after 4 weeks using Enstilar...

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Posted Mon 8 Jan 2018 01.54 by Elizabeth

After 4 weeks of using enstilar I thought I had cracked it! Left with white patches but a small price to pay to get rid of a trail of dead skin and lack of sleep through terrible itchiness. Sadly my euphoria was short lived, psoriasis is returning with vengeance as is the itching and lack of sleep. The exorex lotion I was told to use once the 4 week period was over doesn’t seem to work at all. It feels like I have been teased but have now had the rug pulled from under my feet.

Posted Mon 8 Jan 2018 09.54 by Pgp
Both of my elbows are covered and now progressing towards the shoulders. My legs below knee are getting small patches I find new ones every

Hi Elizabeth i know the feeling. I had the same issue. as soon as you stop using the enstilar it comes back with vengeance. i have patches where i did not have them before and where they were they are worse. Before enstilar the scale did not itch, but now it is unbearable itchy. i am now trying from tomorrow Curcumin to see if that helps.

Posted Tue 23 Jan 2018 11.08 by RascalNJazz2

Richards. I have tried so many treatments and ointments, I was giving up hope altogether of keeping clear of psoriasis. then I was prescribed Humira. Its changed my life. I have been using it for 4 years now and no side effects, it started working within a couple of weeks, and soon cleared all my psoriasis after about 4-6 weeks. I am now 99% clear, I used to have psoriasis effecting all parts of body, now I have been prescribed enstilar to clear some very, very small patches. I'm so sorry that you have had to live with this condition for so long, my heart goes out to you. Have you asked about Humira?

Posted Thu 22 Feb 2018 12.10 by mac63

Hi , have just been prescribed enstilar and exorex . Does anyone no if they are used together or on alternate days ?

Posted Sat 24 Feb 2018 15.55 by sculpture

hi all i started tu use Daivobet (here in UK is Dovobet) a few years ago, after i tried all kind of creams, but this one and is working very well.

Posted Mon 26 Feb 2018 17.22 by Itchy and scratchy

I have had this condition over 40 years with no breaks tried almost everything but not enstila not heard of it before and the feedback looks good but with all creams it will come back. But I will say the methotrexate does ease and can get rid of it for a while but when it returns it can be twice as bad so think very carefully about it. I have been studying my rash over the past years and have always said that when you get a new patch it always seems to mirror itself on the other side of the body not in the immediate area but there about anyone else notice this

Posted Sat 10 Mar 2018 09.08 by Paigecooney

I think it’s crazy how strict your prescriptions are! I’m on methotrexate with enstillar as and when I need it and I can get it on repeat whenever? I’ve also never been told not to use longer than 4?weeks? Weird I’m under a specialist dermatologist who I see every 3 months in London, so maybe they’re more leniant?

Posted Mon 12 Mar 2018 20.07 by allan m

enstillar foam is dovobet in different form so a steroid treatment this is why 4 week treatment period and why it returns with a vengance

Posted Tue 13 Mar 2018 17.18 by Mark (edited Tue 13 Mar 2018 18.11 by Mark)

Yeah, Enstilar works wonders for me but it is expensive. In June 2017 I paid $102 now CVS wanted $185.. Ridiculous! This is with the $300 Leo discount card applied My insurance is Blue Cross blue shield, purchasing at CVS. Anyone pay less in the US and where? update: my insurance company retail pharmacy will mail me 3 months worth for a total cost of $125. This is a much better deal but I think it is still rather expensive.

Posted Tue 13 Mar 2018 17.26 by Mark

One thing that makes my psoriasis ointment work better is the wrap it in plastic wrap.. Sounds funny but it works great. In medical terms it is called an occlusive dressing. I keep it wrapped for about 4 hours to 8 hours mainly on my knees on elbows. On my hand I put on the ointment and cover with a self made bandaid and Medical tape. Psoriasis goes away in like 2 days when I do this. Once you are clear apply Enstilar twice a week as prescribed but wrap it to stay clear.

Posted Mon 2 Apr 2018 18.07 by Gillian

So depressed and confused guys. My psoriasis is out of control and haven't slept for 4 days its all over my body. Have Enstilar and use it in conjunction with Silkis vitamin D cream but have been told not to use Enstilar more than twice a week. My consultant wanted to give me Methotrexate but my blood tests were abnormal and the liver specialist says that I can't take it. Does UV treatment work and are there any other options? I'm even willing to buy an expensive lamp even though I cant really afford it. Does anyone know if the psoriasis could be connected with a liver disorder as they have both come at the same time and neither myself or my family have any history of psoriasis.

Posted Mon 2 Apr 2018 18.10 by Gillian

I also wanted to do what you do Mark and wrap up in clingfilm but was told that I shouldn't do that with a steroid cream but if it works for you I may well try it!

Posted Mon 2 Apr 2018 19.20 by RascalNJazz2

Hi Gillian. So sorry to hear how upset you are, I really do know how you feel, I've suffered horribly for years and years with psoriasis all over my body and tried all kinds of creams, treatments and pills. I feel very fortunate that mine has now 99% cleared up thanks to a self injecting drug called Humira. have you asked your consultant about it? I have used UV treatment, it does work quite well but you cant use steroid creams during this treatment. Once under control you can then carry on with the creams to keep it under control the best you can. They advise not to have more than one or two treatments a year due to the risk of skin cancer. I also have Enstilar and advised that it is quite safe to use it every day. Good luck. Christopher.

Posted Mon 2 Apr 2018 19.30 by Mark

Hi Gillian, What's keeping you up at night for 4 days.. is it the pain from dry psoriasis? Just checking, Mark

Posted Tue 3 Apr 2018 03.33 by Nahte

Hi, Just found this forum, it’s nice to read I’m not the only one with this terrible disease. I got guttate psoriasis last summer after having strep throat and got completly covered with it. I got put on a steroid cream and prednisone which helped relieve me of most of my psoriasis. I have recently broken out terribly and can barley see the skin on my back after what I believe was a sunburn that triggered the flare up. Unfourtantely, the insurance provided by my fathers job is too expensive for my parents to afford so I don’t have any coverage and any medication will cost me hundreds, which I don’t have as a college student. I am depressed and don’t know what I am going to do until I graduate and can provide for myself. I have over the counter coal tar and some left over prednisone, neither of which seem to be helping though. I got a membership today at a tanning salon with uvb beds and I am going to give that a try with hope to see some improvement. If anyone has any suggestions for an affordable home remedy or a prescription medication that is affordable it would be greatly appreciated.

Posted Tue 3 Apr 2018 19.28 by RascalNJazz2

Hi Nahte. Please don't use the sunbed, it wont work and is more likely to cause further skin damage. the sunbed emits the wrong UV light, it won't help you at all. i'm really sorry that you can not afford the insurance for medical treatment, i'm guessing you are from the US? I feel exceptionally fortunate that my treatment is basically all free of charge as I'm from the UK. Humira is an amazing drug that I use but I doubt its something you will be able to afford. I wish i could offer some affordable ideas to you, I know just how difficult it is to cope with and you must be extremely uncomfortable. I would go with an intense moisturizer rather than the coal tar, I often found being able to swim in the sea worked very well, especially if you can get some good sunshine on your skin. Good luck, I wish all the best. Chris.

Posted Tue 3 Apr 2018 20.37 by Mark

Hi Nahte, Sorry to hear your situation. In the US we need something like the UK or Canadian Medical system. Go with the UVB lighting. I had UVB treatment a few times and it works. It takes a few treatments though. I think I went twice a week for like 3 months before getting clear. Stayed clear for like a month then it slowly came back. But mine is psoriasis vulgaris. You can try Epsom salts baths too. Dead sea salts if you can afford them... When my psoriasis is bad, I have a bath and gently clean the dry skin with like a sponge brush. Then right after the bath, put on a thin coat of Vaseline to trap in the moisture. This works for about 3 days or so then repeat. When I was a student I bought affordable health insurance through my University Student Union in California and could use the student health clinic to get meds and creams. Hope this helps. Mark

Posted Tue 3 Apr 2018 21.08 by RascalNJazz2

I agree with Mark. UV treatment works as he says and then comes back after a while. Thats when you need your creams to try and keep on top of it. But again, do not use sunbeds, its the wrong UV light, it wont work. I used to have baths and gently rub away the psoriasis, then use a deep moisturizer afterwards, it was quite a relief and felt much more comfortable afterwards. best wishes Chris

Posted Wed 4 Apr 2018 00.33 by Nahte

Thanks guys for the replies. Upon some research I realized I can in fact get insurance through my University starting as soon as 5/14! I have scheduled an appointment with a dermatologist in two weeks and hopefully can get prescribed some medication to help me. Thank you Mark for the idea! In the mean time I went and purchased an Intense moisturizer and Corizione 10 (I have been reading this to be helpful). I will keep y'all updated with any progress I make. Once again, thanks everyone

Posted Sun 3 Jun 2018 22.01 by AndrewCatalin

I feel better when i find out i'm not the only one in the world feeling like shit with this curse on my body. My psoriasis started jan 2018 with very small dots around hands, however it went all over my body quickly because the NHS ( no health services ) in uk sucks, a lot. I've seen the gp and hospital several times and at first i was diagnosed with scabies ( yea, scabies .. ) gave me treatment for a month with no improvement and huge amount of stess and scareness. At some point i went to see a private dermatologist in central London ( £300 bill for 20mins appointment .. ) which open my eyes, she done all the checks on me and told me it's 100% not scabies but it's psoriasis, which gone worse because the treatment for scabies actually done worse, yep. I've tried several treatments but nothing really worked apart from Enstilar so far, however i'm still full of red dots all over my body. I also noticed some improvements on my skin before Enstilar when i've started to use a different shampoo based on chinese herbs from Alumine, non alcohool product and 100% bio. However, i noticed that my psoriasis gets worse when i've stressed out and weather changes, as long as sun is out and warm ( not much here in uk ) i feel good, but that only lasts for a bit. After long fights with the gp i've sourced my " URGENT "appointment for UV treatment through NHS on 4th of September so finger crossed i will become human again. It's very depressing seeing myself like this and being in situations when people keep asking me what it is or even worse not asking what it is and getting scared of me ..
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