How Does A Priority Setting Partnership Work?

First of all, we asked everyone affected by psoriasis - individuals who live with it, their families and friends, and the healthcare professionals who treat them - to give us three 'questions' about psoriasis and its treatment that they feel need to be researched.

We are now sorting through the responses to the survey, and producing a list of the questions submitted to us. After this, we will ask people to take part in a second survey to go through the list of nominated questions unanswered by research, to tell us which they think are the most important. It is up to you whether you would like to take part in the second survey. You can tell us on the first survey if you are happy for us to contact you again.

After we have gathered the information from the second survey, we will invite people with psoriasis, their families and health professionals, to a workshop to discuss and prioritise the top ten questions. This top ten will then be published,

What does the survey involve?

The first survey is now closed, but the Priority Setting Partnership is ongoing - please check back for updates and other opportunities to get involved. 

The second survey will be open soon. You will be asked to rank the questions we received from the first survey according to how important you think they are.

What if questions are submitted that have already been answered by research?

If we find any questions which have been previously answered by research we will ask organisations and healthcare professionals to think about ways to better communicate this information to others.

What will happen to the results of the PSP?

The PSP is due to be completed by October 2018, when the top ten priorities for psoriasis research, agreed by patients, carers and health professionals, will be published. This list of priorities will help to inform researchers working in the area of psoriasis, so that work is done in the areas that are deemed important.

The Psoriasis Association is the UK's leading national charity and membership organisation for people affected by psoriasis – patients, families, carers and health professionals Read More >

Get in touch

The Psoriasis Association Dick Coles House 2 Queensbridge Northampton NN4 7BF

Email: mail@psoriasis-association.org.uk

Tel :
01604 251 620
Fax :
01604 251 621
Registered with Fundraising Regulator -

© The Psoriasis Association Registered Charity: 257414 Scotland: SC039886 Privacy PolicyCookies

Site by Spoken Image | glitterfish

We use cookies to help us provide you with a better service, but do not track anything that can be used to personally identify you.

If you prefer us not to set these cookies, please visit our Cookie Settings page or continue browsing our site to accept them.