Could anyone help with a 7 yr old?

Posted Sat 27 Jun 2020 9.57pm by HP

I have a 7 year old with psoriasis, 1 of her sisters and 1 of her brothers have it too, much they were much older and it was milder.

It’s scaring me the extent to which it’s developing, it was just elbow creases but now only her hands and feet are completely unaffected. Most her upper arms are covered, it’s spread into 2p sized patches over her forearms and her legs are overall around 30% covered. Her scalp is almost entirely crusted.

We’ve tried a few things but the overall problem is the spread.

She’s been confident but it’s now at the point where it attracts looks and comments very quickly if we are out. Often have you tried....

We’ve tried various ointments with no significant affect and now Enstilar. It seems magical, but I am worried with her age and this and also the ‘what next’ issue. Last year sunlight was the magic cure, her siblings resolved in the summer, but it’s had no affect this year. It’s recently become more itchy and flakey and bothered her more, last year it was more cosmetic.

I’m waffling but has anyone else dealt with it at a young age? How do you manage when so much is potent for a (very tiny) 7 year old?

As an additional complication she has autism, which largely manifests as a dietary issue-a very restrictive diet and dislike of food. She is more 5/6 yr old sized. So diet solution options are very difficult.

I’d love to hear from those who either support a young child or managed it as a child.

Thank you

Posted Sun 28 Jun 2020 1.02am by FiandStormT
I am a mum of a daughter who has psoriasis

Hi

My daughter has been suffering since she was 7 too and is now 10 (about to turn 11)

It is all over her body and scalp. The only place she hasn’t had much is on her face, arms & hands.

She’s had steroid creams pretty much every day since the beginning. She’s had UV light therapy and taken methotrexate too. We are currently using Enstilar and double base on her body.

I wish I could tell you that there is a magic cure but I’m so sorry to say I can’t.

It’s so hard watching our children suffering with psoriasis. It’s not fair.

I wish I could take it away from them so they don’t have to go through it, as it can be so uncomfortable, itchy and sore for them.

Our daughter also has hyper mobility and suffers from stress & anxiety which doesn’t help either. Whilst she hasn’t been formerly diagnosed, she has autistic tendencies too. All I can say is we’ve been trying to give her as much love and reassurance as we can. We tell her how amazing she is just the way she is, which I’m sure you are doing too. It is so hard sometimes and I must admit I still wake up every morning and my first thought is wondering what will her skin look like today.

I asked our GP about whether the steroids will have an affect on her development & the ability to have her own family. They tried to reassure me as much as they can, but nothing is guaranteed.

Last summer nothing seemed to help even with sunlight, but this year it seems to have helped. I wonder whether our daughter’s age and if she is beginning to hit the age of puberty is having an impact. Our GP says that hormones can definitely have an impact with psoriasis, so maybe this is the beginning of an improvement for her.

I have started to give my daughter some supplements to help with her immune system and I wonder if that is helping too. They are aloe vera based products.

What I’m saying probably won’t help, but I just wanted to let you know you’re not on your own.

Take care & sending you and your daughter lots of love and hugs x

Posted Fri 3 Jul 2020 12.21pm by ASH

Hi,

I have had psoriasis since I was 2, I am 40 now. I remember the comments as a kid and being covered in tar like creams etc.

I still have it and am currently experiencing a bad flare up its a chronic condition unfortunately!

I would say I am a confident person now and the psoriasis has not affected me other than to have perhaps more empathy and to be more sensitive to others. The comments bothered me a bit As a kid and I was shy so did get embarrassed. They were infrequent though and tended just to come from the ‘naughty boys’ in the class who would say stuff to well get a reaction, I ignored them and they stopped very quickly,

From my mid 20s I got more confident and now I just explain things if anyone asks about my skin (it very rarely happen now though)

I think that the most important thing is to get her mentally strong. If she has autism this may be more difficult but getting all our youngsters to recognise that what we look like is the least important thing compared to intelligence and personality traits I think is so so important.

In terms of treatments there is no link whatsoever with diet and psoriasis unless she also has coeliac disease. Then a gluten free diet may help a tiny bit. If she does not have a gluten intolerance it will be of no help. Psoriasis is an autoimmune disease and often genetic so do not worry about her diet or feel that you are doing something wrong by not getting her to eat certain things. You are not.

The only things you can do to try and minimise flares is to minimise stress, ensure plenty of sleep, try to keep her healthy as much as possible to avoid infections as these can all exacerbate the condition. Even if you do all these things likelihood is the psoriasis will still be there however!

Have you seen a dermatologist? If she has moderate to severe psoriasis UVB phototherapy usually works amazingly well. And often will clear things for sometime. I have reached my quota on this now having had a number of light treatments over the years but it cleared it up every time for me. its 6 weeks of treatment 3 times a week so time consuming but I achieved 100% free psoriasis each time,.

I personally found aveeno worked better than any other topical creams (though stopped working after a few years). The steroid creams etc thinned my skin but rarely did they make much difference. They tended to have an effect for the first 2 weeks of using then the psoriasis would start to flare up worse than it was before starting them,

It is definitely worth keeping a diary to see if the creams are actually helping. If the steroid ointment is not helping stop it it does thin the skin and a lot of doctors do not realise how strong the steroid in dovobet is. There is no long term risk known for topical treatments in terms of growth, child bearing etc. It’s more the thinning of the skin which can cause problems in later life.

Try not to get your daughter involved in this too much though and I’m sure you are doing this already but never let her realise it is effecting you. It’s not nice but there are way worse things people can have and its never stopped me from doing anything I want to do.

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