Posted Mon 4 Mar 2019 10.06pm by Lauz329
Hi. I’m reaching out on here in the hope someone can share my experience.
I’ve always suffered with psoriasis but only comes and goes when I’m stressed.
Having suffered with a bad bout of strep throat in January and taking strong antibiotics for 10 days, it cleared and within a few days a rash started on my tummy, I quickly realised it was very similar to psoriasis but it was spreading all over my body which I’ve never had. The rash is worse on my tummy but my arms and legs are more “spotty” and spread out.
This is now nearly 2 months since my outbreak and it doesn’t look to be getting better.
After a bit of research it appears to be guttate because of the link with strep throat.
2 trips to my GP and although he hadn’t confirmed it’s guttate, he has given me a different lotion (foam) to try.
Please if anyone has suffered with this can you share your story? It’s really getting me down 😓
Posted Mon 4 Mar 2019 10.58pm by micknug
Hi, I'm 25 and about 20 weeks ago had the exact same. I don't remember having strep throat that brought mine on, but I had the same spots appear as you that wouldn't budge with standard moisturiser.
I eventually went to my GP who luckily diagnosed me right on the spot. Been using topical steroids and synthetic vitamin D ointments since then which have made it much less visible, but I'll be honest, putting them on every day is a pain and it cost me a lot in prescription fees.
There's an up side though, guttate genuinely isn't considered to be chronic. That means it's acute and your symptoms should one day be gone for good.
I'm having a consultation on Thursday where I presume they'll put me forward for phototherapy. That's where they zap you with UV Ray's and it works to completely remove psoriasis for the majority of people that have the treatment.
Keep your head up though, one think I learned since I've had it is there's a lot of people out there in the same shoes.
Posted Mon 4 Mar 2019 11.06pm by Lauz329
Thanks for your reply. I’ve got to return to the GP in 3 weeks to see how I’m getting on with my new lotion but I’ll be honest, I don’t like using them as they’re pretty strong.
The UV method sounds interesting? I think I’ll be referred if this doesn’t work.
Like you say, if it is guttate then at least it will eventually go which feels like a life time away at present.
I hope you get sorted soon
Posted Thu 7 Mar 2019 3.20am by _KayS
Hi, I'm 19 and around the 19th of jan I started showing signs of a bad throat infection, after waiting two weeks I visited the doctors twice and on the second time was prescribed antibiotics about 3 days in I started to break out in a 'rash' I had tiny little red spots over my face, neck, chest and arms, I stopped the antibiotics as I assumed I was having a reaction to them. I made a doctors appointment again and the doctor looked at my skin and told me it was Folliculitis and prescribed me some cream. After using the cream for a few days I found it strange that my skin was getting a lot worse and even more itchy almost 10% of my body was covered in these spots!
I was seen by a different doctor who instantly told me she thought I was had guttate psoriasis. I didn't know what to think and it made me upset to hear this as I already suffer from plague psoriasis and have done for quite a few years so my instant thought was oh my god I'm stuck like this for the rest of my life. She then went to get a second opinion and it was confirmed I had Guttate Psoriasis and I expressed my worries and both doctors ensured me it would be gone in 2-3 weeks maximum a month. It has now been a month and almost a week and I've showed no results of getting better if not worse. I've been to the doctors recently again and been given steroid creams something I don't wanna use as I feel like when I've used them In the past it has only been temporary fix. But I cannot survive much longer cooped in my house scared to leave in case someone I know sees me. I was just wondering if your scalp has gotten really dry and if you found anything that helps? Thanks
Posted Thu 7 Mar 2019 6.32am by Lauz329
Unfortunately I’ve now had this nearly 2 months and it seems to be spreading still! Steroid creams are helping but obviously only a temporary fix.
Yes my scalp has also taken a hit now but I’ve not found anything that is helping that either. I’ll be returning to the doctor in a couple of weeks so I’m going to mention that too!
I’ve now taken to eating a lot healthier than I was and exercise in the hope it helps! Lots of vitamin c is what you need too!
Posted Sat 9 Mar 2019 3.04pm by Justinealexx
Hi there. So sorry to hear you are gong through this. I've supported my 19 year old daughter through this and completely understand how devastating it can feel. But there is hope! Here's our experience.
The guttate plaques for my daughter began on her tummy spreading to her scalp, back legs and arms. Her outbreak was especially severe and I would estimate 75% of her body was affected.
In desperation, we turned to steroid creams and ultimately to the Enstillar foam. Applying these sparingly to each plaque independently was a two hour, twice daily labour of love. The results with the foam were nothing short of miraculous. Within two days they were disappearing.
However, the prescribed can lasted only 4 days and there was a weekend delay getting it represcribed. In that break, the psoriasis erupted with a vengeance! This is a known effect called rebound. It was horrendous! I actually didn't think things could get any worse. I was so wrong.
She made a very brave decision to stop using steroids, creating there would be an endless dependency on them. She managed her symptoms with bath salts, emollients and exorex coal tar. And I bought a compact UVB lamp. (all I could afford)
She has also radically changed her diet to avoid inflammatory foods including caffeine, gluten and dairy and boost fresh fruit and veg.
We're now 5 months in. I'm sorry, that won't be what you want to hear and is not what the doctors tell you. But her scalp and trunk are totally clear. Her legs are improving by the day and her arms are following if a little slower.. It can be done without the steroids..
My advice if you want to continue with the steroid, is to plan a very gradual reduction in their use with your GPs support. Never contemplate suddenly stopping. I'm not sure whether this will help avoid the rebound but I wouldn't wish that on anyone! Good luck, stay strong and be well very soon x
Posted Sat 9 Mar 2019 8.18pm by Lauz329
Thanks so much for your message. I’ve neen so reluctant to try steroid as I’ve heard the same plus I’ve used them in the past and had it return as bad as it was before.
I’m still holding off using them but if you have any advice on preventing the itching at night that would be great?
I’m also changing my diet and exercise regime in the hope this natural way helps. Do you have recommendations on the products used also?
Thanks so much again.
Posted Sun 10 Mar 2019 11.01am by emilyrc
Hi Lauz 329 . This is Justinealexx’s daughter Emily here . I’m so sorry you’ve had to go through this too.
As my mum said, I am completely against steroid treatments. As amazing as they appear to work, reducing or even removing the appearance of the psoriasis spots , they are only masking the symptom of the condition and not actually treating the underlying cause. Psoriasis does have a genetic element, that is very clear. However , we are born with our genes and yet my psoriasis didn’t appear until I was 19 ? To me that shows that something must have triggered that gene to suddenly turn on . And if it can be turned on , then it CAN be turned back off again . Now , in my case, the trigger was definitely emotional stress. Stress is not just mental , it creates a physical , acidic environment in the body and I believe this physical change actually effected my genes , triggering the psoriasis.
My healing journey is focused on reducing the acidic environment in my body through diet and regular , gentle exercise . It’s important not to go to hard with the exercise as this can cause the muscles to release lactic acid which has the opposite effect to what you’re working for. If you are interested in really trying a new diet regime to help your skin , I 100% recommend that you look up Hanna Sillitoe ( my goodness recipes). You will find her on Instagram , YouTube and an online blog. She is inspirational and can give you loads of advice and motivation towards healing naturally (no more drugs) . If you’re open minded and interested in a holistic approach to healing , I also recommend that you watch the documentary HEAL on Netflix . A particular person of interest featured on there of mine is Joe Dispenza . He focuses on the connection between the mind and body . I realise that your trigger , as with lots of people, was a strep infection . I believe Hanna Sillitoe suffered similarly and diet helped her too , it can help everyone .
Now I am NOT saying that people shouldn’t use steroids . Everyone needs to find their way of dealing with their psoriasis. It is a very personal condition and it’s important that you find what works for you. However , for me personally , at the age of 19 , I couldn’t face having to apply steroids all over my body everyday for the rest of my life . This is what the doctor actually suggested I might have to do . And even worse , if this stopped working , which it might , I’d have to go onto strong immunosuppressants which would leave me vulnerable to other diseases and infections , making life even more horrible .
I urge anyone to try diet if they can . I know the doctors say it has no impact and that psoriasis is a lifelong, incurable condition that can only be managed . But, please please please , look up Hanna Sillitoe and other similar bloggers . They show you that it is possible and it’s not faked . There are real testimonials everywhere you just have to believe that healing is possible and that’s the first stage . Yes , healing naturally will take a lot longer to see improvement than steroids but that’s because you will actually be healing the underlying cause, not just masking the symptom and this means possibly undoing years of damage to your body AND mind .
In answer to your question about the itching . After originally stopping the steroids , I will not lie to you , I suffer extreme itching for a couple of weeks . I couldn’t stop scratching ! I recomend bathing in Dead Sea salts and exfoliating gently before you sleep . If your skin is cracked or sore then bathing in oat can be very soothing . Put some oats in some tights (stockings) and run the water through them as you fill the bath . It will make the water look milky , but can be very soothing . Then apply coconut oil to dry skin and sleep that way . Note that refined coconut oil can create a nasty smell on some people’s skin , so unrefined , extra virgin is better if you can find it.
I apologise for the long message and I hope nobody feels that I am forcing them to ditch their medications . If they work for you and allow you to live your life the way you want to then please carry on using them , the most important thing is that you can live your life without your psoriasis controlling you. But changing your diet, although demanding a lot of self-control, will not do you any harm and if it could actually heal you then I didn’t see why I shouldn’t try it , and it is working for me !
I wish you the best . Please anyone feel free to contact me if you want any more information . I would be happy to help you and direct you to people who can help you further .
Stay well x
Posted Sun 10 Mar 2019 11.09am by emilyrc
Also for people suffering with their scalp I highly recommend the ginger shampoo made by the Body Shop x
Posted Mon 11 Mar 2019 5.47am by OhNo_NotAgain? (edited Mon 11 Mar 2019 9.07am by OhNo_NotAgain?)
I have had plaque psoriasis on and off since 1980. Initially it erupted over my entire body while I was at university. Most recently it has been limited to elbows, ears and occasional patch in groin and on one leg.
Around a year ago i suddenly developed guttate psoriasis all over trunk, legs and scalp. My GP felt it might be a reaction to a total hip replacement 2 months before (psoriasis can be triggered by a trauma to the body, and the immune system reaction).
My GP advised that typicallyin such a case it CAN recede after 6 months or so.
I have dovobet already (same ingredients as Enstilar) but only use it occasionally. I discussed with my GP that i did not feel that a steroid ointment was suitable for my guttate. The spots were small and numerous, so it would have been difficult and laborious to apply a topical treatment to each spot individually, and I did not want to slather steroid all over the good skin in between the guttate spots.
He did not want to give me enstilar for my scalp.
So, he gave me a 1 week course of antibiotic, just in case there was an underlying infection - although I had not presented with any sort of inflamed throat.
He prescribed psoriderm (a lecithin and coal-tar treatment) lotion for my body, and cocois and capasal shampoo for my scalp.
I found the cocois hard to apply effectively as I live alone, and the capasal did not seem to help, but was incredibly drying on my hair.
I probably tried every shampoo that mentioned psoriasis or dry-scalp or was mentioned on here. (I did try the Body-Shop ginger shampoo, and although it seemed nice and luxurious, I am sorry to have to say that it did nothing to help my scalp).
Finally I used Alphacade PSO shampoo for my scalp - it killed the itching, and I alternated it with T-Gel and Alphosyl. My scalp improved quickly.
I used the psoriderm for my body, and then also bought Exorex (green bottle). I used one in morning and the other at night (an hour or two before bed, to allow it to penetrate the skin and not stain my bedding.
In between time I also used Doublebase Dayleve Gel throughout the day, any time that I felt itching.
I also started taking a Vitamin D supplement each day (
After a few weeks the spots had reduced dramatically and I stopped using the psoriderm and exorex, but continued the emollient and the vit-D.
After around 8 months my guttate psoriasis HAD disappeared completely (but not the plaque psoriasis, although the patches on my elbows are much smaller and less flakey than before the guttate episode, but that might simply be a coincidence).
Posted Thu 21 Mar 2019 4.14pm by Hollie07
Hi, I’m on month 3 with guttate psoriasis after suffering strep throat in December. I’ve been to the doctors so many times I can’t count. Have to wait 6 months to see a specialist. I’ve cut out gluten, dairy and don’t eat meat. I’m taking vitamins also. But nothing works! I’m on Enstillar at the moment which helps a lot but I really don’t want to be subjecting my skin to steroid cream all the time. It’s so depressing :( i don’t know what to do anymore!
Posted Thu 21 Mar 2019 4.21pm by Lauz329
So sorry to hear this, sounds like a similar case to me.
I’m now on month 3 and it’s very slightly improving. The scales are there but more pale pink than a sore red colour.
I decided to stop the steroid creams as and try a more natural approach. I read that blueberries help so wether that is working for me I don’t know but it’s worth a try.
I’ve also found out I’m pregnant (unplanned) so I honestly don’t know how this will effect it.
Posted Thu 21 Mar 2019 4.27pm by Hollie07
I eat blueberries every day also. Nothing works! I’ve always had psoriasis since being a child but I’ve never suffered with such a bad case before as this. I’ve read where pregnancy can either really improve it or make it worse. Hopefully it makes it better for you! I just don’t understand why there isn’t much Information or some other medication that helps as so many people suffer from it. My doctor tried to make me feel better by telling me it’s not life threatening but it’s a useless comment as it really affects, mood, confidence and mental health. It’s coming up to summer in the UK and I’m dreading the hot days as my skin is so sore like I’m covered in burns and I can’t wear anything remotely revealing. It gets me really down. Doesn’t help when people ask what it is either it makes you think you’re dirty or have a skin disease.
Posted Thu 21 Mar 2019 4.31pm by Lauz329
Yeah I’ve read pregnancy can improve it so fingers crossed.
It may not be life threatening but it really effects your mental health like you say, I’ve been so down since I got it and not in a good head space at all.
I had someone panic at work the other week cos she thought I was getting a rash on my neck. I had to explain what it was. So embarrassing.
I live in the uk too and really praying for us that it’s cleated by the warmer months!
Posted Thu 21 Mar 2019 4.35pm by Hollie07
Yes same as me. I’m a manager of a shoe shop and when I’m serving customers I can see them looking at my hands which is embarrassing. Same if I wear 3/4 trousers or jeans. And the parts of me which have cleared with Enstillar have gone pigmented so it actually looks like I have really bad fake tan on when I’ve not worn fake tan in about 2 years! I’m going on holiday in May so I’m hoping a bit of sun will clear it up. I am waiting for light treatment but I can’t wait any longer. I’m looking into renting a UVB sunbed before I go. I don’t want to be put on the drug they give to cancer patients as it can lead to other cancers and liver failure. It’s just a horrible condition to have.
Posted Thu 21 Mar 2019 5.34pm by emilyrc
I understand it’s frustrating when you’re making big changes to your diet and aren’t seeing any results but please note that the natural approach will take a lot longer to work than steroids , you just have to stick with it . I have been doing it for about 3 months now and the psoriasis still isn’t gone but it is clear in some places and that gives me confidence that it’ll all clear in time . Please look up Hannah Sillitoe on istagram and you will see the progress people have made and know that you’re not alone in the long process .
Posted Fri 22 Mar 2019 4.51pm by Lauz329
I just wanted to give you an update just so you have some hope! Today I woke up realising last night was the first night I’d not woke up wanting to scratch my skin off!
On checking my skin I can see massive improvements and the patches are now really flat with some parts clear!
This has been done WITHOUT any creams etc and one difference I made was the blueberries and orange juice every day!
I know every body is different but I’ve been stuck with this for nearly 3 months so please have hope, you will get through this ❤️
Posted Fri 22 Mar 2019 7.30pm by Hollie07
Awww that’s amazing! I’ve not used my enstillar for one day and it’s already coming back with the vengeance. Has anyone heard about taking vitamin B17? Apparently that’s amazing but unfortunately can’t find a link for it anywhere
Posted Fri 22 Mar 2019 8.23pm by Lauz329
I honestly believe the creams etc make it worse in the long run and we should try healing naturally.
I have been so depressed whilst having this over my body and I already feel uplifted when looking at the improvements.
I can’t tell people to not use what doctors prescribe but I would never use the products again!
I’ve heard about taking vitamins yes but not sure on how successful they are?
Posted Sat 23 Mar 2019 6.53pm by Justinealexx
Hi Hollie. Many people find they need to be really careful with the Enstillar foam. Stopping the treatment suddenly can lead to a steroid rebound effect, where symptoms flare up. A private dermatologist my daughter and I consulted after this had happened to her, recommended only a very gradual withdrawal from Enstillar treatment though it was too late for us to try that! It was a very difficult and uncomfortable set back for her. It made us both very anxious about her restarting the treatment, fearing the steroid becomes a vicious circle that's very hard to break. But I agree with Lauz, it can be done naturally. Though it needs patience, determination and so much courage. You'll have lots of support here if you feel ready. And I wish you so much luck x
Posted Sun 24 Mar 2019 6.43pm by _KayS
Hi, just checking in again. After 4 weeks of steroid creams my patches have gotten much better lost their angry red colour. Unfortunately it's seems as if all the patches have gotten as good as their are going to get there is no more improvements in fact sometimes they look worse. It's been 2 months and after the doctors assuring me my guttate psoriasis would be gone within 2-3 weeks I am really struggling with coping. In fact I can't help but make myself overly stressed with the fact summer is coming and I don't know if I will find the courage to leave the house. The only time I leave the house is for work and uni and even then I can't help but feel like my condition is in everyone's faces I don't know how much longer I can cope with the stares. I have tried to eat better but again juggling work and uni I end up eating anything in sight that's quick and easy. My scalp is also getting worse I've been given steroids to use but find it difficult to get on my actual scalp and again don't want to use steroids as they have always been a temporary fix. I am struggling to cope, I don't want to leave the house, can't bare to go out with friends as it always ends up with me having to explain my condition. I did however have a night out after my mum encouraging me. I kept my face moisturised and only put light makeup on which I found difficult as I always loved experimenting with makeup something I have lost to this condition, I wore an outfit that covered me head to toe after a few hours my face was covered in small red patches worse thing is I never noticed so I don't know how long I was going around looking like that. After a meltdown in the bathroom one of my friends then proceeded to tell me I should stay home until I'm better. I made up an excuse and left early, if my own friends don't understand idk who will. Can't help but feel depressed all the time.
Posted Sun 24 Mar 2019 6.49pm by Lauz329
I’m sorry you’re feeling this way. I was exactly the same and just wanted to hide away.
I thought it was never ending until 5 days ago it has started to improve.
I’ve not used any steroids and I’ve simply eaten blueberries and orange juice every day as a tip if picked up.
I don’t know if this is something that has helped but I believe it is. Please have hope. I had it for nearly 3 months!
I would never go back to steroids in my opinion
Posted Sun 24 Mar 2019 10.25pm by Hollie07
Hi Kay don’t worry you’re not alone! I’m into month 4 with guttate psoriasis now. Also panicking about summer and I’m also on holiday beginning of May. Every time I try to wean myself off the enstillar I have the same flare up again. I’ve been taking vitamin D, iron and B12 for 4 months. Also cut out glutten and dairy. Also don’t eat meat. I eat loads of fruit but nothing works. I kid I keep crying to my mum and boyfriend. It really does get you down and depressed. So don’t worry you’re not alone. All I can say is try different things and hopefully one of those works for you! I heard getting a medical medium is really helpful so maybe that route?
Posted Fri 29 Mar 2019 4.58pm by EmmaBee
I've been dealing with GP now going on 20 years. I have tried creams, had numerous biopsies to determine what is was, gone through all the humiliation with hiding the legs and arms, you name it, everything I've read in this forum, I've tried. It is very depressing and totally destroys your confidence every trip I make outside during warm weather is carefully calculated as to what clothing will hide the spots. I've eliminated all food groups at one time or another to determine if it would get better or worse, honestly I couldn't find one food group that made it better, or worse. If I went through light treatments or the tanning beds, it would be completely gone within about 3 weeks, but would return even worse as soon as the light treatment stops. I can't make myself take all the drugs the dermo wants to "try", not knowing the long term effects. But I did try one more option I read about a week ago regarding blueberries. Since no one is profiting off me trying the blueberries, other than the farmer (who should), I decided I would give it a try, worse case scenario, I like blueberries anyway and eating them can't be bad, even if it does nothing for the GP. Well one week later, I am almost shocked at the result so far, legs are far more clear and not as irritated as they were a week ago. I have had GP long enough to know this isn't just a coincidence. Maybe it will continue to clear my GP, or maybe it will end up as a coincidence, but if it puts me in a better place mentally even for a short break, I'm going to continue eating the blueberries everyday. After 20 years, it's nice to feel like I might actually have found something to help, even if it's short term. Mentally we all need a break from this horrible disease.
Posted Sun 31 Mar 2019 9.51pm by Lauz329
That’s amazing news that it seems to be clearing! Keep at it! I really do believe there’s something in the blueberries as I didn’t have any for a few days and the clearing stopped but I’ve started again and my patches have nearly gone!
I would also recommend bath salts. I use the coconut ones and after using twice can see a difference. Just make sure you moisturise after.
Keep up the faith x
Posted Mon 1 Apr 2019 8.01am by Hollie07
Just out of curiosity how many blueberries do you have to eat and how often? I’m desperate for anything now. In so much pain and discomfort. Not to mention my self esteem :( I’m going on holiday beginning of May and I’m dreading going now. Sick of people looking at me like I’m a freak :(
Posted Mon 1 Apr 2019 8.08am by Lauz329
I have a cup full every day unless something crops up where I can’t but I aim to have every day!
They obviously can’t harm you.
Try the bath salts too! They’ve done wonders for me!
Posted Mon 1 Apr 2019 8.47am by Hollie07
How long did it take to work for you? I’ve tried bath salts and they only make my skin even more itchy unfortunately. I’m wondering if there’s a possibility I might still have strep bacteria in my body. I honestly just don’t know what else to do. I’ve nevee suffered with psoriasis this bad. Nothing seems to take it away and I’m on month 4 with it now. I was told my the doctors it should be gone in a month and it doesn’t seem to be budging
Posted Mon 1 Apr 2019 1.24pm by EmmaBee
I'm eating a palm full of blueberries per day either on salad, smoothie, or oatmeal. My skin is noticeably clear, no itching, and my back feels so smooth as well as my legs. I hope this works for everyone who tries it, it has made me a believer, and I will take any form of natural relief I can get for however long I can. I think any moisterizer will help your skin, salt is more drying so it may itch more after a salt bath. I've tried using a capful of olive oil in the bath that helps moisterize by skin but be careful with that as it will make the tub slippery, you can use it on a cloth in the shower that works really good. Honestly whatever your preference of treatment i hope it brings relief to you, I'm just so shocked at how well the blueberries have worked, I am staying with it, but whatever works for you, just give it some time to see results, my results were immediate, but with someone else,it may take longer, our bodies and chemistry are all different and respond differently. Good luck on this journey!!
Posted Wed 3 Apr 2019 9.53pm by BobbyJovi96
Hi everyone, i'm new to this forum and i'm hoping I will find some remedies of treatment for my guttate psoriasis! Ive had this on my torso, stomach and both my sides since middle of january after have a bout of strep throat, so pretty much nearing the 3 month mark which i thought by now it would have been cleared. I've had steriod creams that worked but after a few days (i think a week was the longest i went without a bad flare up) it all eventually came back. Since beginning of March i have been using Lush Cosmetics 'Dream Cream' which after reading a lot of the reviews from people with psoriasis i decided to give it a go and although it does keep my condition calm and some days it looks like its nearly all faded i still have the marks come back. With Summer literally around the corner i am becoming concerned that im still gonna have this on my body and i just want rid of it. I would say my condition as of right now is the calmest it has been, but i am hearing the end of the Lush Dream Cream and i am up for trying different lotions. Thanks for taking the time to read this and hopefully somebody can steer me in the right direction. Cheers!
Posted Wed 3 Apr 2019 10.07pm by Lauz329
Hi Bobby. You sound similar to me however I had it head to toe.
I’m finally on the way to clearing but still got a long way to go. The blueberries definitely helped me along with bath salts and aveeno moisturiser. I also recommend taking vitamin D supplements.
Good luck with your journey
Posted Thu 4 Apr 2019 2.25am by EmmaBee
I take organic coconut oil twice a day ( capsule form) to relieve my dry skin. I've been on the blueberries for two weeks and I can;t believe how clear my skin is getting. I'm actually excited to get up every day and look at my legs, something I avoided for many years!! it's been 20 long years dealing with this curse of guttate psoriasis, I am so blessed to have this time to enjoy my skin again.
Posted Thu 4 Apr 2019 8.49am by BobbyJovi96
Hi Lauz329 and EmmaBee thanks for the replies!
I wouldn't say i have dry sensitive skin, like before i got guttate psoriasis my skin was always clean as i would use coffee scrub and moisturise regular and i still do to keep the skin nice and soft. But im up for trying anything so is there a specific type of bath salts to use? And what way do you take the blueberries? I.e like a cup or handful every morning? I'm also going to use the sunbeds cos ive read that it can help
Posted Thu 4 Apr 2019 4.21pm by Darren S
I’m in my late 40’s, married with three kids. Had my first and only flare in Jan 2018. Just living with it now.
I was diagnosed with Guttate in mid January after spending December with strep throat. I’ve been given creams, Hydromol and Cetreben from my GP along with Clobaderm and now Bentnovate as my steroids.
This is my first ever flare and it’s driving me crazy. From the neck down I’m covered in red spots of varying sizes from tiny ones ones where I think they have joined to form big palm sized patches. Initially there was some plaque scaling , but now after using the creams some spots have faded to smooth very pale pink patches whilst others are still very red and a bit scaly.
I’m due to start photo therapy next week. I’m hoping that this will clear it as I am very reluctant to go down the other route offered to me, that being Methetrexate.
I’m itchy for most of the time and feeling like I have mild sunburn.
This thread has been quite helpful to read and has given me a few ideas. I hope everyone eventually has clear skin soon.
Posted Thu 4 Apr 2019 4.44pm by EmmaBee
Darren S - mine started out exactly as you described, I have tried many remedies over the years and nothing really worked but the light therapy. I started with the Blueberries two weeks ago and I almost feel like I'm having a dream as the GP is almost completely gone. I've been eating blueberries everyday, I noticed a remarkable improvement just on day 3. I wish I had taken a before picture but the results are unbelievable. I hope you can find a natural remedy that can help before going on the drugs. I stopped those years ago as they weren't helping anyway and I didn't want the long term side effects to catch up with me later, which they always will especially with steroids.
Good luck and keep us updated on your progress.
Posted Thu 4 Apr 2019 5.46pm by Hollie07
I’ve also had guttate psoriasis 4 months now and I’m still waiting on a hospital appointment. I’ve started the blueberries but I’ve not noticed any improvements yet. I suppose everyone is different but I’m desperate for something! I go on holiday beginning of May and I’m dreading it now. I’m 26 and should feel good at showing my body and all I want to do is cover up from head to toe. So depressing.
Posted Thu 4 Apr 2019 9.24pm by Darren S
I’m in my late 40’s, married with three kids. Had my first and only flare in Jan 2018. Just living with it now.
EmmaBee and Hollie07- thanks for the replies, it’s just so good to hear from others in a similar situation.
This is my first flare and it’s completely knocked me sideways. I’m at a loss at how to get well. I’m fine if this is my body saying, “take it down a peg, you’re 48, but you pretend you’re 28”. I’ll behave myself. To be honest I’m angry at how this condition is ruling my life..
I’m a medically retired stay at home dad with three kids, who’s trying to grasp that he’s now got to live with a ‘chronic, incurable lifelong condition’. I hate having to slap creams all over my body two or three times a day, and then sit there for ages whilst they soak in.
To be honest I’m really pinning my hopes on the photo therapy being a success as I don’t want to go down the drugs route of methotrexate.
Sorry if it seems like I’m a whining moaner, I’m not. I’m just trying to adjust to having my lifestyle changed against my wishes x
Posted Thu 4 Apr 2019 10pm by Hollie07
I think the phototherapy works on a lot of people. I’ve read where it’s come back after they’ve finished they’re sessions. But again everyone is different. I’m sick of using steroid cream and I’m scared of the use of steroids long term. I keep stop using them and then my skin gets so bad and I can’t cope and I’m back to square one. I honestly feel your pain. I don’t think others realise how horrible the disease is and how it makes you feel. I don’t even think doctors know! I went to the doctors in Feb and I’m still yet to receive an appointment for a dermatologist. I’m honestly at a loss now. I’ve tried cutting out gluten, dairy, I don’t eat meat. I’ve been taking lots of vitamins. Honestly nothing is working for me apart from the enstilar.
Posted Thu 4 Apr 2019 10.15pm by Lauz329
I have around a cup full a day sometimes on their own but mainly with yogurt or something similar.
I’m currently using the Coconut Dead Sea salts from how bargains. Only £1.99 for a big tub and I love them!
Hope the tips help x
Posted Thu 4 Apr 2019 10.53pm by Darren S
I’m in my late 40’s, married with three kids. Had my first and only flare in Jan 2018. Just living with it now.
If the UVB is a success, I may take the plunge and purchase a UVB light canopy.
I’ve read on these forums that some use the lights a couple of times a week for a minute at a time and it completely keeps their skin in check and they are psoriasis free. They are not cheap around £1500, but I think I’m the long term it’s money well spent if I can go about my life as normal.
Posted Thu 4 Apr 2019 11.07pm by Hollie07
My dads also discussed this with me but they’re so expensive. But like you say in the long run it could be worth the money. I’ve always had psoriasis just a few patches here and there with a flare up. But this is out of control and all because I had strep throat at Xmas. I feel like mine is definitely going to last the 6 months to a year because I’m on my 4th now. Just a shame it’s coming up to summer too.
Posted Thu 4 Apr 2019 11.24pm by Darren S
I’m in my late 40’s, married with three kids. Had my first and only flare in Jan 2018. Just living with it now.
I just feel like there is no end, to it, I’ve got older patches that are very pale pink with no plaque at all, which leads me to think, they are getting better, but then I have lots of newer angry red dots on my arms and legs.
I feel like no matter how well I eat, moisturise, sleep etc, new patches and spots are appearing. It’s never ending and it depresses the hell out of me.
Posted Thu 4 Apr 2019 11.52pm by BobbyJovi96
I've found coffee triggers my flare ups quite bad, haven't had a cup in a month and haven't had a bad flare up, anyone else experience coffee as a trigger?
Posted Fri 5 Apr 2019 2.14am by EmmaBee
warren s - the photo therapy will work, once you have it under control you can then determine a maintenance schedule to keep it that way. I had to pay a deductible every time I went to the doc for photo therapy initially, then I just paid $25 a month for a tanning salon membership and it's much cheaper. Since the blueberries are working like a miracle for me, I haven't had to use the tanning beds. Honestly I hate tanning beds, but if drugs were the alternative, I'll take the bed. Stay with it and I'm sure youll see improvement soon.
Posted Fri 5 Apr 2019 8.28am by BobbyJovi96
I know your supposed to stop drinking alcohol and smoking completely but as a young 23 year old, this will be too hard lol i would only drink and smoke on a saturday night out, this would be ok still?
Posted Fri 5 Apr 2019 10.23am by Hollie07
Not really. I drank a couple of weeks ago and my P flared up so bad. It just depends on how fast you want to heal and whether you can take the flare ups. For me it definitely isn’t worth the pain but I understand it’s diffuclt for your social life. When I was in remission I was fine drinking but during flare ups it’s just a big no no. I’m 26 so I understand how fustrating it is on your social life. I’m constantly restricting myself on foods and it’s just so depressing.
Posted Fri 5 Apr 2019 11.01am by BobbyJovi96
See i think i got lucky with my condition because I've never been in pain with it or experience very little itchyness.
Posted Tue 9 Apr 2019 1.25am by _KayS
Hi guys, thanks for the support❤️ Things have gotten better, patches have turned into pale patches which is much better than red angry looking ones, unfortunately I woke up with apart of my chest covered with little red spots a look I'm familiar with. I can't help but feel like when things are getting better something like this happens. Does anyone know from experience if this could be a flare up? Or could this be the rebound stage from steroids? (I stopped gradually using the steroids 2 weeks ago) and if this is a flare up how long do they last? And does it spread? It's currently on my chest and neck.
I understand your pain BobbyJovi96 I used to go out with my mates every Friday or Saturday we'd normally be drinking but I've avoided it for a month now and I miss it and it isn't the same when everyone is drunk and your sober although I did drink alcohol 2 months into my guttate psoriasis and I believe it only flared up my face patches but everyone's different I suppose. Also wondering if anyone's try taking probiotics?
Posted Sun 14 Apr 2019 8.27pm by BobbyJovi96
So I have been using this new supplement called Advanced Tumeric from Autoimmune Institute which also contains BioPerine. Have been using it a week tomorrow and omg guys i think ive found the perfect all natural supplement to help put this nasty disease into remission or possibly get rid of it all together because my condition has has now turned into slightly pale marks, and my skin has nearly returned to it smooth soft surface. It comes in a tub of 120 capsukes. I 100% highly recommend this!
Posted Mon 15 Apr 2019 10.26am by Hollie07
Hi thanks for sharing! I’m from the UK, where can you get this from? I’m desperate now. On month 5 now with no signs of it getting better as when I stop using enstilar it comes back twice as bad :(
Posted Mon 15 Apr 2019 12.14pm by BobbyJovi96
If you type into google autoimmune institute you'll see their website, once your in it look for the Advanced Tumeric product. They have loads of other products available i.e vitimins etc. All natural supplements as well. Hope you find this helpful because it has helped me and its only been a week today since i started using it!
Posted Mon 15 Apr 2019 3.12pm by Hollie07
So has it made your patches better? Mine cover 90% of my body. Worst on my legs. Go on holiday in 3 weeks and just want to feel a bit more confident. I’m worried people will look at me and think I’m disgusting or have a disease :(
Posted Mon 15 Apr 2019 4.23pm by Darren S (edited Mon 15 Apr 2019 4.46pm by Darren S)
I’m in my late 40’s, married with three kids. Had my first and only flare in Jan 2018. Just living with it now.
Had my first bout of photo therapy today, all 13 seconds of it 😂. I’m back on Weds then Friday, and it’s going to be three times a week for 10-12 weeks they said. The nurse was lovely, as I had a ton of questions. She said that by week 10, I could be in the cabinet for five minutes at a time, and not to expect to see any real difference until week 3-4.
Ive got Guttate all over me, thankfully my face and scalp escaped. I’ve been prepping like mad for this therapy, cut right down on alcohol, I didn’t like that part!! Eating blueberries, good skin care in moisturising twice a day,.
I’ll keep you all posted.
Posted Mon 15 Apr 2019 6.24pm by BobbyJovi96
Hollie07 if only i could send a photo of my current state, you wouldn't even think i had it! All thats on me now is these pale wee marks, Its cleared it up so well
Posted Mon 15 Apr 2019 6.49pm by Hollie07
Well I’ve had to order myself some. I just can’t deal anymore! I’m 26 and I’m having to buy clothes that hide my whole body just so it’s not showing. All this because of a strep throat. I thought it would be gone after a month. Onto month 5 now. I’ve tried everything. Blueberries didn’t work for me. Neither has cutting gluten and diary out. Just hope this works for me! I’ve been waiting 2/3 months for a hospital appointment. I don’t want to be put on any of the medication that I’ve read about either.
Posted Mon 15 Apr 2019 10.46pm by BobbyJovi96
Hollie07 i really hope it works for you! I actually got my letter for my hospital appointment after 2 months of waiting last week lol don't know if i should still go or not, its not until the 7th May and with the way this is healing i might not have anything to show the Doc! Lol
Posted Thu 18 Apr 2019 4.03pm by CharlieJ1
I just came across this from browsing some forums and thought i should reach out to say that i had really horrendous guttate psoriasis too! I was covered from head to toe and it was the most horrendous experience. I remember having so many 'plaques' across the front of my stomach that they would bleed and i couldn't even tie the rope around my dressing gown as it would hurt too much!
I tried absolutely everything, coating my body in coal tar solution, every steroid cream and topical cream under the sun and just nothing worked.
I was referred to a dermatologist (which took about 15 months!!) and eventually i was prescribed phototherapy. I had 10 weeks of treatment and went threee times a week and it COMPLETELY cleared my skin up. I haven't had it back since and i honestly can't recommend it enough. It helped me so so much and hopefully it could help you too!
Hope you find something that works as i know how much it can impact your everyday life!
Posted Thu 18 Apr 2019 7.43pm by MKA
I can not believe they can’t find a cure for this, things are so advanced these days aswell!!
I broke out with GP 3/4 weeks ago last week the doctors told me it was GP they gave me exorex and said it will be controlled in two weeks I’m on my second bottle and there’s no signs of anything getting better! Maybe im being impatient!
I wash in tar coal and use exorex and exorex moisturiser no sign of it going down!
My stress levels are all over the place I’ve gone back to work to take my mind off it and started meditating at night trying my best to keep my mind off it and get my stress levels down!
Posted Fri 19 Apr 2019 2.17pm by Darren S
I’m in my late 40’s, married with three kids. Had my first and only flare in Jan 2018. Just living with it now.
I finished my first week of UVB treatment today. So far I’ve spent a whopping 47 seconds under the lights. I have terrible GP, from my feet to my neck. My skins looks like red leopard print.
After a week of treatment m, I must admit my redness is now the colour of sunburn, and the patches themselves feel flatter.
I’m really hoping this works. The most frustrating this is the hour and a half round trip to and from the hospital for less than 20 seconds of treatment.
Posted Sun 21 Apr 2019 8.32am by mazza
i started out with a flare up of guttate psoriasis after a stressful time at work as soon as confronted the situation istarted with spots 2 days later iam covered head to foot only face not covered this stresses u out more as body goes from spots tofull blown psoriasis . tried the steriod creams derma cream .luckly i was able to go away 4 2 weeks thatas helped loads as sun as always been a cure for me so now im home trying diff moisturisers as its not so angry red its scaly now so whats the best one to use pls . i do find calpsol shampoo great to use a bubble bath and shower gel it calms it down and helps with itching . its started feb 15th hoping now its on its way out .
Posted Sun 21 Apr 2019 12.49pm by Hollie07
I tried the tablets BobbyJovi96 recommended and after 2/3 days my psoriasis is a lot less red and raised. My legs are 100% better. This is the only think that’s worked for me so far. I ran out of enstilar and normally it comes back worse but after taking these tablets I’d highly recommend the turmeric tablets!
Posted Mon 22 Apr 2019 6.24pm by BobbyJovi96
Hollie07 im so glad they worked for you!
Posted Mon 22 Apr 2019 7.41pm by MKA
Would Holland and barrat turmeric capsules work the same you reckon ??
Posted Mon 22 Apr 2019 8.02pm by BobbyJovi96
I would say they should do, like its the tumeric that helps. Just make sure there is black pepper extract in it as that what makes it easier for the stomach to handle. Only reason i went for the autoimmune tablets was all the reviews i saw impressed me and i wanted to give it a try and glad to say they work! Now i will say DO NOT expect your GP to Completely go away as i still have a few marks but the redness and scaley skin has went away and i have smooth almost clear skin again! Hooe it helps
Posted Mon 22 Apr 2019 10.14pm by MKA
Thanks for the reply bobbyjovi96
I’m happy with a few marks just aslong as as the majority go away, my sisters getting married end of May I need it to look settled for then, fingers crossed it works for me to
Posted Sat 27 Apr 2019 9.24am by MKA
Wondering if any one can help me I have dry skin on the side of my face and dead skin cells in my hair guessing it’s for my GP
Anyone got any tips ?
Posted Wed 1 May 2019 5.11pm by _KayS
Hi all, my GP has gotten much better unfortunately I have been diagnosed with inverse psoriasis which isn't great, I'm constantly itchy but taking antihistamines. Just wondering if anyone has any luck with getting rid of the marks? My patches aren't scaly anymore but instead just marks of discolouration all over my body and a purple colour on my legs. Just worrying about how much longer I can get away with long sleeve iteams and jeans. x
Posted Thu 16 May 2019 8.28pm by BobbyJovi96
Hi all just an update on my condition. So thankfully i am pretty much 95% clear from having this horrible disease! The advanced tumeric that i recommended last time i was on here deffo worked its charm and then when i went to the hospital referral i was given coal tar to help the remaining marks on my body. However I have noticed that after I'm finished a workout where my body temp is sky high, the marks where i had it comes back a bit red, is this normal? Sort of freaking me out abit thinking its coming back but once i cool down they fade away again. Again im not sure if this is normal?
Posted Thu 16 May 2019 11.02pm by Hollie07
Hi bobby, I’ve also experienced this issue. I went on holiday and my legs have red scars where the psoriasis cleared. So now I have red dots/bruise like marks everywhere. I’m guessing they’re just scars? I think they will go eventually. I think when it’s heat applied to it.
Posted Thu 16 May 2019 11.08pm by Lauz329
Hi all, not posted on here fir a while as I started to clear up and just been so busy!
So around a month ago around 70% had cleared but sadly last week I noticed it creeping back again. I’m still not as bad as I was but it’s still come back which I’m obviously upset about.
Anyone else had this?
Posted Thu 16 May 2019 11.15pm by Hollie07
Yeah exactly the same. Went on holiday and it cleared up. However not due to sun as the weather was poor but I realised my trigger must be stress. I’ve come back to work Wednesday and it’s already come back on my first day. Really don’t know how to handle it as I can’t just not go to work
Posted Thu 16 May 2019 11.17pm by Lauz329
Sorry to hear that Hollie. I too think it’s stress related as mines coming back from having to move house plus interviews for a new job.
I’m hoping once I’m settled in my new place it’ll start to calm down again
Posted Thu 16 May 2019 11.32pm by Hollie07
Well I’ve revently bought some CBD oil. I used it for the first time last nuhuy and it made me really relaxed. Very difficult to destress. I find with exercise it makes it worse as wearing gym clothing is tight and irritates it.
Posted Sat 18 May 2019 1.41pm by Margyb (edited Sat 18 May 2019 1.44pm by Margyb)
Hello, I'm so glad I've found this group. I've had psoriasis since I was about 9 and I was known as 'the girl with the greasy hair' in my teens as my Dad had to apply a coal tar ointment to my scalp every day. I was then prescribed Dermovate scalp application and body ointment when I was about 14 and it cleared up within weeks but have always been self concious and Im now 55. A few weeks ago I had strep throat and was going through a very stressful time. The antibiotics cleared the strep throat but I'd developed a scabby rash which felt like gravel over my back, arms and front. The nurse practioner at my surgery diagnosed chickenpox and I was worried sick about passing it on. I am fortunate that I can work from home and fell well enough to do so. A week ago the scabs had spread into my scalp, round my neck and down my legs and I was really upset and got an emergency appointment with my doctor who immediately diagnosed GP. She prescribed hydromol and I'm seeing her again on Monday to discuss further treatments. My wonderful boss told me to take a weeks annual leave and I managed to have 'me time' for 5 days while my 5 year old Granddaughter, who lives with me, was at school. I googled GP and have eaten loads of fresh vegetables, fish and chicken and I'm drinking loads of water. I've alternated bathing with the oats and Dead Sea salts but I know it's not going to disappear overnight. I don't want to use the steroid creams again permanently so reading your advice and hints in this forum has made me feel more positive about dealing with it. I'll keep you informed how I get on but once again Thank You for sharing your stories and I wish you all well x
Posted Sat 18 May 2019 1.56pm by Hollie07
Hi Margyb I have been in the exactly the same situation. I’ve had psoriasis since I was 4 and I’ve always had episodes and then remission for 5-7 years. When I’ve had flare ups they’ve always only been a few patches on my legs, elbows, face and worst in my scalp. But I also had a strep throat at Xmas along with being stressed. Antibiotics cleared the strep up but then a month later I started coming out in a rash that eventually spread all over my body. I went to a&e as they thought I had meningitis. Doctor diagnosed me with foliculitus from shaving? After a lot of research myself and linking my psoriasis with the strep, I realised I’d developed Guttate psoriasis. I went back to the doctors and they confirmed it. I’m on month 6 with it now and it has calmed down a lot but my body is full of scars. I’ve realised one of my main triggers is stress. But it’s different for a lot of people. Maybe try an anti-inflammatory diet? It works for a lot of people. I’ve also being using enstilar which is great but not to use all the time. However, I’ve completely stopped using this 3 weeks ago. I’ve tried to stay away from being put on anything stronger such as methotrexate. I do think diet can help a lot but takes longer. I try to eat a lot fruit, mainly blueberries and veg. I try to cut out as much gluten out as possible and limit dairy. There’s some great advice in this chat which has helped me a a lot. The advice on blueberries and turmeric tablets helped me the most! I hope you find you’re remission!
Posted Sat 18 May 2019 3.28pm by Margyb
Thank you Hollie07. I've cut dairy out this week and today ate a few cubes of cheese I'd cut for my Granddaughter and within an hour my skin was burning and itching. I'm keeping an 'elimination' diary and we already eat blueberries but I'll double the amount I eat and will try the turmeric capsules X
Posted Sat 18 May 2019 3.33pm by Hollie07
I think it’s just different with everyone but the blueberries and turmeric tablets are very good. You need to get the tablets with black pepper. Ive also started using CBD oil on a nighttime to not feel as stressed. It is a horrible disease and I don’t think others realise the magnitude of it especially on mental health. I’ve had more help from forums like this than I have from the doctors or hospital. I’m all for the natural remedies.
Posted Sat 25 May 2019 9.52am by CPWCollier (edited Sat 25 May 2019 10.01am by CPWCollier)
I'm experiencing an outbreak of Guttate as well. Mine first started showing up on my stomach about 2 weeks after I had feverish symptoms--possibly strep or some bacterial infection. The illness went away after a couple of days so I didn't treat it or think much of it.
I thought the red spots showing up after the fever were pimples, but then they started to spread and pop up on my back in a larger size. I tried tanning salons for a little bit that seemed to help very little. Ended up going to my Primary Dr and 2 dermatologists who diagnosed it as guttate psoriasis. I was prescribed a steroid ointment (Calcipotriene/Betamethasone Dipropionate) which actually helped clear the red spots up fairly quickly. My skin was pretty much clear for the most part, but I was using the ointment nearly every day and more tiny spots would start to pop up on my body and eventually my scalp too if I didn't use the ointment.
I've started drastically changing my diet to help the spots from returning (no dairy, no meat, low to no sugar, no nightshade veggies and trying to cut out gluten) and take supplements like Fish Oil, Milk Thistle and a Probiotic every day. I'm also halfway through a 10 day cycle of doxycycline, an antibiotic that's supposed to help, since my initial fever/bacterial infection was never treated. I live and work in a stressful environment and do my best to manage, but I'm sure my stress levels aren't helping.
Just a few days ago I tried taking myself off the steroid creams cuz I don't like the idea of lathering a steroid on my body and in my scalp every day. Since I stopped, I have broken out worse than it has ever been (It's been 6 months since the spots initially showed up). I'm wondering if this is a reaction to the overuse of the steroid cream or what?
I've found multiple threads on the success of using pure glycerin 2-3 times a day on guttate psoriasis. It's supposed to gradually help skin cells mature correctly if you're diligent with applying it daily for a month or so. I'm giving that method a try now. I also ordered an all-natural topical cream called Zen Fusion Formula that is used in Eastern Medicine from Doctors-Defense to try as another alternative.
Hoping and praying something will eventually work. Any guidance or comments are greatly appreciated!
Posted Mon 27 May 2019 4.50pm by Lauz329
Has anyone found a link with drinking alcohol? I find I get a flare up after a big night!
Posted Tue 28 May 2019 4am by OhNo_NotAgain? (edited Wed 29 May 2019 11.08am by OhNo_NotAgain?)
Laz239: I have read posts from several pople who have seen their psoriasis flare up after drinking alcohol, especially affter a heavy night. I have also seen posts from people who observe no apparent link. I have not seen such any such correlation myself, but if I did, I would avoid drinking heavily or moderate it as much as I seemed to need to to avoid bad flare-ups. I think that sometimes with psoriasis it is a case of doing what seems to work for you, even if nobody else says that they have found the same.
Posted Wed 29 May 2019 7.33am by BobbyJovi96
Hollie07 i think i know how feel about the red marks coming back when heat is applied! Used a sunbed yesterday to start the tan for my holidays in july and notice that the marks on my tummy where the GP was came back quite red, but they are not raised or anything, they are just a slightly reddish mark. Would this mean that i can't use the sunbeds? Gonna have to re buy the tumeric tablets which all though they worked wonders for me, was glad that i finished them back in april when it had cleared
Posted Wed 29 May 2019 8.04am by MKA
My GP has faded I have white patches everywhere.
I have the same to my marks show up more in heat, but there not raises there flat then they disappear! So frustrating as I get worried there coming back! Always scared to eat something or have a glass of wines incase it flares up!
However I’m still drinking turmeric teas and having COD liver oil tablets and I apply coconut oil twice a day and PRAYING is won’t come back :-(
Posted Wed 29 May 2019 8.15am by BobbyJovi96
MKA its very frustrating isn't it! Saw the marks last night and i thought to myself oh holy f#%k here we go again right when summer is here but i still have coal tar ointment left from when the hospital prescribed it to me so hopefully that will help and im gonna continue using the sunbeds and probably will buy the tumeric tablets again just to be on the safe side
Posted Wed 29 May 2019 8.49am by MKA
Yeah I hope it’s not something that will permanently happen, my coal tar started to give me a rash so had to stop using it apparently was using to much of it, feel like I can’t win with anything.
Happy it’s faded will be even happier when it completely goes
Posted Fri 31 May 2019 8.02am by Margyb (edited Fri 31 May 2019 8.47am by Margyb)
Can anyone tell me when the GP develops scales does that mean it’s improving? I’ve been eating loads of blueberries and a healthy diet and although it’s still itchy, a few of the larger spots are scaling over. Is there anywhere that tells you the ‘cycle’ of gp - from getting the first spots to its (hopefully) clearing up?
Posted Fri 31 May 2019 2.28pm by OhNo_NotAgain?
Margyb, my guttate psoriasis faded gradually but never develped scales or changed it's basic appearance, just became more and more faint and finally disappeared.
Still have the plaque psoriasis of course - with its scales.
Posted Mon 3 Jun 2019 9.47am by Margyb
I’m feeling like a failure right now. All my intentions of dealing with my gp naturally seem to have made it worse. I’ve gone from about 30% coverage to 90%. It’s starting to creep on my face and is so noticeable around my neck. My back, chest stomach arms and legs are covered and I feel I’m constantly burning. I’ve used organic coconut oil, eaten blueberries and cut out red meat, dairy, junk food for nearly 2 month now. I’ve ordered the turmeric capsules and bought Hanna Sillitoe’s Radiant book yesterday but I’ve been in tears all weekend at how bad this is and I’m waiting for my Doctor to call me back to discuss other options. I still don’t want to lose hope in a holistic way of treating this but really feel I need medical help at the minute. This forum still gives me hope for the future but right now I need something to help a little quicker.
Posted Mon 3 Jun 2019 12.07pm by MKA
My GP has faded and I have pigmentation, i went through the homopathy route it’s a place in Birmingham I went to!!! I started noticing a difference in a week! I have done weekly progress pics, I have been taking them for a month went back last week because I ran out and now he has given me stuff to help with pigmentation!
If anyone wants the details let me know more than happy to share
Posted Mon 3 Jun 2019 8.21pm by Sky
Hello Everyone. I’ve had psoriasis on feet and legs for 6 years now, sometimes I feel very self conscious. I don’t go to swimming pools on my own but happily take my 3 year old or 7 year old granddaughters. I have to stay in the shallow end with both so my psoriasis is very visible. A few weeks ago I was in the pool laying in about 10cm of water and a lady walked by with marks all up her legs. I could have cried with joy when I realised she had paid out hundreds of pounds on tattoos so that people would look at her. and my marks were all natural.
I have the odd time when I’m feeling low, but snap out of it quickly when I remember the lady with tattoos..
We need to feel proud and happy to be who we are, and what we are. Good luck everyone. Stay positive.
Posted Wed 19 Jun 2019 8.25pm by MKA
Do you still get the patches show up in the heat???
Posted Wed 19 Jun 2019 8.39pm by BobbyJovi96
MKA if I'm honest i haven't noticed, the marks i had when i used the sunbeds have faded away again. Will update when i start back using them next week but so far i look to be 100% clear now
Posted Wed 19 Jun 2019 9.34pm by MKA
Mine happen when I showed the marks come up on my legs but then when I moistures they go again....hoping it’s temp and will go away
Posted Sun 23 Jun 2019 12.20pm by Jemima33
Hiya! 👋🏻 Im so happy to read this thread. Im on week 5 of GP accurately diagnosed by a nurse practitioner at my surgery after 3 weeks of antibiotics and a nasty tonsillitis infection (am yet to see a Dr) She gave me.. Cetraban, Dovobet, Hydromol, Emollin, and Capasal.
With so much paraffin Im about 70% candle!!
The only thing that seems to be helping is the Capasal shampoo. (Coal tar and coconut oil) The cetraban makes them angrier!
Having done a little research I have decided to ditch the steroids too and am now going a bit natural . I cant get into my head that Im putting chemicals on poorly skin?!? I have a knowledgeable friend that said Psoriasis stems from a leaky gut (obv there are genetic factors first) leaky gut can be caused by necessary antibiotics and they can cause havoc with your system so Im trying probiotic capsules from a herbalist, coconut oil on my skin, changed my diet, no caffeine, no alcohol, cod liver oil and vitamin D capsules and Turmeric Tea..
I may be still spotty but after a week my mood is improving and for the first time Im actually FEELING healthier, more relaxed/positive and have more energy so Im gonna stick with it! Im also taking something called Oregon Grape Root capsules which Im undecided about but Im gonna give it a go!
It seems everyone’s guttate reacts differently to different things so Im not expecting miracles and Im hoping when I finally see my GP next week he will refer me and offer light therapy but Im gonna give it a bloody good go at healing from the inside! Take back a little control from the nasty little ********.
Crossing fingers for you all you get some improvements!!
Posted Sun 23 Jun 2019 6.47pm by MKA
I would say go the natural way, I did that and it’s the best thing I ever did. Everyone is different however I had Turmic tea, omega 3 and 3 litres of water a day I also used coconut oil once a day!
2 months on...my arms stomach back are clear however my legs have white pigmentation!
Don’t let any doctor tell you this is permanent this can go I was distressed for one month I had it all over my body! IT WILL GO!
Eat a lot of Veg aswell
You can do this
This is the most distressing thing I’ve been through and I managed to get through this and I know anyone can! Once you see it go you can start introducing things back in but slowly!
Goodluck and just be strict your skin is important!
Stay blessed :-)
Posted Sun 23 Jun 2019 8.36pm by Jemima33
Thanks MKA :)
Im following slimming world SP which is low carb, limited dairy, lean meat/fish, loads of green leafy veg and berries so hopefully that will help?! Also loads of water! Its all trial and error and its frustrating to not know if you are helping so thanks so much for giving me hope!! :) Im off for a tumeric tea...
I’ve got this! :)
Posted Sun 23 Jun 2019 9.01pm by MKA
It is trial and error some thing that might work for me might not work for you, however try it, you have nothing to loose!
You can get through this xx
Posted Sun 23 Jun 2019 10.14pm by gewakefie
I’m in week 3 if GP second time been clear for 4.5 years first time after tonsillitis took about. 9 months to fade didn’t change anything just sunbeds. This outbreak covered about 70% of me just finished my first cab of enstilar and honestly guys all the spots have faded it’s unbeluevable
Posted Mon 24 Jun 2019 10.45pm by Shirl67
Hi, I’ve had psoriasis for over 25 years and used all the creams and lotions.
The best treatment is phototherapy, there’s two types ones UVA which you have to take tablets with 2 hours before treatment and the other most popular one is UVB.
UVA works best for me it clears mine up with about 8-10 treatments. The UVB takes a lot more treatments to clear.
It has calmed down a bit over the years but I still mainly get it from the waist down so can never wear shorts or dresses unless I’ve just had a course of treatment.
Antihistamines help with the itching but no matter how much moistureiser I use it doesn’t make any difference, so get to the dermatologist and request phototherapy that’s the only treatment I recommend.
Posted Fri 2 Aug 2019 11.20pm by Lauz329
Hi all. Not posted in a while as leading such a busy life!
anyway, my update is that 70% of my GP has cleared however, I seem to have small dots type marks that fade but come out in the shower or heat. Anyone else get this?
Posted Fri 2 Aug 2019 11.37pm by MKA
I have the same just on my legs though, come out in the heat but then fade. I find it really strange. I’m clear just for pigmentation left on my legs :-)
Posted Sat 3 Aug 2019 7.49am by Lauz329
Yes MKA i’m the same on my legs and arms.
My arms in particular come out in the heat then fade. Just finding it frustrating more than anything
Posted Sat 3 Aug 2019 6.20pm by MKA
Yeah let’s be hopeful that one day it will completely disappear