Supporting Researchers

Supporting psoriasis research has been one of the key aims of the Psoriasis Association since we were founded in 1968. We want to help researchers conduct research that has the best chance of having a real impact on the lives of people with psoriasis and psoriatic arthritis. To do this, we are pleased to not only fund research, but also support researchers in both recruitment and patient and public involvement (PPI).

Recruiting research participants:

Matching the right people to the right research is not always easy. The Psoriasis Association can offer support in recruiting by promoting your study and its inclusion criteria to our community through various channels.

Please note that all studies that are looking to recruit participants are required to have ethical approval before they can be promoted by the Psoriasis Association.

Patient and Public Involvement (PPI):

PPI is defined by NIHR INVOLVE as research that is ‘being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them’.

As a patient organisation, we believe that research has the most impact when people with psoriasis or psoriatic arthritis are involved in the project. This can include:

  • reviewing a research proposal,
  • attending a focus group,
  • sitting on the steering committee,
  • consulting on research materials,
  • consulting on the research ethics,
  • reviewing dissemination plans, presentations and engagement activities,
  • being a co-applicant and co-researcher

We are happy to promote PPI opportunities to our Research Network and to our wider community as appropriate.

What we offer

There are multiple ways that the Psoriasis Association can support researchers in recruitment or PPI:

Our Research Network is a group of people with psoriasis and/or psoriatic arthritis who are specifically interested in research. Opportunities to take part, or to be involved, in research are sent directly to members of the Network, allowing interested individuals to then get in contact with the researcher or take part.

The Psoriasis Association website has a ‘Taking part in research’ page, where current involvement and recruitment opportunities are listed. Opportunities can be advertised for as long as needed and allow anyone to take part or contact the lead researcher.

We have a number of social media channels, which allow us to communicate with a wide range of people affected by psoriasis and/or psoriatic arthritis. Depending on the suitability and the current posting schedule, our Communications team can post about research projects that we are promoting and direct people to the Psoriasis Association website or to the study itself.

Who we support

The Psoriasis Association is pleased to support researchers based in a UK university or hospital whose work is focussed on researching the causes, nature, or care of psoriasis or psoriatic arthritis.

If you would like to learn more about working with the Psoriasis Association on recruiting or involving people with psoriasis in your research then please get in touch!

The Psoriasis Association is the UK's leading national charity and membership organisation for people affected by psoriasis – patients, families, carers and health professionals Read More >

Get in touch

The Psoriasis Association Dick Coles House 2 Queensbridge Northampton NN4 7BF

Email: mail@psoriasis-association.org.uk

Tel :
01604 251 620
WhatsApp :
07387716439
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