Supporting psoriasis research has been one of the key aims
of the Psoriasis Association since we were founded in 1968. We want to help
researchers conduct research that has the best chance of having a real impact
on the lives of people with psoriasis and psoriatic arthritis. To do this, we
are pleased to not only fund research, but also support researchers in both
recruitment and patient and public involvement (PPI).
Recruiting research participants:
Matching the right people to the right research is not
always easy. The Psoriasis Association can offer support in recruiting by
promoting your study and its inclusion criteria to our community through
Please note that all studies that are looking to recruit
participants are required to have ethical approval before they can be promoted
by the Psoriasis Association.
Patient and Public Involvement (PPI):
PPI is defined by NIHR INVOLVE as research that is ‘being
carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’
As a patient organisation, we believe that research has the
most impact when people with psoriasis or psoriatic arthritis are involved in
the project. This can include:
- reviewing a research proposal,
- attending a focus group,
- sitting on the steering committee,
- consulting on research materials,
- consulting on the research ethics,
- reviewing dissemination plans, presentations and engagement activities,
- being a co-applicant and co-researcher
We are happy to promote PPI opportunities to our Research Network
and to our wider community as appropriate.
What we offer
There are multiple ways that the Psoriasis Association can support researchers in recruitment or PPI:
Our Research Network is a group of people with psoriasis and/or psoriatic arthritis who are specifically interested in research. Opportunities to take part, or to be involved, in research are sent directly to members of the Network, allowing interested individuals to then get in contact with the researcher or take part.
The Psoriasis Association website has a ‘Taking part in research’ page, where current involvement and recruitment opportunities are listed. Opportunities can be advertised for as long as needed and allow anyone to take part or contact the lead researcher.
We have a number of social media channels, which allow us to communicate with a wide range of people affected by psoriasis and/or psoriatic arthritis. Depending on the suitability and the current posting schedule, our Communications team can post about research projects that we are promoting and direct people to the Psoriasis Association website or to the study itself.
If you would like to learn more about working with the Psoriasis Association on recruiting or involving people with psoriasis in your research then please get in touch