The cringe-worthy story of how I was diagnosed with genital psoriasis

Posted Thu 11 Feb 2021 14.43 by TheMathFolder - 32 from Madrid, Spain
A 28-year-old man struggling with genital psoriasis. Blogging my personal experiences in The Math Folder (a publication on Medium)

The story of how I was diagnosed with genital psoriasis is a tale of mystery and adventure, a quest filled with juvenile confusion and dangerously high levels of awkwardness. In the winter after I turned 21, I started to find dead skin on my underwear. Every time I would notice more and more accumulating there, along with increasing itchiness in the area of my perineum where that skin was coming from. Since the region was not visible to my eye, I never noticed the patch of red, irritated skin I had there, but after putting up with the discomfort for a while I figured it was time to do something about it. I pluck up the courage and, with this symptom under my belt, went to my first doctor ready to face the awkwardness. Because the problem was located in the genital area, I figured the right doctor to see was a urologist. I felt a bit anxious coming to the appointment. I guess most people wouldn’t be thrilled either by the idea of having their genitals examined, but bear in mind that, back then, I was a 21-year-old virgin with no sexual experience of any kind. My penis had remained concealed for many years, kept secret like the Ark of the Covenant waiting for an Indiana Jones to discover it. I had always pictured someone a bit different to show my penis to for the first time, but I guess a short-winded, 60-year-old doctor with tired analytical eyes and a shaky hand would have to do. He asked me to drop my pants and lie down, and instructed me to move my penis right and left like a joystick, then my testicles, in order to expose the whole affected area. As I stood back up, pulling up my pants, my face still red from the embarrassment, he passed a disappointing sentence. “This is a skin problem, I can’t really help you with that. You should see a dermatologist”. Like a teenage girl with daddy issues, I had given away my flower to the wrong guy. Later that day I looked for a dermatologist and made the second of a large list of doctor appointments. Soon after I went to the dermatologist. The fact that it was the second time going through such a process made it only slightly less awkward. He prescribed some lotions for me and scheduled a second visit the following week. The lotions didn’t do anything, so on my second visit he took another look at it and wrote me a prescription for a new lotion. Seven days later my skin is the same, and I’m walking to my third appointment with this guy wondering whether he is really just a creep that’s writing me prescriptions for placebo to get to see my dick every week. So I’m there, pants down, exposing my privates once again, and this time the doctor notices a new patch of dry skin a bit further up, on the base of my penis. He takes a sample of the skin there to get it sent to the laboratory, and it turns out to be a genital wart. -------------------------- To this day, it remains a complete mystery how the hell I got an STD despite being a virgin. Everything I read about genital warts tells me they are caused by the human papillomavirus (HPV) and transmitted through close genital contact. Although this can technically mean you can contract the virus while being a virgin, it implies that you must have had at least some sort of sexual experience where you came in close contact with somebody else’s genitals. That had definitely not been my case. Back then, I had the black belt in virginity. I hadn’t even kissed a girl before, much less been anywhere near a vagina. That genital wart was the fetus of Jesus in the Virgin Mary’s womb — a true miracle. My dermatologist sent me to the surgeon to get the wart removed. Things were escalating really quickly. My dad, whom I had been forced to update on the whole predicament when things started getting serious, drove me to the hospital on the day of the surgery. They made me wear one of those smocks that tie up in the front and exposes your ass and carried me on a stretcher to the operating theater. Everything looked like the medical shows I would watch on TV. I laid there face up, slightly blinded by the big round flashlights directly above me, with doctors showing up in my field of vision as they hovered around getting the equipment ready. My penis, always a secondary actor in my life — if not just an extra — was finally having its breakthrough. It was the center of everyone’s attention, it had all the spotlights on it. Get ready buddy, the cameras are rolling, it’s your time to shine! The medical team gathered around me, prepared to start, and I felt a sharp pain as they punctured my penis to administer local anesthesia — the only thing I would feel throughout the whole operation. I decided that, since the surgery was not very complex and I had been left awake, I might as well try to enjoy the experience. It certainly was a unique situation, having the surgeon and his nurses work diligently on my private parts as I laid there witnessing the whole thing (or, rather, as much of it as my position allowed me to). The show did not last very long though, and soon I found myself back into the changing room, carefully putting my pants on as I tried not to touch much the muddle of bandages that was now my penis. The post-operative was not fun. When I removed the dressing, the whole area down there was a beach in Normandy on June 7th, 1944. A bunch of bloody, amorphous meat with colors ranging from flesh tones, to yellowish, to red and purple. My swollen penis looked like the face of Rocky Balboa after the fight with Apollo Creed. It was a truly sad picture. I felt sorry for it, as God knows I had not given it many satisfactions in my life and it seemed like suffering was all it knew. I was glad to see it recover quickly though — in just three or four days, it finally resembled the shape of a penis again, and I could take a pee without my heart breaking for the sight of it alone. -------------------------- The problem was that, of course, that wasn't the end of the story. In focusing on the miraculous discovery of the genital wart, everybody had forgotten about the issue that got me to the doctor in the first place. But I for sure had not, as my testicles/perineum area was still pretty dry and itchy. Wary of my first dermatologist, who had only been taking shots in the dark until he stumbled upon the wart, I decided to try with a new one. This second dermatologist aimed in the right direction surprisingly quickly. He wanted to know whether there was any history of psoriasis in my family — and after asking my father we found out that my grandad used to suffer from it. He checked my nails and saw their thickness and the tiny dents on them. He recognized that the genital wart had just been an unrelated incident, and was pretty certain about what my real diagnosis was. After four doctors, near ten examinations of my genitals, a surgery, and a lot of time and emotional distress, I finally got my answer: I suffered from genital psoriasis. -------------------------- Nowadays, my life as a man with genital psoriasis is not very different from what it would be without the condition. I have a few patches of psoriasis that get worse periodically, and a set of lotions to bring them back to a better state, and that’s about the scope of the disease for me. It has occasionally inconvenienced me but generally not hurt my sex life significantly, or my general well-being for that matter. During all these years since I was diagnosed, I have familiarized myself with my psoriasis and learned about it. I am aware now of the strong psychological aspect of this disease, and I have come to understand better where it comes from for me personally, and in what conditions it intensifies and diminishes. While it is something that I will always have to live with, I now see how being more in tune with myself and my body can help me deal with my genital psoriasis better. Looking back, I see a young boy that was frightened, insecure, forced by a disease to make vulnerable precisely the part of him that he cherished the least and zealously concealed the most. My struggles towards a correct diagnosis turned out to be only a tough beginning to a longer path of self-discovery that would eventually bring to the surface many of my self-esteem issues and my problems with intimacy, sex, and porn. But, as they say, that's another story for another time.

Posted Thu 11 Feb 2021 20.49 by OhNo_NotAgain? (edited Thu 11 Feb 2021 20.49 by OhNo_NotAgain?)

There are over 100 types/strains of the HPV virius and only 40% cause typical genital warts, on the moist layers of the body around the genitals. Your wart was not necessarily sexually transmitted. I am 63 years old, and found my first genital wart in 1981. Over the years I have had them removed from the shaft (outside) of my penis, the glans, the scrotum and even just on the opening of the urethra. Not ONE of the warts EVER began life as a patch of dry skin. I have NEVER been attended by a surgeon or required treatment in an operating theatre by a medical team, nor required bandages afterwards. Essentially all warts were cauterised in seconds or aoocasionally minutes, with a range of options, an electical hot-needle rather like a soldering iron, with acid, with liquid nitrogen applied with cotton wool, and most recently with liquid nitrogen from gun shaped device. a local topical anaesthetic was used on in the most sensitive areas when the hot-wire method was being used. I have been effectively treatred in UK, Indonesia, Singapore, Philippines, Azerbaijan, and again most recently in the UK 2 months ago.

Posted Thu 11 Feb 2021 22.40 by TheMathFolder - 32 from Madrid, Spain
A 28-year-old man struggling with genital psoriasis. Blogging my personal experiences in The Math Folder (a publication on Medium)

Thanks for the information. You sir sure have a long history with genital warts. Yours might look different maybe. The one I had was quite flat, and it didn't look too different from a patch of skin affected by psoriasis, hence all the confusion. I don't remember if other treatments were considered back then. I've googled a little bit and apparently surgical excision is considered an old, last-resort method to get rid of warts. So I guess I came across an old-fashioned doctor. For the record, this was in Spain and almost ten years ago. Anyway, thanks for reading it and I hope warts cut you some slack!

Posted Sun 14 Feb 2021 17.39 by Murphy

Hi, first of all thanks for the detailed description. I had never heard of this form before so it was very enlightening. Must have taken you some time and courage to describe this... I'm not sure how to respond to this. My kind of P is different, it's all over my body. Including my genitals - not my scrotum, but my penis is affected. Sex is often painful. I get chaps around the tip of the penis (uncut) and it hurts like hell when my girlfriend masturbates me or when I have sex. I use lubricant when possible, the water soluble kind. And I use condoms because they do the same job. The sperm-killing solvent also works as a lubricant. I use foot creme daily on my penis. I stay away from the stuff with cortisones in that area because they just make the skin thinner, exactly what you don't want. Not sure what else to say, except that I hear you.

Posted Wed 17 Mar 2021 01.46 by cath13

Hi im a woman and have had similar experience, strange how we have all had warts then have genital psoriosis, i personally believe psoriosis is triggered by a bacteria in the gut. After extensive reseach of strep throat virus. As a child i had strep throat and warts on my hands, and got them on my genitals from spreadinv as a kid, Got them when i was older, and have suffered genital psoriosis since. What do you find helps relieve it? It ruins my sex life and had ruined my marriage, causes me so much stress and embarrassment , totally feel for us all its awful.

Posted Fri 19 Mar 2021 22.38 by TheMathFolder - 32 from Madrid, Spain
A 28-year-old man struggling with genital psoriasis. Blogging my personal experiences in The Math Folder (a publication on Medium)

Thank you guys for your replies. It's always nice to find people that can relate, and in a way I should consider myself lucky because for the most part my psoriasis doesn't hinder me that much and I can keep it under control. I do use products with cortisones when it gets bad, but I try to do it as seldom as possible and instead use moisturizing lotions regularly. But I feel like each case is different and I don't usually recommend anything other than finding a good doctor and following their instructions. Beyond palliative care though, I think what's key is to understand under which conditions your skin gets worse and tackle the source of the problem. When my psoriasis gets worse (and these last few days it did, for example), I know it's because something it's stressing me and I need to take care of it and myself, and that's usually more effective than any lotion I could use. But then again, I understand everybody's relationship with psoriasis can be different and for more severe cases it can be harder to rely solely on that approach.

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