Posted Mon 25 Nov 2019 10.34pm by JC83
Hi all, my 4 year old daughter has suffered from very aggressive psoriasis for just over a year. We have been prescribed all sorts of creams from hydromol/betnovate to enstillar/dovobet/elocon etc. Nothing has ever cleared it up and it has gradually spread now covering around 80/90% of her body in raised red lesions and it's so tough watching her suffer.
She has just finished 3 months of uvb phototherapy treatment as she has had the maximum 40 treatments and it isn't much different now to when we started to be honest.
We have been advised by the dermatologist to consider alcetretin or cyclosporin. I've read a few different things about the side effects which are a concern. Mainly as I worry she is too young to understand or communicate any side effects she may have.
I'm wondering if anyone has had any experience of children being prescribed these medications and if there were any side effects and how they dealt with them?
I'm also going to try the blueberry thing that seems to have worked so well for others!
Any advice would be gratefully received.