Convinced I have PA. Very scared - please help

Posted Sat 30 Jul 2016 8.47am by Bevvy
8 months

I am a woman of 55. Eight months ago I was diagnosed with severe PPP, scalp and nail psoriasis. It's beginning to clear on my hands and feet but the nail impact has been severe and I have lost all 20 of my finger and toenails. All I have left are short yellow stumps.

Six months ago I developed an agonizing pain in my right knee. My GP gave me a steroid injection and this eased it but then I began experiencing the same pain in my left knee. Again I was given a steroid injection. A month ago I developed dreadful pains in my right heel which has been diagnosed as achilles tendonitis. Basically, I am losing my ability to walk. The pain in my heel is so bad that I can only manage about 400 yards. I have had XRays, bloodwork and an MRI scan which showed a torn miniscus (cartilige) on one knee. My derm is adamant that I do not have PA and that my symptoms are due to torn miniscus and can be fixed by surgery - she told me I would have swollen fingers and or toes if I had PA. My instinct is that this is rapid progression PA - especially due to the severity of my nail impact. My life is getting narrower and narrower as I can hardly walk and can no longer go to many of the places I enjoy as I struggle to use public transport. Today I have noticed a painful swelling on my palm at the base of my index finger that has come up overnight.

I would really love to hear what other members think. My instinct that this is PA is so strong yet my rheumy (and a physio) I saw last week are adamant that it isn't. My derm prescribed Ciclosporin last week but haven't taken it yet as worried about the side effects of immunosuppressing drugs. But coming to the conclusion that any side effects would be a walk in the park compared to only being able to hobble a short distance. Please help or share your experiences. I am very scared that I seem to be becoming disabled very quickly. Thank you all.


Posted Sat 30 Jul 2016 1.19pm by Kim

HiI have just been diagnosed with PA after a year of being under the orthopedic department due to swollen fixed deformity in my left knee. Had an arthroscopic investigation for the same as you a meniscus tear but nothing came from that or MRI. I have similar problems with my nails and have sore wrists neck hips and also my right knee is starting to hurt. I am just waiting to start some medication I do think it is worth you pushing this with your rheumatologist as I have been waiting years for my aches and pains to be recognised

Posted Tue 10 Jan 2017 11.03pm by Hector23

Certainly sounds like it to me!

I had exactly same symptoms as you. All my toenails fell off, I got agonising bilateral Achilles tendinitis, and then swollen toes.

I was ignored by doctors for over a year, until my inflammatory markers shot up.

Ask for a second opinion!!

Posted Wed 19 Apr 2017 6.20pm by ohwell

Look people don try to change what you don't understand.The doctors don't know, Because f§

Posted Wed 19 Apr 2017 10.06pm by Laura may

I can't tell you how awful I felt for you. I dont have pa or nail loss but i do have severe psoriasis and I can say that ciclosporin has changed my life... I had absolutely no side effects other than swallon gums and it cleared my symptoms entirely. I know it is different for everyone but I honestly think take the medication and I hope it helps you as much as it did for me.

Posted Fri 19 May 2017 10.50pm by ereading89


I have just been taken of methotrexate the injection. And I have had a bad flare up. I have guttate psoriasis. They are now wanting me to try PUVA but I know it will flare up again after a few months. Alot of creams don't work, steroid and dovobet. Consultant said I am not severe enough to try Biological drugs. So looks like I will have to try everything first before trying biological drugs. I have tried cutting out dairy, quit smoking, hardly drink and dieting and still no change. Just got to keep going on at your consultant and make them aware how much its affecting your life. Good luck.

To take part, sign in or register with us

The Psoriasis Association is the UK's leading national charity and membership organisation for people affected by psoriasis – patients, families, carers and health professionals Read More >

Get in touch

The Psoriasis Association Dick Coles House 2 Queensbridge Northampton NN4 7BF


Tel :
01604 251 620
Fax :
01604 251 621
Registered with Fundraising Regulator -

© The Psoriasis Association Registered Charity: 257414 Scotland: SC039886 Privacy PolicyCookies

Site by Spoken Image | glitterfish

We use cookies to help us provide you with a better service, but do not track anything that can be used to personally identify you.

If you prefer us not to set these cookies, please visit our Cookie Settings page or continue browsing our site to accept them.