How Does A Priority Setting Partnership Work?

First of all, we asked everyone affected by psoriasis - individuals who live with it, their families and friends, and the healthcare professionals who treat them - to give us three 'questions' about psoriasis and its treatment that they feel need to be researched. There were 819 respondents who in total submitted 2,185 questions!

Next, with the help of the PSP steering group, the questions were checked to ensure they had not already been answered by existing research. Similar questions were grouped together and the wording was summarised. As a result, a list of 55 questions was produced ready for the second (shortlisting) survey. 

The second survey is now closed. 

After the results from the second survey have been gathered, we will invite people with psoriasis, their families, and healthcare professionals, to a workshop this autumn to discuss and prioritise the top ten questions. This final 'Top Ten' list will then be published,

What do the surveys involve?

The first survey closed in November 2017. This gave respondents the opportunity to submit three questions of their choice that they think future psoriasis research should focus on answering. 

The second survey closed in August 2018. In this survey respondents were asked to choose up to ten questions about psoriasis and treatments that matter to them the most from a list of 55 questions.

What if questions are submitted that have already been answered by research?

If we find any questions which have been previously answered by research we will ask organisations and healthcare professionals to think about ways to better communicate this information to others.

What will happen to the results of the PSP?

The PSP is due to be completed by October 2018, when the top ten priorities for psoriasis research, agreed by people who are living with psoriasis, carers and health professionals, will be published. This list of priorities will help to inform researchers working in the area of psoriasis, so that work is done in the areas that are deemed important.

The Psoriasis Association is the UK's leading national charity and membership organisation for people affected by psoriasis – patients, families, carers and health professionals Read More >

Get in touch

The Psoriasis Association Dick Coles House 2 Queensbridge Northampton NN4 7BF

Email: mail@psoriasis-association.org.uk

Tel :
01604 251 620
Fax :
01604 251 621
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