Psa

Hi, do you mean cosentyx? If so it can be combined with methotrexate for example. Your dermatologist and rheumatologist would normally need to agree on the change though. Good luck.

Im sorry to hear your suffering a great deal with psoriasis and all that comes with it,ive been through hell and back trying to get the right treatment since i was 9yrs old im 60+now and still suffer the affects of this illness,joints ect ive tried injections+tabs sunbed ect nothing seemed to work,until i saw a great dermatologist with new evidence,in a nutshell psoriasis is set off by a virus that is in your system it doesnt cause symptoms but causes the immune system to go over board,ie causing the body to attack itself,i had volunteered for trials in my 20s with n.h.s,and got all the info blood tests treatments ect,and surprisingly a strong blast of mixed antibiotics given to me by my team worked,not injected but oral over 2 months,my psoriasis slowly went aches+pains ect got less and i had 4yrs of bliss,unfortunately it was a trial that worked but our con guv cut the budget,for more investigation into virus related psoriasis,its well known about in the usa causes and affect ect,but in the gb its down to cutbacks and not enough is done by the n.h.s,carry on as best you can dont give up,see your doc regularly demand a second opinion ask about any trials on psoriasis coming up and put your self forward,keep checking news updates ect on this site,its a wealth of information,dont be alone in this set yourself some targets and go for it,good luck hope all goes well your not alone !

@Billy Bass, interesting, do you have any links or reference info to the results of the trial? Thanks

@steveview I have been on methotrexate, and I had bad reaction to it. My body did not respond well, so unfortunately that’s ain’t an option for me. I have to many con than pro with that medication that no doctor will put me on it, not even the injection form unfortunately. The uk are backlogged with waiting list due to covid. I’ve tried everything I could, I had creams, tablets a few injection and the only thing that worked with my psoriasis was the current injection I am on but unfortunately doesn’t have much affect on my arthritis. I’ve found something that help with my skin but now I have to go through the wait and then the process of finding something for my joints. Which I understand the process and happy to go through it. It’s just I want to find a way I can manage my arthritis better, till then instead of resorting to taking strong pain meds as they are so bad for the body but some days not taking them is just not an answer. I’ve tried special diets, swimming, not putting to much strain on my body etc but I still keep getting serious flares. I was seeing the specialist at hospital for my arthritis but then Covid happened and for some reason I got discharged when I wasn’t medicated for my arthritis or psoriasis, had to go down the route of getting a case against my hospital for neglect as I’ve documented every evidence of neglect. I just feel like I finally get my psoriasis under control, and then my arthritis starts to get progressively worse. I just feel like I can’t win, and don’t have much fight left in me. People around me don’t see how much I truly suffer cause I’m so good at hiding it cause that all I’ve ever known that they don’t understand why I can’t do certain things and tend to make me look like I’m gaslighting my condition and making it out to be worse than it actually is. Which then makes me feel well what the point in being honest about how I struggle and how it makes me feel when they already think I’m exaggerating just cause they don’t see me when I’m in a bad flare cause I can’t physically get out of bed let alone go to the toilet. I find this website so helpful cause they’re people on here who get it, and is understanding cause they have the same condition. It nice to talk to people who also have the same as me, and can relate, I don’t feel so alone. I tell myself they will be light at the end of the tunnel but I just feel so tired of fighting and trying to get through everyday that being able to come on here and speak with people who also in my position help me get through and help me believe I will get there I just need to be patient with myself.

Steview Unfortunately the n.h.s.hasnt made the psoriasis trial public,thay ended the trials early and didnt release any info on them,the trials took place at beverly rd hospital hull uk,and hull royal n.h.s,i did find out ltr through my dermatologist that thay had good results on antibiotics ect,but the cost+time was a main factor,so again in the uk money first people arcade treatment,theres a few usa psoriasis sites like this one were papers have been posted on positive treatment whicn you can search,hopefully thayll look into it again in the future,but itll be too late for us,psoriasis is a terrible illness not only affects joints ect but internal organs aswell not enough is been done its all down to cost,thats why this association is the best place for info and news ect, Keep well and carry on fighting for better treatment through our n.h.s and gov bodies,

Sian Youll have bad times+good times with this illness and the treatment youll receive is arcade,the n.h.s is on its knees and saving money were it can,ive posted above on the subject,unfortunately,any new treatment is years away,so fight for every treatment we have now through your GP and local guv MP the more people who shout this out the better,this illness is a minefield to treat and postcode lottery on treatment,anyone who has it will have different severity on the symptoms thay have,mine is severe joints ect,ive learnt to live with it along with the treatment i get standard n.h.s ect,getting support through self help groups not just for (psoriasis) but for your well being state of mind can open the doors to a wealth of info ect,which can help you with this illness,through experience i know self help is better than no help,look for local support groups you can join,even your local council who helped me with modifications to my bungalow,who have a wealth of information on this illness , and help groups,support,your not alone,hope everything goes well,keep posting and let us know how you get on" Make it a Quest for better treatment !

@ Sian, sorry to hear that. You say you have tried everything for your PsA. New drugs are being developed, I think it is a case of going back to your rheumy and seeing if there are any alternative options available. Hope you get something that helps. Good luck,

@ Billy Bass, there are many pressures on the NHS and resources etc, I suppose they can't follow up every trial and of course without any published results can't comment on a specific trial. A quick search finds numerous studies on the long term use of antibiotics. One thought is that the long term use of antibiotics could outweigh any benefit they may have on P or PsA. Therefore could lead to further long term problems which could therefore mean a cost benefit analysis is against antibiotics. Just my initial thought anyway. I admire your dedication to lobby for better services and care for P/PsA sufferers but many may not be in a position to have time, confidence, energy or even knowledge of where to start to do this, therefore would of course like to see change but just accept the status quo. Hope your endeavours are advantageous. Good luck

Steview Thank you, I hope all goes well for you ..

Thank you, I will keep all posted. It’s nice to be able to talk on here. I will look in to support groups and if any is around near where I am based. I believe this could be very beneficial to myself. I will be speaking with my rheumatologist, to see if I have other options. All your feedback and advice is very helpful, I am very grateful that you’ve taken the time to advise me on advice and support. I wish you all the best and a health life Sian x