Participants wanted - understanding the impact of GPP on everyday life survey

The Psoriasis Association in collaboration with the University of Northampton are conducting research into the everyday life of people living with Generalised Pustular Psoriasis (GPP).

The overall aims of this research are to investigate the impact that GPP has on everyday life and to increase knowledge and awareness of GPP and what it is like to live with.

If you or a loved one you care for have been diagnosed with GPP, are 18 years and over and you live in the UK, we would love to hear about your experiences of living with GPP.

About GPP

GPP is a rare and serious condition which often requires emergency medical attention.

• Flares (sudden and acute episodes) of fluid filled pustules
• These flares usually last between 2-5 weeks but can persist up to 3 months
• Pustules are widespread and often merge to create larger areas of pus
• Sore, red and inflamed skin underneath the pustules
• Often symptoms are experienced such as headaches, nausea, high temperature, fatigue, shivery and feeling cold or hot
• Complications of a GPP flare can include infections, sepsis, hypocalcaemia, renal failure, congestive heart failure and/or respiratory distress

You can read more about the condition on our Generalised Pustular Psoriasis webpage.

Inclusion criteria

• To take part you or a loved one must have a diagnosis of GPP from a clinical dermatologist.
• Are aged 18 years and over
• Live in the UK

How to get involved in the survey

If you or a loved one fit the above inclusion criteria, we would be keen to hear about your experiences of living with GPP.

To take part in our online survey, simply follow the link: https://www.surveymonkey.com/r/JRSMWQ6

Your insights will help shape this vital research and support for the GPP community.

If you require further information, please contact: Melinda.spencer@psoriasis-association.org.uk