the rheumatologist is a good and important step and will mean you are on the right track to managing the condition.