Taking Part In Research

See below for opportunities to take part in psoriasis research, or to share your experiences. Please note that these projects are not run by the Psoriasis Association, but by external parties such as academic research departments.

If the opportunities below do not match the type of project you are looking to be involved in, you can also take a look at 'Be Part of Research', which is run by the National Institute for Health Research and will give you lots of information about taking part in clinical trials and allow you to search for a relevant trial in your area.

Take a survey on mental health and skin to help inform a new parliamentary report

A new survey on the psychological and emotional impact of conditions which affect the skin (including psoriasis) has been launched by the All-Party Parliamentary Group on Skin (APPGS), of which the Psoriasis Association is a part.

The short survey will take 10 to 15 minutes to complete and will ask you a range of questions about your psychological and emotional wellbeing associated with your psoriasis (or any other dermatologic condition).

The survey is for anybody who has been diagnosed with a condition which affects the skin – if you need help to fill it in, the answers should be given from your point of view. The APPGS is interested in your experience even if your condition has now been successfully treated, or is in remission - your answers will help to improve services.

The anonymised results of the survey will be used to support the production of a new report by the APPGS on the psychological, emotional and mental health impact of skin conditions.

Please note that comments may be reproduced in the report and the results of this survey may also be published in an academic journal.

Take the survey here

If you have any questions about the survey or report, please contact Sebastian Guterres, Secretariat of the APPGS, at sebastian.guterres@appgs.co.uk.

You can find out more about the work of the APPGS here.

Be interviewed for a study exploring experiences of psoriasis and anger.

A researcher at Swansea University is looking for people to interview about their experiences of anger and psoriasis.

Who is eligible?

Anyone over the age of 18, diagnosed with Psoriasis, is welcome to take part in this study.

What’s involved?

The study involves taking part in an interview, lasting approximately one hour. They will take place at Swansea University, Singleton Campus. Or, over Skype when a face-to-face meeting is not possible.

Why is the study important?

Your personal insights into living with Psoriasis will contribute to making meaningful change in how the psychological impact of skin conditions are understood, and possibly how interventions are structured in Dermatology.

If you would like to participate or have any queries, please contact the researcher, Olivia Hughes at 996031@swansea.ac.uk

This research has been approved by the Research Ethics Committee, College of Human and Health Sciences, Swansea University.

Help test an online support programme for people with conditions which affect their appearance

Researchers at the Centre for Appearance Research, based at the University of the West of England, are looking for volunteers to test a new online programme that helps people view themselves more positively.

The online programme is designed for adults with conditions that affect how they look, such as psoriasis, and encourages people to focus on what their bodies can do, rather than how they look. It involves completing three short writing tasks over 5 days.

As a thank you for taking part, participants will be entered into a £150 prize draw.

If you would like to take part, or want to find out more, please contact Ella Guest from the Centre for Appearance Research either by email at ella.guest@uwe.ac.uk or by phone on 0117 32 87045.

PLUM - A research project looking at the causes of pustular psoriasis

The clinical research team under Professor Catherine Smith at St John’s Institute of Dermatology, Guy’s Hospital, London, in collaboration with Dr Francesca Capon’s group at King’s College London (Department of Medical and Molecular Genetics) are running a research project looking at the potential causes of pustular psoriasis.

The PLUM clinical research team

The observational research study is known as PLUM (Pustular psoriasis, elucidating underlying mechanisms) and is looking for patients with a diagnosis of pustular psoriasis to take part at centres around the country. More info can be found here

The study involves collecting data and clinical samples from patients at one study visit, with the option for recall to a couple of additional visits for further samples within the following 1-2 years. 

Dr Capon explains why they are conducting the study: 

What is the objective of our research? 
The main aim of our research is to identify genetic changes that lead to the onset of pustular psoriasis. We have already identified a small number of genes that are malfunctioning in pustular psoriasis patients and these discoveries have taught us a great deal about the causes of the disease. We therefore believe that identifying additional pustular psoriasis genes will shed further light on disease mechanisms and help the development of much needed treatments. 

Why are we collecting blood samples? 
Blood cells are a source of both DNA and RNA (a molecule that is similar to DNA, but is only produced from genes that are active at a given moment). Comparing the DNA of affected and unaffected individuals can help us uncover genetic differences that are associated with the disease. Likewise, comparing the RNAs of patients and controls can show us which genes are abnormally active in affected individuals. 

Why are we collecting skin samples? 
Pustular psoriasis mostly affects skin. This is therefore the tissue from which we can learn the most about disease mechanisms. For this reason, we are planning to compare blood samples with skin samples from affected individuals and healthy controls. 

PLUM is open at a number of centres around the country. If you are interested in finding out more, please visit our webpage or contact us at dermatologytrials@gstt.nhs.ukb

The Psoriasis Association is the UK's leading national charity and membership organisation for people affected by psoriasis – patients, families, carers and health professionals Read More >

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Email: mail@psoriasis-association.org.uk

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