Taking Part In Research

See below for opportunities to take part in psoriasis research, or to share your experiences. Please note that these projects are not run by the Psoriasis Association, but by external parties such as academic research departments.

If the opportunities below do not match the type of project you are looking to be involved in, you can also take a look at 'Be Part of Research', which is run by the National Institute for Health Research and will give you lots of information about taking part in clinical trials and allow you to search for a relevant trial in your area.

An interview study for parents and carers of children with an appearance altering condition

Maia Thornton, a PhD student at the Centre for Appearance Research, University of the West of England, is looking to interview parents and carers of children with an appearance altering condition, such as psoriasis, for her PhD study,

Should you wish to take part, you will be asked questions about your experiences of having a child with an appearance altering condition in order to help inform future support for parents and carers. Depending on preference, interviews can take place either face-to-face, or via telephone or Skype.

All parents and carers who take part in an interview will receive a £15 Amazon voucher.

Click here to find out more about the study, and to register your interest

A survey on your experiences of switching from Humira to an adalimumab biosimilar medication

Towards the end of 2018, the biologic medication Humira (adalimumab) came off patent, paving the way for a number of adalimumab 'biosimilar' medications to be introduced by the NHS. Since that time, a number of you may have been switched from Humira onto one of the available biosimilars (Amgevita, Hulio, Hyrimoz, Imraldi).

Here at the Psoriasis Association, we're keen to hear about your experiences of switching from Humira to one of these biosimilars. If you're aged 18+, based in the UK, and have recently been switched, please take this short survey.

If you currently take Humira and haven't been asked to switch yet, please note that we will keep this survey open for a few months so do feel free to come back to it if you are switched at a later date.

Help test an online support programme for people with conditions which affect their appearance

Researchers at the Centre for Appearance Research, based at the University of the West of England, are looking for volunteers to test a new online programme that helps people view themselves more positively.

The online programme is designed for adults with conditions that affect how they look, such as psoriasis, and encourages people to focus on what their bodies can do, rather than how they look. It involves completing three short writing tasks over 5 days.

As a thank you for taking part, participants will be entered into a £150 prize draw.

If you would like to take part, or want to find out more, please contact Ella Guest from the Centre for Appearance Research either by email at ella.guest@uwe.ac.uk or by phone on 0117 32 87045.

A survey on medication adherence in people with rheumatoid or psoriatic arthritis

A researcher at the University of Bath is looking for people who are based in the UK and have been diagnosed with either rheumatoid or psoriatic arthritis to take a short survey about adherence to medication.

The purpose of this study is to develop better informational and medical support for people living with arthritis. Full ethical approval has been granted by the University of Bath.

The survey is about medication and beliefs. It is completely anonymous, should not take long to complete, and participants will have the opportunity to be entered into a prize draw for one of three £50 online shopping vouchers.

You can take the survey here

If you have any questions or would like more information about the study, you can contact the lead researcher, Elena Mut at eam62@bath.ac.uk.

Psoriasis & the online support group: An exploration of user experiences

A researcher at the University of Surrey is looking to speak to people who are living with psoriasis and are interested in sharing their experiences as a member of an online support group.

The study aims to explore the self-reported experiences of people with psoriasis who use online support groups as a means of communicating with others.

In order to take part, you must be aged 18 years or over; have a diagnosis of psoriasis; and use an online support group for people living with psoriasis (this includes Facebook groups).

The study will require participants to answer a series of questions in a Skype interview. The interview will last for roughly 40 minutes and your responses will be audio recorded. All participants will need access to Skype, although phone interviews may be conducted for anybody who is not able to access Skype.

If you would like to take part in this study, please contact the Lead Researcher, Simone Mitchell on sm00566@surrey.ac.uk for further details.

The study has been reviewed and received a Favourable Ethical Opinion (FEO) from the Faculty of Health and Medical Sciences Ethics Committee at the University of Surrey.  

Optimising Treatment Strategy in Psoriasis

It is important to have ‘patient’ and public input at an early stage of planning a research study. This is so that researchers can be sure that what they are researching, and the way that they are researching it, meets the needs of real people.

This is an opportunity to give feedback on a psoriasis research proposal. The researcher is a Dermatology Specialist Registrar, Dr Satveer Mahil, who works at the St John’s Institute of Dermatology, and was recently awarded the prestigious Royal Society of Medicine’s Wesleyan Trainee of the Year Award. You can read a short description of Dr Mahil’s research proposal by clicking here.

If you would like to learn more about Dr Mahil's research study, and give your feedback, please click here to complete a short survey.

PLUM - A research project looking at the causes of pustular psoriasis

The clinical research team under Professor Catherine Smith at St John’s Institute of Dermatology, Guy’s Hospital, London, in collaboration with Dr Francesca Capon’s group at King’s College London (Department of Medical and Molecular Genetics) are running a research project looking at the potential causes of pustular psoriasis. 

The PLUM clinical research team

The observational research study is known as PLUM (Pustular psoriasis, elucidating underlying mechanisms) and is looking for patients with a diagnosis of pustular psoriasis to take part at centres around the country. More info can be found at www.apricot-trial.com/PLUM 

The study involves collecting data and clinical samples from patients at one study visit, with the option for recall to a couple of additional visits for further samples within the following 1-2 years. 

Dr Capon explains why they are conducting the study: 

What is the objective of our research? 
The main aim of our research is to identify genetic changes that lead to the onset of pustular psoriasis. We have already identified a small number of genes that are malfunctioning in pustular psoriasis patients and these discoveries have taught us a great deal about the causes of the disease. We therefore believe that identifying additional pustular psoriasis genes will shed further light on disease mechanisms and help the development of much needed treatments. 

Why are we collecting blood samples? 
Blood cells are a source of both DNA and RNA (a molecule that is similar to DNA, but is only produced from genes that are active at a given moment). Comparing the DNA of affected and unaffected individuals can help us uncover genetic differences that are associated with the disease. Likewise, comparing the RNAs of patients and controls can show us which genes are abnormally active in affected individuals. 

Why are we collecting skin samples? 
Pustular psoriasis mostly affects skin. This is therefore the tissue from which we can learn the most about disease mechanisms. For this reason, we are planning to compare blood samples with skin samples from affected individuals and healthy controls. 

PLUM is open at a number of centres around the country. If you are interested in finding out more visit our webpage www.apricot-trial.com/PLUM or contact us at dermatologytrials@gstt.nhs.ukb

An exploration of life with a chronic skin condition

A researcher at Royal Holloway University is looking for people who are living with a chronic skin condition, such as psoriasis, to share their experiences of coping and managing with the physical, social and psychological difficulties that the condition presents.

Participants must be aged 18 or over, have experience of living with a chronic skin condition, and be willing to speak to a researcher about their experiences, possibly including making some short video accounts exploring the impact of their condition on day-to-day life.

The findings from this research will provide valuable real-world understanding about life with a chronic skin condition, and the perspectives of the people affected.

For more information about this research study, please refer to the participant information sheet.

If you would like to take part in the study, please contact the lead researcher, Khalid Al-Muhandis at Khalid.al-muhandis.2014@live.rhul.ac.uk.  

The Psoriasis Association is the UK's leading national charity and membership organisation for people affected by psoriasis – patients, families, carers and health professionals Read More >

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