Psoriasis and swollen lymph nodes

Posted Tue 8 Oct 2019 14.55 by lauren

Hi, I suffer with psoriasis on the scalp and it has recently got a lot worse and has caused the lymph nodes on the back of my hair line to swell. The swelling is causing a lot of pain down my neck and I am in a lot of discomfort. I have had a scan on the lymph nodes and they have confirmed that they don't think they are cancerous. Has anyone else experienced this? Thanks, Lauren

Posted Fri 29 Nov 2019 14.13 by Kerr1991

Hi, I’m experiencing something similar too. I have had psoriasis for years and on my scalp has become worse, a few months ago I noticed lumps on my neck at the side 2 on my right and 1 on my left the doctor said nothing he was concerned about just swollen lymph nodes he took my bloods and said nothing concerning. But I asked to be referred to a specialist as I recently found out I was pregnant so have been worried it’s something sinister. I see an ENT he put a camera down my nose into throat and said he’ll put me for a ultrasound and biopsy on the 4th of December. But I am so worried as I have googled a lot of stories. But I’m not sure if it is my psoriasis causing the problem, as I have never had swollen lymph nodes in my neck before. Especially because they aren’t going down. But I am otherwise we’ll just quite tired. Have yours gone down atall? Do you feel more reassured after the ultrasound?

Posted Mon 3 Feb 2020 03.49 by Julation (edited Mon 3 Feb 2020 03.50 by Julation)
I work for a pharma company and I am a writter

Hello I know this is old but I have the same problem. My neck is hurting and my lymph nodes are swollen on the side I have psoriasis in my ear canal when I flare up. Remember that its a immune deasease so I think it might be normal to have that kind of reaction. Do you have any update on your situation?

Posted Sun 9 Feb 2020 06.13 by ali - 66 from Hampshire
I have Psoriasis and I think psa ,I’m 65now and think have had it about 5 yrs.

Hi 👋 I have scalp & ears psoriasis, I suffer badly with cold sore which have been getting much worse, I.e they go immediately like impetigo and abt 3’’ size, it’s also like having flu each time, I m laid up with it. I’ve just had it 3 times in 2 months. I’ve just got the dr to give a prescrip so I can get antibiotics straight away. (Though I’ve been taking them 2 weeks and she said my glands in neck and sides of top half vv painful and sensitive and must be infected badly ) still painful all this time feel like throat is swollen. and my voice deepens ( voice box too?) Does anyone have same experience? It feels as though my immune system is more and more affected🥴. I’m 62 and still working, (love my job as a Counsellor) and I’m not ready to cut back yet, but seem to be on a health ongoing spiral since November. Any suggestions, comparisons helpful thanks. Ali

Posted Sun 9 Feb 2020 14.27 by Julation
I work for a pharma company and I am a writter

Hello I also have it in my ears. My neck is hurting like crazy, cant turn my head on right side. Its auto immune, it might be « normal » that our system is fighting something that is just not there. You really need to find what is causing this (I am still trying to figure it out myself) to calm the flare down.

Posted Sun 17 May 2020 13.57 by beths123

Hiya Sorry for late reply but I am going mad here. I to have scalp psoriasis and noticed two lumps behind my neck on the left side near hairline was reassured by gp it was my psoriasis However lastnight I noticed two near my collarbone area but still on the neck they move but painless went to walk in centre who said I had quite a few swollen glands and nothing to worry about. Anyone else had this on their lower neck also??? I am so worried x

Posted Tue 22 Sep 2020 06.43 by Loopy

I know this is an old post, just wondering how people got on with the enlarged nodes. I've had one for well over a year now and although had it scanned in January, feel it's getting bigger. GP says it's because of scalp psoriasis but I hardly have any.

Posted Fri 22 Oct 2021 17.20 by Hils

I have PPP and its been very bad recently. My underarm nodes are enlarged, i am awaiting biopsy results and v worried. Could this be linked to the severe PPP (open cracks allover hands)? Has anybody had similar experience?

Posted Fri 29 Oct 2021 11.29 by Smitch

Hi Lauren, I've been dealing with the same and also had a scan which was clear, my throat/neck gets really sore at times and my glands are huge!

Posted Sat 30 Oct 2021 00.37 by Itchy&Scratchy
I've had psoriasis since I was about 8 years old, I am now 27 and its at its worse now I'm older

Hi all. I recently had this problem and have psoriasis plastered all over my scalp. Tried hard not to scratch but as you know, it's sometimes impossible! Anyway after a few swollen lymph nodes I found out I'd got a scalp fungal infection due to the scratching of psoriasis and had anti fungal shampoo and some steriod stuff called betacap which sorted me out. Hope this helps?

Posted Wed 24 Nov 2021 16.55 by Myz8887

I have swollen lymph nodes in my neck, same side I was having very bad itching and just felt like this side of my head was swollen. I’ve been on a steroid scalp liquid now for a week abs a half, it’s helped calm it. What shampoo do y’all use if it’s fungus related? I was on antibiotics and it didn’t do a thing for the swollen lymph nodes.

Posted Tue 7 Dec 2021 01.25 by gmsim88

I can relate to all of you guys. When my psoriasis exploded up out of nowhere in my life at 56, it was quite frightening and a "non-textbbook" type of rash. Two biopsies confirmed the basics of psoriasis. My body went through intensely painful "phases". About 4 months into using prescription topical creams, a large painful spot appeared on my breast. My lymph nodes began to swell and hurt wherever the rash/scales went. My gp ran extensive bloodwork and discovered I have a vitamin D deficiency and pretty high white blood cell count. I also went to a Breast Care specialist and was put through many types of screens and more bloodwork. The result of the bc screens showed a small suspicious area deep in my breast. My lymph nodes all over me were going nuts. They did two biopsies and the results were again suspicious but not conclusive. I go back for a 6 month mammogram post biopsy in two weeks. My lymph nodes constantly fired off wherever the psoriasis was flaring. At this point my psoriasis spread to my feet, hands, ankles, gums, scalp, toe and finger nails, nostrils, lips only occasionally, and last but not least, my booty hole. I was finally diagnosed with PSA and put on Tremfya May 2021. I have had very good results and my lymph nodes have settled down considerably. I don't know what or how it all is or works. It's a bizarre disease. But treatments help most of the time. Prayers, love and blessings to you all.

Posted Sat 1 Oct 2022 17.08 by Slarti

I've been diagnosed with Palmoplantar Pustulosis at the age of 56. First small clear blisters appeared about a month ago but I burst them and thought nothing of it. I think this is when the base of my skull / neck started aching. Then they appeared again in rapidly increasing size /number so I got a same day appointment to see my local Nurse practitioner. She said she wasn't sure what the cause was and I was prescribed Flucoxacillan. She also said my neck pain was not connected but due to sleeping awkwardly. This was on the Thursday. My hands flared up so bad over that weekend that I saw my GP on the Monday and she prescribed Erythromycin. I've got two steroid creams, Lotriderm & Dermovate, which are effective, & Zero cream as a soap substitute. She also confirmed swollen lymph nodes - even the tops of my arms ache. I seem to spend my waking hours braced, ready for any sudden unexpected movement. It's tiring. I saw a Dermatologist on Thursday this week, and as the creams are effective there's currently no extra treatment required. Not having full use of my hands is making life hard as I can't prep and cook food atm. I wear cotton gloves which at least make me feel a bit less vulnerable. I'm glad to have found this forum as I know I'm not alone

Posted Mon 31 Oct 2022 17.27 by Salskin
Hello , I'm new here, looking for support from others in same situation

Had psoriasis on and off since I was 7yrs old,have been eating lots of blueberries...after reading a success story on someones forum also take high dose vit D, certainly seen a great improvement.

Posted Sun 19 Mar 2023 20.29 by Kay

I started having psoriasis in my early 20s and it has been progressively worse over the last couple of years. I discovered I had two lumps on my neck in 2021 and went to get them checked out. The ENT doctor said my psoriasis was causing the lymph nodes to swell up. After a few weeks, the swelling went down. Now recently, my lymph nodes are swollen and painful… thanks to my psoriasis. It’s a constant battle with my psoriasis. Some days it’s good and some days it’s bad

Posted Tue 28 Mar 2023 05.07 by Lily005

I’ve had psoriasis since I was a kid it’s on my scalp and ears, and about 3 years ago a swollen lymph node popped up and never went away. My doctor assumed it’s because of psoriasis and I got an mri but basically said it was nothing to be worried about. I am in fact worried lol and another one popped up recently. They’re smaller and don’t really grow but they don’t leave or hurt and they move some and feel rubbery.

Posted Sat 22 Apr 2023 00.02 by Samiyah

Mine have been swollen on the right side at the back for 2 years, ive had many scans and one about 6 months ago which they said was not concerning. I do get sore and itchy scalp at times and i know psoriasis runs in my family, i understand the worrying about it as it can be also painful. It is reassuring to know i am not the only one with this issue. I have given up asking them to do tests with it right now though.

Posted Fri 25 Aug 2023 06.46 by GeorgeTaylor

I am a 27 year old male who was diagnosed with psoriasis as a kid. I have a couple enlarged lymph nodes around the site of my psoriasis as well. They have been there for a long time now, and have never grown in size beyond the size they were when I initially noticed them. My psoriasis has not gone back into remission since I was 17 or 18, so I can’t say whether they go away with effective treatment. That is entirely my fault for not seeking treatment for my psoriasis by the way, not a signal that treatment doesn’t work or anything. With the exception of one person who it seems may be describing an unrelated condition, all of us who have actually went to a doctor and had our enlarged lymph nodes checked have been told that it was nothing to worry about. Myself included. I told my doctor that I was stressing about whether they were cancerous or something, and he laughed and told me that they weren’t even close to large enough for that to be a concern, and that I should only be worried if they begin growing rapidly. Which they never have. A word of advice for those of you who commented previously who also reported feeling pain or tenderness. STOP TOUCHING THEM. If my experience is any indication, the tenderness you’re feeling is probably a direct result of the fact that you’ve been touching, massaging, pressing down on and otherwise abusing your lymph node because of how stressed you are about it. I initially felt some pain and tenderness shortly after I noticed the lymph nodes, and I eventually realized after several doctors told me they were nothing to worry about that I was causing 100% of the pain by messing with them because of the stress they were causing. Stress and psoriasis are linked, remember that. I actually start to feel physical ill, even a little feverish when I am stressing myself out over health concerns. And whenever I go to a doctor and they tell me the thing I’m stressing about is nothing, I instantly feel a wave of relief. Because the stress is what’s causing me to feel like crap, not the actual medical thing I’m worried about. That being said, it’s never a good idea to just ignore a swollen lymph node. Best case scenario, you have an infection or something like psoriasis that needs to be treated anyway, so you might as well just go to the doctor anyway. If you were to have a cancerous lymph node, you’d rather catch it early than ignore it and let it grow and potentially spread. But if your symptoms are exactly as most of us have described here, odds are you’re stressing yourself out more than you should be.

Posted Mon 25 Mar 2024 19.04 by Slarti

Hi everyone, I posted in Oct 22 and am posting again now as my left hand has flared up, along with some small patches on the sole of my left foot. I feel tired all the time, my upper body is aching and hurts if I move suddenly, and my lymph nodes are slightly swollen. I have been somewhat stressed over several things recently and suspect that this is the reason for the flare up. What a horrible situation we all face. It is so miserable sometimes but we do get through it, because we have no choice. I find this forum so good and whilst it can't cure the problem, it does help knowing we're not alone.

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