Posted Wed 11 Mar 2020 1.09pm by Miranda
Hello! I have recently been diagnosed with PPP following 6 painful months of trying every cream, lotion and ointment known to man!
The extreme dryness, cracks and now deep lacerations have now appeared on my feet as well as my hands and I am now finding every day activities so difficult. I am an otherwise healthy 50 year old.
I wear gloves nearly all the time, soak in Dead Sea Salts, smother my hands with Epaderm, Cetraben, Eucerin and anything else I can lay my hands on! I am also in the first week of starting an 8 week course of PUVA.
I am keen for any advice on what else I can do or take?
Posted Tue 17 Mar 2020 8.53am by dansee
I had been suffering this for last couple of years.
I'm finally on the mend.
What I found triggered it for me was being on humira. It took months to being diagnosed and that was only after I had managed to gain an appointment at Guy's hospital in london.
I ended up changing medication to Stelera and it's pretty much cleared everything up now.
It was the worse feeling having that happen and I know your pain with the constant dead sea salts and trying any lotion under the sun!
Hold on in there.
Posted Tue 17 Mar 2020 9.20am by Miranda
Thank you so much for your kind words and the medication advice.
I have now been to see a Naturopath who is going to look into CBD lotion and also food intolerance testing. I wonder what that will flag up?
Thank you so much for your reassuring reply.
Posted Tue 17 Mar 2020 9.30am by dansee
for me it was just using any lotions that eased the symptons.
It just took me a long while for the humira to wear off.
But I tried everything from changing food habits etc till I found what worked for me.
You'll get to a good place eventually, good luck :)
Posted Thu 19 Mar 2020 9.13pm by Richysorefoot
Hi guys, PPP on the souls of my feet. Like walking on glass sometimes.
I have found that wrapping my feet in cling film over night, having put a mixture of white parafin, steroid cream on first.
During the day I use a hemp based moisturiser.
I've also soaked my feet in salted water, and potassium permangamate. However for me plain warm water is good.
What I will say about steroid creams is if you use too much it can also inflame the areas. A little bit is just enough.
Posted Wed 1 Apr 2020 9.27pm by Shashi
Two years ago, I also suffered for about six months before finally starting ciclosporin. It worked very well and very quickly but it is allowed for only one year. I came off it in December and it has been torture ever since. I started methotrexate in mid February but I am still waiting, six weeks on, for it to kick in. It was mainly my feet which were/are red, sore, cracking easily and just constantly terribly uncomfortable or painful. But now it has spreads to my hands so even typing this is uncomfortable. My fingertips feel like I have burned them. Really, really depressing... Anyway, I am just hoping that methotrexate finally kicks in. Lotions like Hydromol help briefly. Like someone else said, I do find wrapping my feet in cling film with Hydromol on does make them feel better so I can walk my dog and do other stuff before it all becomes too much by the afternoon. Good luck everyone! And stay safe ...