Taking Part In Research

See below for opportunities to take part in psoriasis research, or to share your experiences. Please note that these projects are not run by the Psoriasis Association, but by external parties such as academic research departments.

If the opportunities below do not match the type of project you are looking to be involved in, you can also take a look at the UK Clinical Trials Gateway. The Gateway is run by the National Institute for Health Research and will give you lots of information about taking part in clinical trials and allow you to search for a relevant trial in your area.

A study on how people with a visible difference think and feel about their appearance, and their reactions to these thoughts and feelings

Researchers at the Centre for Appearance Research, based at the University of the West of England, are looking for participants for an online survey on how people with a visible difference think and feel about their appearance, and their reactions to these thoughts and feelings.

Participants must be aged 18 or over, based in the UK, and consider themselves to have a visible difference (a physical appearance that the individual concerned considers to be significantly different to a typical appearance). At this stage the researchers are particularly interested in hearing from male participants.

Should you take part in the survey, you can also choose to be entered into a prize draw to win one of ten £10 Amazon vouchers.

The study is part of a wider project being run by the Centre for Appearance Research whose goal is to better understand the impact of having a visible difference.

You can take the survey here

If you have any questions or would like more information about the study, you can contact the lead researcher, Fabio Zucchelli, at Fabio.zucchelli@uwe.ac.uk, or call 0117 328 3882.

The study has been granted ethical approval from the University of the West of England.

A study on legal equality in the workplace for people with a visible difference

As part of a PhD project at Durham University, researchers are looking to interview adults with a visible difference about their experiences of working (or seeking work) in the UK.

The project seeks to establish whether workplace laws in the UK are effective at achieving equality and non-discrimination for people with a visible difference (any condition or injury which alters appearance).

Researchers are looking for volunteers aged 18 or over with a visible difference who are willing to be interviewed either in their own home (subject to location) or by telephone about their experiences of work and job market equality.

It is estimated that the interview would take between 1 and 2 hours at a time to suit the participant. Participation is entirely voluntary and unpaid.

If you are interested in taking part, please email the lead researcher, Hannah Saunders at hannah.e.saunders@durham.ac.uk, including your name, address and a phone number where you can be reached. You will then be sent further information about the research and what’s involved.

The study has been granted ethical approval from Durham University.

An online survey on how differences in responses to psoriasis are related to psoriasis-related outcomes and wellbeing

A researcher at the University of Sheffield is looking for people with psoriasis who are aged 18 or over to take an online survey which she is conducting as part of her doctorate in clinical psychology.

The researcher is interested in how people respond to their psoriasis, and how this affects it.

Participants are asked to complete online questionnaires regarding their psoriasis and wellbeing, before completing further questionnaires four weeks later. This should take roughly 25 minutes in total. If you take part, you can also decide to enter into the draw for a £50 Amazon voucher.

You can take the survey here

If you have any questions or would like more information about the study, you can contact the lead researcher, Laura Perry, at lperry1@sheffield.ac.uk.

A survey on medication adherence in people with rheumatoid or psoriatic arthritis

A researcher at the University of Bath is looking for people who are based in the UK and have been diagnosed with either rheumatoid or psoriatic arthritis to take a short survey about adherence to medication.

The purpose of this study is to develop better informational and medical support for people living with arthritis. Full ethical approval has been granted by the University of Bath.

The survey is about medication and beliefs. It is completely anonymous, should not take long to complete, and participants will have the opportunity to be entered into a prize draw for one of three £50 online shopping vouchers.

You can take the survey here

If you have any questions or would like more information about the study, you can contact the lead researcher, Elena Mut at eam62@bath.ac.uk.

Psoriasis & the online support group: An exploration of user experiences

A researcher at the University of Surrey is looking to speak to people who are living with psoriasis and are interested in sharing their experiences as a member of an online support group.

The study aims to explore the self-reported experiences of people with psoriasis who use online support groups as a means of communicating with others.

In order to take part, you must be aged 18 years or over; have a diagnosis of psoriasis; and use an online support group for people living with psoriasis (this includes Facebook groups).

The study will require participants to answer a series of questions in a Skype interview. The interview will last for roughly 40 minutes and your responses will be audio recorded. All participants will need access to Skype, although phone interviews may be conducted for anybody who is not able to access Skype.

If you would like to take part in this study, please contact the Lead Researcher, Simone Mitchell on sm00566@surrey.ac.uk for further details.

The study has been reviewed and received a Favourable Ethical Opinion (FEO) from the Faculty of Health and Medical Sciences Ethics Committee at the University of Surrey.  

Optimising Treatment Strategy in Psoriasis

It is important to have ‘patient’ and public input at an early stage of planning a research study. This is so that researchers can be sure that what they are researching, and the way that they are researching it, meets the needs of real people.

This is an opportunity to give feedback on a psoriasis research proposal. The researcher is a Dermatology Specialist Registrar, Dr Satveer Mahil, who works at the St John’s Institute of Dermatology, and was recently awarded the prestigious Royal Society of Medicine’s Wesleyan Trainee of the Year Award. You can read a short description of Dr Mahil’s research proposal by clicking here.

If you would like to learn more about Dr Mahil's research study, and give your feedback, please click here to complete a short survey.

PLUM - A research project looking at the causes of pustular psoriasis

The clinical research team under Professor Catherine Smith at St John’s Institute of Dermatology, Guy’s Hospital, London, in collaboration with Dr Francesca Capon’s group at King’s College London (Department of Medical and Molecular Genetics) are running a research project looking at the potential causes of pustular psoriasis. 

The PLUM clinical research team

The observational research study is known as PLUM (Pustular psoriasis, elucidating underlying mechanisms) and is looking for patients with a diagnosis of pustular psoriasis to take part at centres around the country. More info can be found at www.apricot-trial.com/PLUM 

The study involves collecting data and clinical samples from patients at one study visit, with the option for recall to a couple of additional visits for further samples within the following 1-2 years. 

Dr Capon explains why they are conducting the study: 

What is the objective of our research? 
The main aim of our research is to identify genetic changes that lead to the onset of pustular psoriasis. We have already identified a small number of genes that are malfunctioning in pustular psoriasis patients and these discoveries have taught us a great deal about the causes of the disease. We therefore believe that identifying additional pustular psoriasis genes will shed further light on disease mechanisms and help the development of much needed treatments. 

Why are we collecting blood samples? 
Blood cells are a source of both DNA and RNA (a molecule that is similar to DNA, but is only produced from genes that are active at a given moment). Comparing the DNA of affected and unaffected individuals can help us uncover genetic differences that are associated with the disease. Likewise, comparing the RNAs of patients and controls can show us which genes are abnormally active in affected individuals. 

Why are we collecting skin samples? 
Pustular psoriasis mostly affects skin. This is therefore the tissue from which we can learn the most about disease mechanisms. For this reason, we are planning to compare blood samples with skin samples from affected individuals and healthy controls. 

PLUM is open at a number of centres around the country. If you are interested in finding out more visit our webpage www.apricot-trial.com/PLUM or contact us at dermatologytrials@gstt.nhs.ukb

An exploration of life with a chronic skin condition

A researcher at Royal Holloway University is looking for people who are living with a chronic skin condition, such as psoriasis, to share their experiences of coping and managing with the physical, social and psychological difficulties that the condition presents.

Participants must be aged 18 or over, have experience of living with a chronic skin condition, and be willing to speak to a researcher about their experiences, possibly including making some short video accounts exploring the impact of their condition on day-to-day life.

The findings from this research will provide valuable real-world understanding about life with a chronic skin condition, and the perspectives of the people affected.

For more information about this research study, please refer to the participant information sheet.

If you would like to take part in the study, please contact the lead researcher, Khalid Al-Muhandis at Khalid.al-muhandis.2014@live.rhul.ac.uk.  

The Psoriasis Association is the UK's leading national charity and membership organisation for people affected by psoriasis – patients, families, carers and health professionals Read More >

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