Participants wanted - understanding the impact of GPP on everyday life survey

The Psoriasis Association in collaboration with the University of Northampton are conducting research into the everyday life of people living with Generalised Pustular Psoriasis (GPP).

The overall aims of this research are to investigate the impact that GPP has on everyday life and to increase knowledge and awareness of GPP and what it is like to live with.

If you or a loved one you care for have been diagnosed with GPP, are 18 years and over and you live in the UK, we would love to hear about your experiences of living with GPP.

How to get involved in the survey

To take part in our online survey, simply follow the link: https://www.surveymonkey.com/r/JRSMWQ6

Your insights will help shape this vital research and support for the GPP community.

If you require further information, please contact: research@psoriasis-association.org.uk.

What is generalised pustular psoriasis?

Generalised Pustular Psoriasis is a type of ‘Pustular psoriasis’ psoriasis which refers to pustular psoriasis across the body. (Palmoplantar pustulosis or acropustulosis is Pustular Psoriasis of the palms and soles). 

When pustular psoriasis occurs on areas of the body other than the palms and soles, it is known as ‘Generalised Pustular Psoriasis’ is (GPP) or ‘von Zumbusch pustular psoriasis’. This is different and unrelated to palmoplantar. The fluid in the pustules is not an infection or bacteria, and the pustules are not contagious.

GPP is quite rare, but it is a serious condition that requires urgent medical attention.

Signs & Symptoms

The main symptom of GPP is small pustules on a background of very red or dark skin, on any area of the body. These pustules are filled with fluid which often gives them a yellow or cream colour, and they often merge into one another to create large areas of pus. These areas eventually dry and peel, before new crops of pustules appear. The skin often feels hot to the touch, and may be sore, tender or itchy.

GPP can spread very rapidly, and can make the person who has it feel quite unwell, due to the skin being overwhelmed and unable to control the body’s temperature. They may have feverish symptoms, such as a headache, nausea, a high temperature, shivering, and feeling hot or cold and tired.

You can read more in our pustular psoriasis information sheet.