Psoriasis and links to IBS/IBD/CROHNS etc

Posted Sat 13 May 2017 18.11 by sasha1970

Hi, I have PA. I suffer terribly with diarrhoea, have done for years and after countless Colonoscopies, Endoscopies, Capsule Endoscopies, blood tests, examinations there is still no definite answer as to why I have it to the extreme I do. They have rules our Crohns and Colitis. After one endoscopy they said my bowel was covered in psoriasis lesions but another then said I had ulcers in my bowels. My life is not my life anymore, I've stopped socialising at work and with family, no longer go for days out as it means planning my journeys by the toilets I can stop at and bringing an adult version of a nappy bag with me for when I have mishaps. Its come to the point that I can no longer cope and if I do want to go out I don't eat until I am home again, as you can imagine family meals out are a treat…..not! Normal over the counter medicines do not help, the prescription medications Ive tried so far do not work and there are days where I am taking up to 12 modicums just to stop me from going to the toilet. I was wondering if there is anyone that has a similar situation to myself, if so, could you share what diagnosis has your specialist/GP given you, medication you are on and if you have thought about having a colonostomy bag - this is something that I have been thinking more and more about. Thank you for reading.

Posted Wed 21 Jun 2017 12.41 by Sheila54

My daughter has had crohns since she was 7 she is now 28, my son was diagnosed with crohns when he was 11, he passed away from cancer at the age of 26, 5 yrs ago. I have had psoriasis since I was 3, I am now 54. There is a definite link between the 2 conditions because they are both auto-immune diseases. My daughter has a colostomy and has had for 7 yrs now, best thing that happened for her. I would suggest you go back to your dr and discuss all options available to you, don't let it become your life, you deserve better, take care.

Posted Mon 28 Nov 2022 16.31 by Hope

Hi, I just thought I would reply to this - just got my PsA diagnosis now after 4 years of swollen ankles and 2 years of the rash on both legs. I’m new to this forum. I’ve had IBS since childhood, but it flared badly during my teens, calmed down a bit then came back really ba£ly around 2006 and got steadily worse. I so identify with your symptoms and how it makes you feel. It can restrict your life a lot. If I was working I didn’t dare eat till I came home, sometimes I had work or meetings in the evenings too, and 2as often starving but not by choice. Like you, I had all the tests you mention and have literally tried everything, FODMAPS, you name it! Still struggling with it. I’m glad a steroid injection has taken down my swelling, just getting used to my new small feet and thin ankles! But I’d put up with it again if it would cure my gut problems. It’s not a thing you can easily talk about. But it’s like living with a stomach bug every single day. On a happy note, research is getting closer to finding answers. Let’s continue having the capsule endoscopies every few years, as psoriasis sufferers have a greatly increased risk of developing Crohn’s, and I’ve read that psoriasis actually starts in the gut. I hope that you, and everyone else out there with this problem, find relief and answers soon. Surviving and managing this is an achievement, because it’s not just the practical issues, it’s the emotional stuff that goes with it. Best of luck Thanks for sharing this.

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