Posted Sat 5 Jan 2019 08.26 by bazzerd It started as a small patch on my shin 12 months ago..now covers approx 70% of my body..just started UVB light therapy..I am 54 and never ha
Hi All,
I’ve been a member for a couple of years , I’m 58 had the big P only for about 4 and a half years. (never had it before) It started as a red spot on my shin, which slowly spread as plaques to cover most of my legs ,
None of the usual ointments and creams had any effect and slowly overtook my whole body about 90% of all my skin)
so after a referral to my local hospitals derm dept, UVB for 3 months cleared it, plus a nice tan. Anyway 12 months later it came back,..so another UVB session with tablets..which made me sensitive to UVB, as a result I could only take half the UVB session before I burnt,
(plus I spent £1495 on a nine tube phillips tubed canopy that I can’t use anymore)
The P went away..but only for 4 months !!,and came back with a vengeance
(Erythradermic) Hospitalising me for a week,
Then the usual treatments, Dovobet, Acetretin, Ciclosporin, Fumaderm, you name it I had it, Methotrexate did the trick for about 18 months, but started to affect my liver and had to stop it.
So then I had Otezla which did next to nothing for a few months, until, after a couple of months of blood tests, chest scans and x-rays, I was admitted to Hospital for 2 weeks, for a repeat of all the tests plus a 4 hour in the am and 4 hour in the pm intravaenous antibiotic drip and an MRI scan.
A few weeks on from that, now it’s a 2 weekly self injection of Taltz (Izekizumab),of which I have only had 2 so far, and my skin is hugely improved, and improving by the day.
Any Questions please ask away.
B
Posted Sat 5 Jan 2019 09.36 by victoria
Hi bazzerd
I have just read your report my word you have through it, I am only hoping now you get the relief you deserve, mine is scalp through stress both my brother and i are suffering same with family stress awful time for us both. Do hope your present treatment and medication work for you
Happy 2019 all Victoria