Protopic - long term

Posted Fri 13 Jun 2025 20.01 by Jo Bailey

Hi. I am trying to find out if people end up using Protopic successfully long term as maintenance for facial psoriasis. Currently steroid treatment has resulted in the worsening of lesions and after 3 days stopping the treatment it comes back with a vengeance. The suggestion to move to Protopic is worrying as the same may happen again, and I cannot see a time when Protopic could only be used twice a week to keep it away. Or is Protopic good at keeping it away for longer? What are people’s experiences? Is this just another sticking plaster that can’t be maintained? I am also aware of all the concerns about long term usage and black box warnings. Another worry as well as the forums reporting withdrawal side effects despite it not being a steroid. Thanks for any feedback on the use of Protopic for the face.

Posted Sun 15 Jun 2025 19.34 by Jo Bailey

I have had no replies. Is protopic rarely used for facial psoriasis? I have had two dermatologists recommend that we have to try it. Any experience of this product for psoriasis recently? And it’s successful use for long term management.

Posted Tue 24 Jun 2025 19.16 by jonc

I started using it recently for facial Psoriasis with good results so far. Once completely cleared I will try a maintenance schedule of application twice a week. I don think there are any implications of long term use, but it is known to cause liver issues when taken as a tablet so I don't intend to use it forever.

Posted Thu 26 Jun 2025 16.45 by Jayxx

Hi, I've used it on my face before and I still use it on other parts of my body to keep. The dermatologist recommended this for my face as non-steroid and won't think my skin. I used it twice a week for a while then reduced to once weekly and then every other week before stopping and luckily, it hasn't re-appeared for a while but normally, once a year it will return and I get it back under control. Of course, your Dermatologist may have different regimes for you but that's what I followed. I had no withdrawal symptoms or rebounds either I have always been told to avoid the sun when using Protopic so I also use SPF too. if I'm using this, only because I'm really cautious and I don't know how much sunlight is dangerous with Protopic.

Posted Wed 2 Jul 2025 15.27 by Martyka_95 (edited Wed 2 Jul 2025 15.28 by Martyka_95)
Spaniard navigating the UK weather

Also using protopic on the back of my ears 2wice a week. I rather have the black boxes with that, than going to ciclosporine or mtx, biológics etc. In my opinion protopic is better on keeping at bay than steroids, when using steroids I agree it comes back with vengenance. I would love to hear other peoples stories with this.

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