How Does A Priority Setting Partnership Work?
First of all, we asked everyone affected by psoriasis - individuals who live with it, their families and friends, and the healthcare professionals who treat them - to give us three 'questions' about psoriasis and its treatment that they feel need to be researched. There were 819 respondents who in total submitted 2,185 questions!
Next, with the help of the PSP steering group, the questions were checked to ensure they had not already been answered by existing research. Similar questions were grouped together and the wording was summarised. As a result, a list of 55 questions was produced ready for the second (shortlisting) survey.
The second survey is now closed.
After the results from the second survey have been gathered, we will invite people with psoriasis, their families, and healthcare professionals, to a workshop this autumn to discuss and prioritise the top ten questions. This final 'Top Ten' list will then be published,